Tag Archives: love

I LEARNED

This year has been one of the most challenging years I’ve ever experienced. But still, I’m here for it. 

I have been in a wheelchair for years, due to issues stemming from my Systemic Sclerosis, (Scleroderma). A little over a year ago, I went through some changes in how my doctors are treating my illness. Instead of trying to stop it, which wasn’t happening, they are treating my worst symptoms, with the intent of increasing my quality of life. Who knew that this would change everything?

I have been working hard through PT, OT, and training to regain my mobility. It’s taken a lot of determination, motivation, and commitment. Today I barely even use my cane. My wheelchair collects dust until the next big adventure that requires being in one position for an extended period, walking long distances, long days, venues with long ramps or uneven ground, etc., or during an unexpected flare. When I say it’s been challenging, it feels understated. It’s hurt, consumed a lot of time, left me in tears feeling defeated, thinking it’s all for nothing, and many other mind-fuck games our brains like to play. 

As with any illness, stress has the biggest negative impact on the body, mind, and soul. I never thought my peace would be challenged like it has been this last year. My mom’s Alzheimer’s has progressed rapidly, leaving her needing more time and support from myself and the family. On top of that, our lives took an unexpected turn as we accepted a difficult task at a major crossroads for our family. To say we’ve been under immense pressure, like nothing we’ve faced before, is a true statement. This one life-changing need in our family has had me at the maximum stress level I’m capable of working through.

I believe that every moment in our lives is a chance to learn something about ourselves, an opportunity to change and become a better version of ourselves, and once we learn the lesson, peace returns to one’s life. I have spent a lot of time on my knees this past year begging God to tell me what I’m supposed to be learning from all of the melancholy chaos we’ve endured. Why make me physically stronger just to throw a monkey wrench into my mental health, peaceful home, family, and positive take on life? 

Through this challenging time, for myself and my family, I have learned that change can often take more effort than anticipated. I learned that even if you give your full effort, things don’t always get better. I learned that I am worthy of all that effort. I learned that those I love are worthy of my effort. I learned that it’s ok to temporarily disengage from many things that were important to me to prioritize my physical healing and my family’s needs at this time. I learned that when things are broken, they can’t always be fixed, and this goes for people as well. I learned that picking up the pieces doesn’t mean that all of those pieces can be put back together. I learned that there are people in my life who will walk through fire for me and I for them. I learned that some care enough to wait in my silence for me to heal and allow me the space needed to work on healing my family. I learned that not everyone is my friend. I learned that some people forgot about me, during my much-needed silent healing journey. I learned that everyone is going through something, and I have endless gratitude for anyone who takes a minute to check in and remind me they’re there and ready to help if I need them. I learned that a kind gesture doesn’t have to be elaborate, it’s the small reminders people give, letting me know that even though I’m not present at the moment, they are there when I’m ready. I learned that yes, I am strong, but I’m also at times fragile. I learned that where there’s a will, there’s a way is a damn lie. But still, I’m here for it. 

I hold those who have taken the time to let me know they’re always there with me in the highest regard. To those who disappeared, I have nothing but hope that their journey is a happy one. For those whose mental capacity is flooded with struggles, leaving them drowning, please know you’re not alone. I want you to know I haven’t much emotional space to share at this moment. But still, I’m here for it. 

I SEE YOU

I’ve always had a passion for writing. However, my challenge lies in the fact that my thoughts often scatter, and I may complete only one out of every ten pieces I begin. I have a friend who grapples with constant chaotic thoughts. He finds it difficult to recognize any redeeming qualities within himself. The remarkable thing is, he possesses an unparalleled gift. His ability to put words to paper that evoke all your senses and transport you into the vivid scenes he creates is a talent possessed by few.

He’s been working very hard on himself for the last year or so, giving up things he once thought he wanted, to explore his past, understand who he has become, and discover who he wants to be. He’s utilized advice from friends, his own creativity, a great deal of courage, and therapy to break free from the box that trauma had trapped him in.

I am incredibly proud of him. He acknowledges that he was becoming toxic to himself and those he cared about. Instead of taking the easy route, he summoned the strength to become a better person. His journey is far from over, and he knows it will take years to untangle and overcome behaviors shaped by trauma. But he’s doing it, and I want him to know that, although my life is very busy at the moment & my time is limited… I see you.

He has a deep love for poetry, and so do I. Even though I’m just a small star in the vast galaxy of his talent, I knew that poetry was the language I needed to connect with him. I chose a reverse poem to serve as a reminder of where he once stood and where he stands today. I want him to understand that I see him, I’m proud of him, and I have faith in him. I look forward to watching his ongoing journey toward self-healing and self-awareness.

Read each line from top to bottom. Then read each line from bottom to top.

His life is pain

And he no longer feels

He has the right to hope

Learning from loss

His worth is limited

Refusing to see

Through others’ hearts

Forging his path

In fear & anxiety

Never choosing to walk

With trust & courage

Trudging through chaos

Harnessing his creativity

Binding him from

A life full of joy

For JP, to remind you to always flip the script.

THE SPEED OF LIFE: ONE YEAR LATER

Hello all! I hope you have had a wonderful Sunday and a great weekend overall! This weekend finds me reminiscing and reflecting, as it was one year ago this very day that I began writing on this blog, and sharing my experiences and happenings with all who would listen. And while I will admit to having skepticism at first about writing here, mainly over the feeling that nobody would listen and would therefore not resonate, I’ve come to find that, over the last year, I have seen so many things in my life from the viewpoints of others, and it has made me take a second look at things I was doing and am doing, and showing me more clearly what to leave in and what to leave out in terms of my life. And it has been a major boon to me!

I must give a bit of explanation as to how I got here: The first blog I ever wrote on this website was entitled “Moving At The Speed Of Life”. At that point in my life, I really was doing just that. I was bursting at the seams with creative opportunities and was hellbent on making every single one of them work. Now, if you can balance your working life with your everyday life, this can be a time that bears great fruit for you. But I found myself incapable of doing this, and I now freely admit that, whereas a year ago, I was still very hesitant about doing so. I found myself taking on so many tasks, and trying to keep every happy within the network I helped found that it all became too much. I wound up crashing head-first into a brick wall on August 12 of last year, standing dangerously close to the edge, and about to go over it. Had it not been for the goodness and kindness of many-and three women in particular-I don’t know where I would be!

The first of these wonderful women is Em Farwell, one of the founders of this very website, and the one who first offered me to write a blog for this website! I first came to know Em after she joined the team on Cosmos Creative Television, the online network I co-founded. Within just a couple of weeks, I knew that Em was a valiant, strong and caring individual who has a huge heart and so much to give. And give she did!

Em assumed a sort of motherly role in my life, taking me in as one of her many “virtual” children she has nurtured and looked out after over the years. When I told her my story and why I am the way I am, she took the time to listen, and offered up ideas and solutions about how to grow and be better and shed a lot of what I knew and had experienced.

As mentioned before, when Em offered me a spot writing on this blog, I approached it with some hesitation and trepidation. I had never blogged before; the closest I had come to that was putting my poetry onto various websites through the years prior. I had no idea if anyone would listen to or even care about what I said. But, at any rate, I found the courage and elected to go for it. And it has paid off wonderfully, as mentioned earlier in this blog! I will be forever grateful to Em for believing in me and giving me this opportunity to write on this wonderful blog!

The second of these three wonderful women is my dear friend and co-creator Renée Yaworsky. Renée and I founded Cosmos Creative Television together, and we have done many wonderful things in our creative lives together! More than that, it was Ré who first introduced me to Em, when she first came onto the CCTV team way back when. Ré has been one of my biggest supporters, one of my closest confidants, and one of the reasons why I am talking with you today. She saw firsthand the struggles I was going through, and was the first to start me forward on the journey to where I am today, one of healing and growth and change.

When I first mentioned possibly writing a blog, she was over-the-moon about the idea, having been a constant supporter of my poetry and other writings all along the way. My hope is that Renée may someday join myself and Em in writing on this website! In the meantime, with each blog I publish to this website, I always think of Ré and what she said to me, her unwavering support that pushed me over the edge to do this, and in turn, see things from a wide variety of lights and viewpoints, and how to best prepare myself for the future!

The third woman I want to pay homage to in this anniversary blog is my therapist Elizabeth! When I first stepped away from doing shows and whatnot in Cosmos, Renée and Em were steadfast about my trying therapy. I had never really given therapy a shot before, and out of nervousness, I kept putting it off and putting it off until finally I found a website that did not have any hoops to jump through (shoutout to Open Path Collective!), and I found Elizabeth after only a few minutes of searching. After initial contact, we settled on a date for a first therapy session, and to say I went into the session scared to death was an understatement. But within 10 minutes, I felt better telling my story than I had felt in the first nearly 20 years of telling it. I finally felt truly heard and seen and cared about. I finally felt safe and comfortable, talking about all of the dark, traumatizing things I had experienced in my onescore and six on this earth.

December will mark a year since I first started seeing Elizabeth, and in the dozens of sessions we have had since that time, I have reaped benefits I never knew existed. I feel so much freer and happier in my life, and I have so many more tools in my tool chest for fixing the problems in my life and overcoming the days where sadness overcomes me. While I do still slip from time to time, I find that I am a better friend, a better man and a better person overall for seeking therapy, and now, whenever I can, I tell people about my experiences in therapy, and how it can be beneficial in their own lives, if they take the chance to do it!

Most of all in my therapy journey, I have learned to keep forward and not linger on every minute thing that could happen. This is something I have struggled with mightily in my life, and I’d be lying if I said I was 100% cured, but the strides I have made and the tips and tricks I have received have been more beneficial to me than any amount of money. I feel like I am lightyears ahead of where I was when I first started, and though I know I have many a mile to travel in my journey, I can take comfort in knowing I have come this far, and have grown and changed and evolved accordingly!

Before I leave you, I want to offer you, the reader a hearty thank-you and bow of appreciation as well! Your comments and messages and other inputs on my blogs have been extremely beneficial to me, and it is through your eyes that I have seen a great many things that have gone on, and situations I have been in, and I have seen where I could be better, and where I have done better. Your input has shaped and crafted me more than you could ever imagine, and for this, I am thankful! Please continue to offer your input whenever you can!

I hope this blog finds you well, and in the comments, tell me which of my blogs over the last year has resonated with you the most!

As always, take care, much love, may God richly bless, and here’s to another year!

-Jon

FAILURE IS ALWAYS AN OPTION!

One of the things that the human race is scared of the most in their time on the planet is failure. This is a wholly justified feeling, as failure in certain things can feel absolutely devastating in our lives, especially if we’ve poured our blood, sweat and tears into something, only to find it in pieces on the ground when the day is done.

Failure is always a large and looming monster, especially if you are like myself and are of a creative persuasion. Failure in music, writing, poetry, painting, etc always seems to loom three steps behind us at all times. But as scary as those long shadows may be, many times we find our worries and fears about failure were transient. But still, the shadow follows us.

But five of the best words we could hear as people are: Failure is always an option.

Failure.

Is.

ALWAYS.

An.

Option.

I firmly believe that, while failure is a scary prospect in our lives, the presence of it is actually a good thing for us, as creatives and just as everyday people. And when I say this, I am NOT saying to root your expectations for a project or a relationship or a move or ANYTHING in failure, but rather to use the specter of failure to your advantage. Everyone who’s anyone has failed in their respective field many times, but in many cases, they did not become myopic after these. The failures they experienced instead only poured kerosene on the fire lit beneath them, and pushed them to grow, get better and move past what they had negatively experienced.

While I cannot speak for everyone and how they perceive failure in their own lives, I am of the belief that, when we completely remove the chance of failure in anything that we do, our work or craft will suffer. If we take a mental high-ground in our work and remove the option of failure and do nothing to keep the fire lit beneath us, we will become prone to indolence in our field, and any new ideas will be poisoned by the lack of failure. We will become creative sybarites, content to sit on our dead centers and become fat and lazy off of pleasure. Instead of neutering the chance of failure in our lives, we can instead leverage this idea of failure for our betterment, and to get a better head-start on any new project or idea we have.

As creatives and just as people in general, our lives are a constant and ever-evolving series of stratagems and gameplans for when those failures or setbacks manifest. Success and purpose equals pleasure in anything we do, and to wave the white flag of surrender and toss in the towel is tantamount to creative suicide, and starving ourselves of what every fiber of our being really desires. We must learn how to balance our reactions to failures and successes equally, so one reaction doesn’t get overtaken by the other, and sets us down a potentially dark path. While it’s human nature to mourn some on the loss of an opportunity, we must remember: For every door that closes, another will open. We must keep this mindset by our sides, if we are to continue to grow, change and evolve into the person we want to be!

I hope this blog finds you well, and in the comments, talk about a time where you leveraged failure into something that ultimately benefitted you or got you ahead in a facet of your life!

As always, take care, much love and may God richly bless,

-Jon

AM I HEALING, OR AM I DISTRACTED?

Every single one of us has had rough times, moments or events in our lives that we don’t like to talk about too very often. It can be highly uncomfortable to face those prior markers, but sometimes, we cannot avoid them. In some cases, we do what we can to avoid them, but we often find ourselves repressing those things, pushing them deep down in our minds, souls and psyches. This causes them to build up over time, and if we are not careful, the consequences can be devastating in our lives, and it will leave us having to pick up the pieces at a most inopportune time.

Which begs the question: “Am I healing, or am I distracted?”

Pushing trauma, discord, disaster, dissent, etc down in our lives only pressurizes it, and sets the stage for it to explode from beneath us at a later point. And keeping ANYTHING inside of us is akin to trying to contain a lava flow. Any feeling, any emotion, anything we may need to say to someone, any problem or block in our lives that we need to face, we must be properly prepared to meet them all head-on. If we keep them locked inside, it will make like acid and eat us from the inside out at best, and be a ticking time bomb at worst, destined to destroy both ourselves and all those around us in its wake.

Running from what we feel or are experiencing inside is not the way to go, nor will keeping one’s self excessively busy or making one’s mind imbibed with food, alcohol, sex, etc to avoid problems or shut off emotions pay any dividends to any involved party, no matter what we tell ourselves, or the things we may say, do or achieve under those circumstances. Using busy work or excessive pleasure to avoid that openness is just as toxic and damaging to one’s self as bottling it up and doing nothing on the matter.

It can sometimes feel like a game of “pick your poison”. But what if I told you that you don’t have to pick a poison?

What if I told you there is a medicine to cure these ills?

What if I told you there are three of those medicines?!



Openness and honesty and communication is tantamount to air, water and blood in importance in our lives, and the more we open up about what we are going through, the more we can either kick the dirt of what’s burying us off and climb out of the hole that we found ourselves in, or sprout roots & grow from that dirt and make a whole new, beautiful, flowering life for ourselves in the wake of it all. And the choice can only come from a sincere place inside us; it cannot come from a bottle or a pill or a magazine or the mouth of another person, it has to come sincere from within ourselves. We have to want it bad enough!

Whatever you, the reader may be facing at this time, I sincerely hope you choose the path of openness and honesty and communication, no matter how hard it may be for you to do so. I know a lot of us struggle at times with opening up about our lives and what we’re going through and asking for help, and I completely understand why, but bottling up those feelings, emotions and words can only be a poison and not a medicine. I hope you choose the path of healing, openness and bravery to walk, and I hope to see you at the end of that path!



Thank you so much for taking some time to read this blog, and in the comments, detail something you’re afraid of facing in your own life, and what you might enact to help yourself overcome that fear, and get back on even ground in your life!

As always, take care, much love and may God richly bless

-Jon

LEARNING TO WALK AWAY

Like so many, I am prone to stick by the side certain people or things. No matter what may transpire, I almost always come to a resolution with the people or group. While this is vital in maintaining healthy friendships and relationships, there comes a point sometimes where, despite your best efforts, these people or groups will not change. They will remain stuck in their ways, for better or for worse. It sometimes feels like you are screaming at a brick wall. And it also feels at times like, if you took action, it would be the straw that breaks the camel’s back, or the thread that unravels the entire quilt. But three things I had to realize to get out of this cycle is:

1) I am not responsible for decisions certain people make.

2) I am not responsible for what certain people may believe.

3) I cannot offer change and new ideas to people if they are not willing to change.

In the very recent past, I had a jolting realization and revelation in my life: I need to walk away from some people. My love for them will never change, regardless of the decisions they make or what they believe, how set in their ways they are, or if their visions, dreams, goals, etc were different than mine. I can still love them, but from afar. While my cries for them to change may have fallen on deaf ears, it’s their decision to make to remain entrenched in their ways, not mine. Instead of draining my resources on them, I’ll simply let them be. If their visions, goals, ideations and whatnot don’t mesh with mine, it’s not my responsibility to change them. I might be the bad guy at day’s end by walking away, but I’m not going to be the downfall or part of it. The best I can do is let the wild horses run, and hope time or karma take their course, and that they will make or let those people see the light.

It’s a commonality in all humans to want the best for those they love and care about. But at some point, you find yourself losing your own way. You find yourself becoming ever drained by constantly trying to nudge someone into a new way of thinking or doing, and while your intentions are good, it will just leave you with a wagonload of heartbreak and disappointment. The best you can do is be there for them, but at an increased distance, and to love them from said distance while they do or think whatever. All you can do is just hope and pray that a new sunrise finds their life, and that they see the right and proper light that guides them toward better in it.

I hope this blog finds you well, and in the comments, talk about a situation you are in or have been in that fits this post, and what you did to get through it.

As always, take care, much love, and may God richly bless,

-Jon

PERFECTLY IMPERFECT

Too often in our lives, we worry about being perfect. We’re all guilty of it in one way or another-we could be making a dish and spend hours on it, but we’ll fret if it’s slightly burned. Or we could have a poem or song idea spring to our minds, then we’ll kick ourselves afterward over a chord we missed or a note we didn’t hit. Or we could write someone a long letter, make a sales pitch, or see someone we’ve not seen in 20 years, and we’ll spend the time afterward chewing our fingernails past the first knuckle about what we should have said or done in the moment. Furthermore, we spend who-knows-how much time worrying about ourselves. Our eyes. Our hair. Our weight. If we have enough of a tan. How our smile looked in a selfie. How our voice sounded on a call or message. The list goes on and on.

I am guilty of this in my own right, especially in creative endeavors. Many, MANY times after interviewing someone, I will have those thoughts of, “well, why didn’t you say THIS,” or, “why didn’t you ask them THIS at THIS time,” etc. And many times when making videos for my ongoing radio/TV time capsule project, I’ll watch them back through and think, “why didn’t you include this piece of audio? Why did you have the audio clips in this order? Why did you cut out this much of a song?” Even in writing these blog posts, I’ll often find myself wishing I’d have gone longer, or included one more photograph, or posted one extra blurb about x, y or z.

It can be a draining and seemingly never-ending cycle. The vampire of perfectionism is highly persuasive. But in the course of a lifetime’s run, we begin to discover that, instead of being perfect, the most beautiful and genuine thing we can be is imperfect. ❤

I am spending this month of April writing various pieces of poetry, as a challenge a friend and I are partaking in for National Poetry Month. This morning, I posted a tanka, a haiku-like poem but with two extra seven-syllable lines tacked to it. It read as follows:

“dewdrop pearls shine
as forest daylight finds us
in each other’s arms
kisses on the riverbank
it’s a beautiful morning”


I shared it with her and some others that are writing with me, and our own Em pointed out that I had only four syllables in the first line when I thought I had five. After some conversation, I realized that the word pearls is only one syllable-at least in most dialects! I had spent most all of my life thinking the word was a two-syllable word, and when it was pointed out to me that it was only a single syllable, I felt highly self-conscious about my voice and largely Southern dialect. Until it was pointed out to me by my closest poetic friend Silvia that, although I had been mistaken, I had still written a beautifully-worded tanka poem for this day of the challenge. Something beautiful had sprung from this Parnassian imperfection. And without realizing it at the time, my 30-out-of-31 syllable tanka poem resembled a pearl-a sacred verbal geometry created by irritation and formed by grit. And it put everything into perspective, and showed me what to write this blog post about today.

In the constant tug-of-war we find ourselves in between striving for perfection and doing our best, we can lose sight of what our true intentions are. Renée, my closest friend and co-creator has clashed many times with me over the notion of “done is better than good”. I fought tooth and nail against that notion for so long. I had it in my head that, if something was worth doing, it was worth doing to perfection. Until I realized that perfect is just a pipe dream, something that is pumped into our heads from an early age. Perfect may be achievable in certain fields or passions or lines of work, but the width and breadth of it is that perfect is something we can only chase after. Doing your best is more than enough in most situations! And most times, doing your best will lead you to the most beautiful of situations, scenarios and places. Being yourself unapologetically will be worth more to you than any amount of silver or gold.

Post that selfie of you in a baggy t-shirt and sweatpants! Sing that song or read that poem in your beautiful voice and dialect! Embrace your eyes, nose, smile, belly, stretch marks, beauty marks, anything that makes you uniquely you! Your imperfections do not define you, nor do they make you any less of a person. They each make you your own beautiful and evergreen kind of perfect ❤

I hope this blog finds you well, and in the comments, talk a bit about how you embrace perfect imperfection!

As always, take care, much love and may God richly bless!

-Jon

LOOK TO THE ENDGAME

I do not cower to opposing views. I am not afraid of challenging my thoughts on different matters. What concerns me is the possibility of becoming close-minded and living in an echo chamber surrounded only by people who agree with me. It would be a stagnant and ignorant existence. Not conducive to personal growth or learning. It is crucial to surround myself with different people and ideas, even if it’s uncomfortable. Engaging people with opposing views can broaden my perspective and deepen my understanding.

You’re under no obligation to like everyone, forgive anyone, or tolerate hatred. Listening to opposing views is evidence of my desire for actual change on the topic. Finding common ground is essential for real, long-term change. As human beings, we all have thoughts and ideas shaped by our experiences and history. By listening, we can learn what’s in a person’s heart and get to why a person holds a particular view. Even if we cannot agree with their views, we can try to understand and see how they arrived at this opinion. Only then can we find a way to meet them where they are and attempt to make them understand our perspective. Or perhaps, we will discover that we are now unsure about our views and that it’s us who need to grow and change.

Don’t be afraid to challenge your views. The real weakness lies in being unwilling to listen. Every generation grows old and the young will challenge their views in the name of progress. Don’t get left behind because of pride. When you have a conversation with someone who has opposing views, listen, be patient, and be kind. No one has ever been insulted into an agreement. We can use what we learned to be the root of their views and take steps to change their perspective or, at the very least, find common ground to move forward on.

It is important to educate ourselves to understand why people believe what they do. The ultimate goal is to come together and solve problems. We often find that our end goal has some semblance of common ground if we listen. We can either dismiss hateful views and tell them to shove them up their ass, or we can make an effort to understand the reasons behind them and stop it at the cause.

I am not saying, we should tolerate hatred. I’m suggesting the solution isn’t to hate back. Rather, to put an end to it, we need to comprehend it. Once we grasp the reasons behind it, we can make a plan to educate others and work towards a solution. Resolving significant issues takes time, support, and education. Real change comes in the seeds we sow for the next generation. The truth is we may be banging our heads against a wall, with some people. But our efforts can impact future generations, and maybe they’ll embrace love over hate.

Love Not Hate

When it comes to dealing with hatred, our focus is often on the victim. We tell them to toughen up, ignore the negativity, and build self-esteem. This puts the responsibility on the victims to adapt and fit in better. Why not redirect our energy toward understanding what creates the hate? With this knowledge, we could create change at the roots & prevent it from happening. It seems more compassionate to support the victims and put those who hate, to work on becoming better people.

This is my chosen approach and I apply this to any issue where there are strong opposing views. I focus on the problem, get to the root, and hopefully find a solution. All while supporting the victims and growing, changing, and educating myself as well. Every one of us can play a part in making the world a better place if we would only listen. Look to the end game.

DON’T INVITE THE BEARS

Handling toxic situations can be challenging, and if we don’t approach them differently, we are setting ourselves up for failure. We will be doomed to live like salmon swimming upstream, expending energy and effort, only to make a few inches of progress. The difference is, the salmon don’t invite the bears to disrupt their momentum, to push them back to the starting line, or to pick them and their friends off one by one and eat them for lunch. Every time we allow a toxic person to disrupt our lives and force us to start again, it’s like inviting those bears to lunch.

Don’t invite the bears!

While toxic people are responsible for their actions, we are also responsible for what we allow in our lives. Although it’s understandable to accept apologies, if we continue to allow toxic people to stay and wait for them to change, it will poison the whole stream and cause innocent people to suffer. We bear some responsibility for the harm it brings to our journey. While the intentions are good, and some people love deeply and want everyone to be happy and thriving, continually living with toxicity while hoping things will change will never bring peace.

Everyone handles personal boundaries differently. Some have no boundaries and take on the burden again and again, some allow those lines to blur depending on the person crossing them, and some fiercely enforce their boundaries and protect their peace. There are even people who invite the bear to lunch, and we’ve all had toxic people slip through our radar. In these moments, it’s often not the toxic person paying the price and being given a chance to grow and learn, it’s innocent people, good people, suffering again and again. We have to see these moments as opportunities to learn and strengthen our boundaries.

Not everyone who is toxic is evil or cold-hearted; many believe they are coming from a place of love. Often, it’s a learned behavior or a response to trauma. We’ve all exhibited toxic behavior at some point in our lives, but the difference is, we learned from our failures and grew from the experience. We must be willing to force the hand of those who are harming themselves and others, even if it means letting them go to create space for growth. Sometimes it’s necessary to break the toxic cycle and prevent them from stealing joy and energy from those around them. As a friend, I won’t blindly support everything you say you want on this journey. I’ll always meet you where you’re at, but I expect the same in return. It’s essential to expect what someone is capable of and not accept anything less. We must love someone enough to challenge them and push them to grow, even if it’s uncomfortable in the moment.

If you want a friend who won’t be honest when you’re hurting yourself, me, or others, I’m not her. But if you want a friend who will fiercely support all of your efforts to become the person you want to be, sign me up.

MYTHS, SAYINGS AND IDEAS

As we go along in the span of our lives, there are many things we are told and many things we have seared into our minds, whether it be from someone looking to try and help us, or someone just looking to pass along a little advice. Many times, these things serve us in good stead. But some of these advices turn out to be nothing more than temporary band-aids for the troubles we face at best, and bogus myths don’t amount to a hill of beans in our lives at worst. Today, we will take a look at some of those things we are told that may work short-term, but are not compatible with us in the long journey of our growth, change, healing and forward movement.

On the idea of “Fake it ’til you make it”

This is what we will touch on first. Six little words have never had such a tempting lilt to so many. It’s easy to take up this credo to a situation we are facing in our lives that is difficult, or might take a lot of time. But it’s a dangerous trap to fall into, if we’re not careful. Those six words have ruined more good lives than alcohol or hard drugs ever could. Sometimes, we say this to ourselves as a sort of safety blanket in the midst of a hard situation, or we could even go as far as use it as a reason not to do something or face a problem that is brewing in our lives. We can get fat and lazy off of those six words, if we don’t watch our step. We can even let those six words wrap their vines around our dreams and visions and goals and choke them off completely, until they wither away and die.

And I know what some people might say: “But isn’t manifestation tantamount to faking it?” I can speak for no one else but myself, but in my way of seeing it, manifestation is equal parts heart, mind and soul. There is nothing wrong with wishing for things, but there is something wrong with not doing the work to get those things, or reach those goals, or live out those dreams. Your dreams, wants & desires will not be realized without a bit of elbow grease.

The best course of action is not to fake it, but rather to roll up our sleeves and face whatever we need to face in our lives head-on. Whether it be breaking off a potentially toxic friendship or relationship, or quitting a job and opening the door for a new career, or moving to a new town or city entirely, or picking a college or university to further ourselves, whatever the scenario may be. Instead of telling ourselves “fake it ’til you make it,” we can tell ourselves, “learn it ’til you earn it,” or, “practice ’til it’s powerful.” You might be able to talk or bullshit your way through a situation temporarily, but fixes for those situations do not come until the work is done, no matter how difficult it may be, and no matter how long it may take.

You cannot fake the work that needs to be done, or the desire to rise above your current situation. You have to want it bad enough. And faking it is NOT the way to go. The “fake it ’til you make it” mindset may work for a short time on things in the near-term, but becoming entrenched in it will only cause mental harm, and will only fuel imposter syndrome inside you.

On fear & hesitation

A quote on hesitation by the great motivational author, writer & coach David J. Schwartz goes as follows:

“Hesitation only enlarges & magnifies the fear. Take action promptly. Be decisive.”

It’s human nature to have fear or reservations about things that transpire in our lives, but we must not let it dictate our every move down to the letter. If we are not careful, we will let fear and hesitation and reservation steal some of the best times of our lives away from us, to say nothing of the opportunities that it may cost us. Humans are afraid of change. We are creatures of habit, and also of repetition. Once we sink our teeth into an idea or belief or routine or whatnot, it will take forever and a free t-shirt and matching cup of coffee to get us to turn loose of it. Being the big fish in a small pond has its perks, but it simply is not sustainable in the long run. There is more to life than what we see in our every day lives, and the myopia that ensues from this mindset will be a major detriment to us if we continue to linger in it.

Apart from this, we must learn also to take calculated chances and risks in our lives more often. Many times, we find ourselves chest-deep in a wanting or yearning pang over someone or something we desire, but we get cold feet and back out of it before we can act on it. It’s important to take those risks and chances when they come, while also being keenly aware that, if we don’t put at least some preparation into it, it runs the risk of backfiring, and we will touch on this a bit more in the next segment of this blog. But if we are patient, we will soon have all that we have ever wanted!

Hesitation and fear are powerful animals, but we are more powerful fighters against these! We get cozy in the normalcy and sameness of the situations we experience every day, but to grow and change into our better and best selves, we must the page and write some new chapters. History has never favored those who have sat still in life; the ones who got up and rocked the boat and raised their voice and led armies and battalions and marches are the ones who have statues raised and stories written about them!

The war against complacency and sameness and small thinking is not won in a day; it can be a lifelong process for some of us. The battlefield of our minds can be a very bloody and treacherous place at times. We must always be alert for whatever our minds pitch at us when we propose changes, ranging from spears to missiles. But with hard work and a willingness & burning desire to want to be better, we can come out victorious, and reap the rewards of the changes, no matter how spooky they may seem to us!

On being prepared

Many times in life, we see an opportunity arise and we say to ourselves, “God, if only I were more prepared, I’d do it!” Well, what’s stopping you from making the preparations for when it comes along again, if it does so? As mentioned above, taking bold risks and chances can pay huge dividends, but only if we first season them with calculated preparedness. Flying by the seat of your pants may work in some short-term situations, but we must have a proper course of action and path forward if we are to someday get what we want and deserve in our lives.

Think of it as trying to find your way out of the forest: Sure, you can chop and hack your way through the limbs, branches, weeds and bushes and come out in a clearing somewhere, but would you rather wing it and hope it works, or would you rather have a map showing you the easiest and best way out of the forest?

I know this can be a touchy subject, as many have grown up having known only how to wing it, or only how to fight for what they have, but there is another way to get what you rightly deserve in this life. You did the best you could until you knew better. Now that you know better, it’s time to do better! No longer do you have to fight for what you want; you wield all the tools and resources necessary to get anything you want, even if you don’t yet realize this fact. You have fought long enough and hard enough; it’s time you had a smoother and easier ride into tomorrow, and toward what you want in this life!

I believe too that it is better to be over-prepared for a situation than to be under-prepared and left with egg on your face when/if the situation does arise. I know that some situations will blindside us, but if we look back on all that we have accrued in terms of wisdom and preparation, we will see the path through the situation open for us, more times than not. All that we have been through has prepared us for those times when the bottom may drop out. It could be one hour in the span of a life, it could be a great many months or even years. But when those situations find us, look back on how you managed and overcame. You have survived 100% of your worst days so far; read over the notes you took in your mind, and use them as much as you see fit. And never EVER stop observing and taking notes; this is how we continue to grow, and how we continually rise above those dark situations!

We may be blessed in our lives and have preparations for things that ultimately never come to be, but we will at least have that knowledge, and we can take some of it and apply it to other situations that may rise within our lives! Always, always stay prepared ❤

I hope this blog post finds you well, and in the comments, tell me a little bit about your feelings on these subjects, and what you do to keep growing, evolving and being the best version of yourself that you can be!

As always, take care, much love and may God richly bless,

-Jon

DEAR MOM

February 18. The day will never not send a chill up my spine, when I think of what happened on this day, 19 years ago. I have told the story of what happened that day in blogs prior, so I will spare it from being repeated, but there are some things on days like this that qualify for repetition. And so, I will repeat a letter that I included in one of those past blogs. It is a motherly variation of a letter that Paul Harvey recited on a broadcast nearly 30 years ago, a letter than was originally shared by a fellow named Dr. Jack Schreiber of Canfield, Ohio, on the occasion of Father’s Day. A few years back, I decided to take what Dr. Schreiber had written, and translate it to someone who has lost their mother. Although I do not have children of my own, and though my mother has not been gone as long as what is in this letter, it nevertheless resonates soundly with me, and, if you struggle with the loss of your mother, may you find some comfort in this letter as well. From here onward, I will be quoting.

Dear Mom,

I am writing this to you, even though you have been dead for 30 years. Whether you can read these lines, perhaps you can read my thoughts. But there is still some things I need to say, even if it’s too late.

Now that my own hair is gray, I remember how yours got that way. I was such an ass, mom……..Foolishly believing in my own teenage wisdom, when I know now I would have benefitted most from the calm, right, wholesome wisdom of yours.

Most of all, now that I have children of my own, I want to confess my greatest sin against you: The feeling I had, for which you did not understand. Though when I look back now, I know that you did understand. You understood me better than I did my own self……How patient you were, and how futile your efforts to get close to me, to win my confidence, to be my guardian angel were. I wouldn’t let you. I simply wouldn’t let you. What was it that held me aloof? I’m not sure, but despite my best efforts, my own children had to build the same wall between them and I. And there’s no way I can climb over it or go through it, and what a shame, what a waste.

I wish you were here now, across this table from me. There’d be no wall now. We’d both understand, now. And God, mom, how I do love you, and how I dearly wish I could be your companion again. Well…….maybe that day isn’t far off. I’m guessing you’ll be there, waiting to take me by the hand and lead me up the further slope. I’ll put in the first thousand years or so, making you realize that not one pang of yearning, not one morsel of thought, not one second of worry you spent on me was wasted, it all came back, and it all paid off eventually.

I know that the richest, most precious thing on earth and one of the least understood things is that mighty love and tenderness and that everlasting craving to help that a mother feel toward her little ones. But none of her children can realize this until the roles are reversed. Even now, mom, I’m tired, weak and longing, and would hasten to join up there in the Great Beyond, except for my children…….They’re all fine, sweet, caring and upstanding young ones, all very capable, self-sufficient, highly talented and loving toward all. But, mom, I reckon I’ll stand by a little longer, to help them along, and to watch them shoot for the moon and land among the stars, and to be there for them, if they ever need me. You understand.

Signed,

Your loving child

THRIVE TO SURVIVE #1: AN INTERVIEW WITH RENEE YAWORSKY

Hello all! Welcome to the first installment of Thrive To Survive! This is a very special blog/interview series where I, Jon Phipps, will sit down with some of my closest contemporaries to discuss with them how they overcame various physical & mental hurdles in their journey, or overcame obstacles outside of that realm! I couldn’t have picked a better guest of honor for this maiden voyage of TTS…….I had the thrill of sitting down and chatting with my best friend and closest co-creator, the inimitable Renee Yaworsky!

Renee is the embodiment of the words strength, kindness, fearlessness, love, compassion, friendship, beauty, care and inspiration. A native of New York and a long-time resident of the Peach State of Georgia, Renee has been involved with many different things over the span of her life, including law and prison work, modeling, acting, being a singer/songwriter, poet and novelist-all while valiantly and bravely battling health issues, namely lupus and seizures. Says Renee of first finding out about and subsequently tackling these issues in her life:

“I was 18, I was on Grady Avenue in Athens, Georgia and had a typical Athens night. We were swimming, and doing band rehearsal and was up most of the night and really having a great time, and when we fell asleep in the morning after being up all night, I did not wake up. And so luckily, one of my friends who was there tried to wake me up and was confused that he couldn’t, so he called my other friend and got on the phone with 911, and my other friend, my girl-friend was there with me and they were able to wake me up. The paramedics told me my heart had stopped and that they were gonna take me to the hospital. I said, I don’t want to go to the hospital and they said, well we’re taking you anyways. So they took me to St. Mary’s and determined that was the beginning of the understanding of the fact that I was going to have something going on with me, and I didn’t realize what it was. In fact, the initial doctors were reticent to call it a seizure.…….And then I came back up to New York and I was lucky, I was able to be seen by a cardiologist, a very, very good one, and he checked out my heart. And then I started seeing neurologists back in Georgia and they just, you know, called it seizures. At some point, they started saying seizures because they gave me EGS tests, and I was showing seizure activity. But actually after that moment, I didn’t have that many Grand Mal seizures. The Grand Mal seizures is like that when you’re losing consciousness. I’ve only had about two of those, maybe three In my entire life. Typically, my seizures that I had for the next six years, which I had almost every minute of every day were Complex Partial, I think they’re called. It’s been a long time, so some of my terminology might be wrong, but I was medicated and the medicine I don’t remember ever helping that much. I essentially had seizure activity 24 hours a day for about 6.5 years and that limited my ability. Even though I wasn’t losing consciousness, it affected my sense of self, the way I saw the world, what I was able to do, what I was not able to do. I sometimes would have to stay home because the lights outside could make it worse, fluorescent lights made it worse, sunlight could make it worse, But I didn’t get a lupus diagnosis until about 12 years later, and that’s disappointing because I had all of the symptoms. But for whatever reason, even though I was under a neurologist’s care, they never connected those dots.”

Despite the darkness and uncertainty, Renee nevertheless found a cure for the seizures she was suffering, and it was nothing short of a miracle. Renee portrays the scene when she found this miracle cure:

“It must have been 2005. I had trouble traveling, although I tried to travel as much as I could. I often was canceling trips because if the seizure activity was particularly bad, I wouldn’t even be able to leave the house. In 2005, my mother wanted me to come up for part of the summer, and I was able to make it up there. And when we got there, she mentioned that there was a shrine to St. René Goupil, which was not close, but in Upstate New York. It would have been a day trip. And I said, ‘that’s so weird because my name is Renee!’ I said, ‘how did I not know? I’m a Catholic! How did I not know that? I had a saint named after me that has a shrine right near where I grew up!’ She said, “I don’t know.” And we went there, and we toured the grounds, and it’s a lovely, lovely place. It’s out where the Mohawks were. There’s a lot of Native American history there, and a lot of museums, and it’s beautiful countryside.

I was having my general seizure activities, and the sun used to really adversely affect me. That’s a symptom of lupus, and it also can make certain seizures worse if you have that photosensitivity. And it was a hot day. And she went back to the parking lot and I said, “well, I’m gonna linger down near the river a little longer.” I had no plans, no hopes, nothing. I was just by myself and I for some reason bent down and put my hand in the water of the stream, a tributary from the river, which is where the body of St. René had been martyred. And it was once, it was maybe 3 seconds. I just put my hand in the water and I blessed my forehead and I said, “St. René, take away my seizures.” And I had never prayed for my seizures to leave me. I had never given them any conscious thought. I tried to ignore them. And instantly, my seizures were gone. The whole world looked different. The sun was different. And it was just…..gone. And I walked back up to the car, I didn’t mention it to my mother, but I knew I was totally cured and I never once had another seizure. I went off of medicine, I went to law school, my whole life totally changed.




As mentioned before, Renee has been involved with many different things, but one of her foremost passions earlier in her life was acting. Having taken acting classes at various points since the age of 2, she developed a brawny love of the stage, but a very serious incident made her steer away from acting. Renee recounts this event:

“I’ve been acting my whole life, but I always stayed away from screen because I felt it would be safer, and I love theater. I love the stomps on the stage, I love seeing the audience, I love memorizing the lines and I became a stage actress and that seemed safer to me. Fast forward to about 2007 or 2008, I was in with the acting troupe in Athens, Georgia, and they had a mass shooting there at a function that I was supposed to be at, that I overslept. That was when I made the decision to go to law school and to not continue my acting. So if you fast forward till now, you might understand when people who don’t know me when people who don’t know me think I’m looking for attention, or, “oh, you think you’re so beautiful, you want people to look at you,” they don’t understand how much of my life was spent trying to get people to stop looking at me and for various reasons, and when the mass murder happened, it was very, very intimate and very close, both in proximity to where I literally, physically was and then also emotionally where I was. I did not want anything to do with entertainment again. I only came back to entertainment at all in 2020 during quarantine, but sure that I was going to focus on writing and law, and I absolutely did not want to go back into modeling. I did not want to go back into any sort of public activism and certainly not anything entertainment, nothing with acting, nothing with music.”

Nonetheless, Renee powered forward and dove headlong back into the creative realms of acting, modeling, music and writing. As mentioned before, acting & especially modeling are just one part of Renee’s MO. Through her work in these fields, she inspires and encourages scores of others to find their inner & outer beauty and embrace it, not just for one time only, but throughout the rest of their lives. And Renee is truly a shining beacon of hope for those looking for inspiration, or for those just on a journey to love themselves and accept themselves for who they truly are, not for what society wants them to be. Renee herself talks about the long road it took to overcoming food addictions and to love the skin you’re in, no matter how long it may take:

“I never had an eating disorder, but when I had a fainting spell in my teen years, I was grossly underweight and I did spend many years of my childhood with doctors, you know, monitoring me for bulimia or anorexia. That’s not what was happening. I was eating everything in sight when I was free, but I was highly active and I had a bit of an insecurity about being so underweight. When I was hospitalized for the fainting spell, I weighed 94 lbs. It was quite shocking that that’s why I was hospitalized. There was concern about that, but it wasn’t deliberate. In fact, I would buy these powders and stuff and try to gain weight. It’s what I really wanted. But I was riding horses competitively, so I was active. I was also playing basketball, I was playing tennis, and then I was in a touring rock band while at the same time as starting college at age 16, and I was also running an N.G.O. I ran a nonprofit that I started. I was doing all of that and I was so young, and I just loved it. My mother was so concerned about me because she said, “you’re not eating, you’re not sleeping.” And I’m like, ‘yeah, but I’m so happy.'”

With the modeling & acting work, plus current music endeavors and past activism considered, Renee is no stranger to being in the spotlight. And while this has been a mostly pleasant experience for her, Renee, like any other who is consistently in the limelight, has had to deal with more than her share of catty comments, hurtful messages, situations gone awry, and in some cases, even stalkers and people spying on her. Renee describes what this is like, and what she has done to overcome it:

“It’s disappointing, certainly, because I do havefearful things that I wouldn’t have otherwise. I would say that I was exposed to it early, to the point where now I don’t know any other way. I started my my anti death penalty work when I was 14. And the band I was in became really popular when I was about 15, and so between prisoner issues, prisoners or people from the activist world who maybe didn’t agree with me between that, and then the fans for the band……..I was a drummer. I was the drummer, but I was the only girl. So although I was not getting the level of attention that the front man was getting, I was getting the boy attention because I was the girl. And this is certainly pre social media, but the internet existed. I think we had AOL chatrooms, it wasn’t like what it was now, and it never occurred to me that that could exist. The technology wasn’t popular. So when I was 14 starting this, this anti death penalty work, it never occurred to me that I would be able to be tracked down or my family would be able to be tracked down by prisoners or families of victims or families of prisoners or gangs, it never occurred to me because the internet didn’t exist like that. We were primarily still doing things over snail mail. I created an alias, I had a a pseudonym and I had an activist alias, and I felt like that would be enough. I had no idea what was coming in the years to come with that. Now anybody can find anything. The rock and roll business of it was a little different. I felt very safe because most of our fans of course were like teenage boys our age. I remember our school would have events, we had interviews coming out in the papers and they would put us outside and we would autograph everybody’s copy and things like that. Certainly, there was a lot of attention on the band, but again, because there wasn’t social media and all that. One of the funny things that would happen is many times the band and I would be out in normal places, the mall or a carnival and we would see fans wearing our t-shirts and they wouldn’t recognize us because they had never been to a show, They heard our cassette tape or something, they were fans of ours, but they didn’t know what we looked like. There were fans that came to my house, there were fans that came to my mother’s place of work. There were fans that called us at all hours of the day and night, but they tended to be well meaning and I didn’t fear them, but it did make me very cautious.”

To say life for Renee has been ridges and valleys would be an understatement. But through it all, she has never lost her smile, her passion, her drive, and her compassion and love and kindness toward others. She is someone we all aspire to have as a friend and a cheerleader in our lives. I speak for myself when I say that having the gift of Renee’s friendship has benefitted me and change my life in ways I’m sure I don’t yet know. Add to that the fact that we both have a common goal for ourselves in terms of paths forward and creative ideas, and it’s a friendship that is rivaled by few and duplicated by none. Renee is the definition of taking the high road. When asked about how she would like to be remembered when her times comes, she said:

“I would like to be remembered as somebody who truly showed that you can suffer in your life, and shine a light instead of bringing more darkness into this world, and to be known as a bridge builder and a peacemaker. I think peacemaking and bridge building are things that came naturally to me because I have a duality in my nature. I’m that textbook Gemini, I really do see things from different points of view. When somebody is arguing with me, I always see it from their point of view. I can see it from their point of view as they’re describing to me how unhappy they are with me, and I can jump aboard. I really see things from both points of view. And when you do that, you become a diplomat, you become a leader, a coordinator and organizer. And at the end of the day, you’re becoming a peacemaker. You’re sitting down with someone who might have done something horrible to another human being and you’re finding some common ground there with those people. And that to me is the most important thing, because if we don’t have peace, we don’t have freedom. And if we don’t have freedom, we can’t have happiness. More than 51% of my time as an adolescent teenager and young adult were spent listening to older people talk about their journeys, telling me things and I got to sift through what I believed in, what I didn’t believe. But I was listening. I was acquiring that knowledge. I don’t always have an opinion, and that’s the part of peacemaking, when you’re constantly jumping to conclusions without all the data, you’re constantly, stubbornly clinging to what you believe is fact. Even when different facts are presented to you, with that type of rigid personality, it’s very hard to progress, and it’s very hard to build peace because the more that you’re segregating people and telling them how different they are and how horrible one side is and how great the other side is, all you’re doing is limiting truth and you’re you’re not allowing the person you disagree with to ever progress in their own journey. So hopefully, I will be remembered as a peacemaker. You can’t make everyone happy all the time, but at least that’s my ambition, and I think that’s what I was doing even at nine years old with my animal rights. I was trying to build peace even back then. I think that’s been the theme of my life.”

I want to thank Renee for taking some time from her busy schedule to sit down with me and be interviewed, and I want to thank you, the reader for taking some time from your busy schedule to read this first installment of Thrive To Survive through to the end! without you, none of this is possible! Thank you all again, and until next time, take care, much love and may God richly bless!

-Jon

WE ARE THE DREAMERS

I remember the exact moment I realized I had matured into a responsible adult. It was the day something didn’t go the way I wanted it to and instead of saying, “why is this happening to me”, I thought, “what did I do to create this outcome”. Somehow, life became easier after this revelation!

Unfortunately, the biggest obstacle in my life I did not create and I can not fix. Scleroderma is the beast I can not outsmart or outrun. It’s there, it’ll always be there. Every once in a while, I just want to curl up in a ball and shut out the entire world. But then I get discouraged and angry that I’m wasting precious time. The older I get, the more I realize how every minute matters. I don’t want to curl up in a ball, close my eyes and wake up having missed years of my life.

The lesson I’ve learned from being chronically ill is that everything matters. My lust for normalcy is insatiable. I want to get up, shower, drink coffee, whine about going to work, drive to work while bitching about traffic, survive my day to come home, make dinner and whine about doing it all again tomorrow. But my reality leaves no time for normal things.

On top of the desire to find balance in a world made for the healthy, I also want to do everything, see everything, meet everyone, and I want to experience all of the goodness in the world. Again, my reality leaves little time for all of these things. I can not tell you how many people have told me to “just do it”, go on that trip, and do all the things my heart is set on, while I still can. But I’m here to tell you that not everyone has the financial means or the health to be that person on TikTok traveling the world crossing things off their bucket list. I’m not hating, I say do all the things if you have the means. It’s just not possible for a majority of the disabled community. Whether it be a physical or mental disability, we live day by day with constantly changing medical needs and paycheck to paycheck trying to pay for those needs. We barely have time to write a bucket list, never-mind live it!

The other side of this is the people who, with negative intentions, have told me to shrink my dreams, to accept I’ll never have a normal life and move on, to adjust my life plans, and to just give in to my new reality. I’ve even had people tell me to just stop fighting the inevitable. What the…This one is probably the most painful and infuriating. When someone says this, I hear, “You’re inconveniencing my life and I need you to just be a good little patient”.

If you get nothing else from this blog, please read this and burn it in your brain. When we dream it’s with some semblance that these things are possible. Hope gets us through our darkest days. It drives us to push & never give up. Possibilities, goals, small triumphs, and even the hard work it takes to see a dream come true, are all burned as fuel to carry on. We savor the thought that the pain may end, that tomorrow will be better, that a cure may be found, and that our dreams will come true. Please don’t take that from us.

Yes, having a permanent and incurable illness means you will have to learn to navigate all the changes and hindrances that come with the diagnosis. But it does not leave a person less intelligent, damaged, incapable, irrelevant, unable to make their own choices, less worthy of friendship or love, and they, sure as hell, are not weak. An illness doesn’t make someone less of a friend. It doesn’t make them less fun or leave them not needing fun & excitement in their life. It doesn’t make them a burden, and it is not a free pass to steal their passions, hopes, and dreams.

I will not climb into my bed and be a good little patient. Sorry if this inconveniences some people & makes “their” life more difficult. But we all have the choice to be in someone’s life or not and love should be unconditional. If you see me as a burden, find a better patient, it’s not me. Unless you have a degree and can put Dr. before your name, I am not your patient. Do not cast shade on my hope. It would be better if you just walked away. It would be your loss. Because I am a fierce & loyal friend and you will never find a more welcoming & loving group than my circle.

Lucky for me, I’m a stubborn bitch who loves learning, life & people. I will not cower, I will not succumb, I will not have my life stolen by Scleroderma. Even on a bad day, I will accomplish something. Sometimes it’s a huge thing & sometimes it’s small. But to me it’s everything. I’ll continue to visit loved ones, make people smile, create, talk, study, practice, help others, make new friends, dream, hope, love, laugh, and fight until I take my last breath. I will not let the lack of money, resources, or bad health keep me from dreaming about doing all the things I want to do in this world. Will I do it all? Probably not. Will I die trying? Absolutely! 

Here’s to the warriors and all who know your worth and willingly step out into the world and share your journey. Keep hoping, fighting, surviving, and thriving, for we are the dreamers & we will not let anyone take that from us.

A WELL-SPENT LIFE

Death is a part of life. There is no way we can avoid it, the best we can do is take the steps necessary to postpone it, in the right circumstances. And no matter how we may view it, it nevertheless hits us hard in at least some aspects, whether we care to admit it or not. But for a death to hit us hard means that the person who shed the mortal coil left their mark on us. They may have encouraged us or showed us love, been a bright shining light to us in the darkness, gave us advice on how to best move forward through a tough situation, or just was there for us through mountaintops and valley floors alike. It could be someone you never met in person, someone you saw every day, or even someone you only met once years ago. Their memory and legacy will live on through the lives they touched. And maybe, they will have encouraged you to live your fullest and best life, to take the bad and the good with a smile on your face, and showed you a pathway forward in your own journey.




Earthly angels come in all shapes and sizes, backgrounds and walks of life. Some have had to scale mountains and swim oceans to get to us. Some just seemed to appear right out of the ether. Some came to us when we cried out for help. Some knew we needed a listening ear and a guiding hand long before we ourselves did. Some of them taught us that, even in the most ragged, tattered parts of our lives, there is still a silver lining, there are still reasons to smile. Some of them showed us that hurt is not the end-all-be-all, that there IS a light at the end of the tunnel, and some of them blessed us with how they did it, how they overcame and thrived, and how we could take their wisdom and apply it to our own lives. Some of them we knew only as folk heroes. Some of them we had the fortune of rubbing elbows with, or sharing stages with, or trading conversation with over a cup of coffee and a sandwich, or a cold pint of beer.

Most of all, these people showed us how to live a well-spent life. Not every part of it will be red and rosy. There will be storms with hail and wind and worse, trying to destroy the flower garden of peace inside of us all. There will be times where the road is rough. There will be times where the best maps cannot guide us. But with the blessing of those people’s presence in our lives, we can understand how to carry on and lace up our bootstraps and pull ourselves out of the muck and the mire, and continue onward toward daylight again. They pushed us to write that book, or record that album, or paint that picture, or express that love or affection. They showed us how to be ourselves, loudly, proudly, unashamedly and wholly. And if they are still in our midst, they will continue to spread their seeds wherever they go in this world. And if they have left this life for the next one, we can still admire what they’ve grown, and take comfort in the shade, color or beauty of what they planted, both in their own lives, and in the lives in which we live.

I hope this blog finds you well, and in the comments, please highlight someone who showed you these tips and tricks.

Wholeheartedly,

-Jon



This blog is dedicated to the life and memory of William Orten Carlton, aka Ort.

INTRODUCTION

Hello! Welcome to Thrive To Survive! This is a special side-project that will tie into Just Another Badass Warrior, a blog & interview series taking a look at how folks have overcome the various obstacles presented in their lives, whether they be physical or mental. Your host, Jon Phipps, will take an in-depth look into the stories of those he interviews, while also finding out the pathways to the light at the end of the tunnel for his guests, while seeking the same for himself. May you derive hope, inspiration and clarity from this blog!

RIDGES & VALLEYS

As 2022 draws to a close, I catch myself reflecting back on the year that was in this wild ride we call life. And it much resembles my beloved Appalachian Mountains: Lots of ridges, but a whole lot of valleys as well. Creatively, I summited several ridges, and was able to drink in the views from them. I was able to do things this year that most could only dream of doing. I got to interview several people I look up to across many aspects, I got to organize virtual festivals and fundraisers to help out several dear friends, I got to be witness to and have directing abilities over many wonderful, inspirational, eye-opening and moving shows this year. I scored one-third of my all-time front page selections on the poetry site I frequent this year, and furthermore submitted one of my poems for publication in an actual hard-copy book.

Outside of the creative realm, I was able to spend more time with beloved friends this year, including helping one move to this wonderful Tar Heel State. I also got to visit places I had not been to since I was a child, namely Nashville and surrounding environs. I got to attend multiple racing events this year at an array of historic tracks here in North Carolina, including Charlotte Motor Speedway, Hickory Speedway and the famed North Wilkesboro Speedway. I was able to find deeper love, meaning, kindness and care in the friendships I have already cultivated, and was able also to make several new friendships this year, both in my personal life and in my life online. I was also able to find several online communities that catered to the things I love, like auto racing, radio & television history, true crime and more! And not to mention, I finally found a new feline friend in Vidalia!



But also in the span of this 365-page book we called 2022, I fell to the valley floor several times. I let emotions and feelings get in my way on multiple occasions, which led to many worry-filled & sleepless nights this year, as my mind played out wildly unrealistic scenarios and events. I let the “red mist” overcome me on several occasions, and it resulted in me becoming a hassle to work with, and in some cases to be friends with. I found myself unable to take my foot off the throttle and give myself a break & a chance to get my head in a proper place, which resulted in me very nearly ending my life back in August. I lashed out at friends and co-creators when they didn’t deserve it, and when the situation I was mired in was nothing more than my mind feeding me lies and tall tales about those people. Above all, I put my own self on the back burner for the sake of those around me in my life. I thought I could be the knight in shining armor, rushing in at the last instant to protect them from themselves, when all I was doing was tripping over my feet and faceplanting into the mud.

But after every valley floor comes another ridge to climb. I started therapy in November of this year, and I am very much looking forward to scaling this ridge in front of me, and to take in the sweet, unobstructed view from high atop it. It’s going to be a hell of a mountain to climb, but now being equipped with the right tools for such a task, I feel I can fly to the top of it, or better still, take that mountain and move it outright! With the help of great friends, a wonderful therapist, and readers like you, I can do no wrong in this ever-evolving journey ahead! Not every part of this leg of the journey will be easy, but I feel a lot more confident about than I did a year ago, a month ago, even just one minute ago! And I hope you all will stick with me on this journey ❤

I hope this blog finds you well, and in the comments, mention some of the ridges and valley you have experienced in the year 2022!

As always, take care, much love, and may God richly bless,

-Jon

THEN IT HIT OUR HOUSE

I challenged myself during the Mental Health Campaign to being more honest about my health journey. I’m holding myself to this commitment.

I love the holidays. It’s the perfect time to share smiles and lift others when life is weighing heavy on them. A chance to end the year with love & hope. I’m that person who decorates right after Thanksgiving. I send out hundreds of Christmas cards. I make dozens of random personal gifts for those who make my life better, in ways they may not even comprehend. I hide gifts around town & make baskets for the fire department, town hall, post office & animal shelter, to lift our communities spirit & say thank you. I pay attention all year & try to make or purchase gifts I know people want or need. But this year is kicking my ass & although I managed to get a few things done, it’s taking all I have. Every day I get slower & struggle more to get simple things completed. Christmas will look much different this year.

It’s the little victories that make me smile.

I’ve been going through it with my Scleroderma for the last few months. It’s raging again & it’s been difficult emotionally & physically. I’m undergoing treatments that come with side effects that amplify all of the negatives that come with a chronic illness. My jaw is destabilizing again and my teeth will take a lot of work to save. I’m losing my hair from the treatments & will soon have to just shave it off. The worst is knowing my brain fog has made me forgetful & I know I’ve let people down. It’s been damn hard. It wouldn’t be half as bad if my husband wasn’t battling health issues this year, as well. His doctors don’t want him working. They tell us he’s risking major damage to his body, and that one wrong move could be catastrophic. So we are sitting in a holding pattern financially. We sit at the mercy of his doctors deciding what surgery is next. He’s doing what he can to work, despite the warnings. Bills don’t care if you’re unhealthy.

Not everyone can afford to be sick.
That is just reality in America.

It’s one thing to be chronically ill & another thing to add in financial struggles. It’s astronomical the cost of survival. I’ve said it again & again, it does not matter how much you make, save or plan, we are all one illness away from financial disaster. On top of it all, this is one of the worst years for everyone financially. Heating, electricity, food, fuel, everything is more expensive right now & increasing regularly. Despite the negatives, we are fighting to have a great holiday & to share it with all we care about. Then it hit our house, Covid.

David tested positive first and was put on Covid meds the same day. We have to be aware and cautious of any lung or breathing issues with him. For those who don’t know he had lung cancer & a bacterial infection that resulted in the partial removal of one of his lungs. Both of his lungs have damage and it would be hard for his body to fight Covid if it settles in his lungs. I believe the meds are helping control his symptoms. He seems to be in a holding pattern, with no changes for the worse or better. He’s still battling but he’s remaining stable.

I tested positive late Friday night. Leave it to me to find out on the weekend and while there’s a major storm hitting us. I managed to get a hold of my doctor’s on-call service Saturday morning. It took hours and numerous calls back and forth between me, my PCP office, my doctor’s offices in Boston & the pharmacist. Finally, they had a plan. They called in some medications, changed the dosage on a few of my medications & held some of my regular medications. It was a whole process but I started the Covid meds Saturday night. I’m miserable. I’m trying to get up and move around as much as possible. It’s been a cycle of getting up and doing one or two small tasks & then I have to lie down again. My pain is maxed out & making it difficult to do the simplest things. I have slept more in the last few days than I have in decades. My normal nausea is increased, I’m experiencing excruciating muscle cramps & I feel like I have the worst cold, I’ve ever experienced. I’m hoping today improves with the medication. The doctors warned me that the side effects may be difficult and I may need to stop the medication.

I don’t know if Covid is ready.

Still, I carry on. Friday I did get some random gifts sent out to thank people who make me smile & I know don’t always get the appreciation they deserve. It took me all day yesterday, but I did get our tiny 4’ tree up & decorated. Today I will try and work on some gifts. It’s not looking like we will be having Christmas with our families on Christmas Eve as we planned. We realize we can not financially buy gifts right now, but we will make some amazing personalized gifts & bake some family favorites as soon as we test negative. We will not skip Christmas, just delay it if necessary to keep us all safe and strong.

I’m stubborn and refuse to change how I feel about the holidays and how I reflect on the end of another year. As usual, I will use my energy to make others smile. That will fuel my healing until I can find my smile again. So although we won’t be able to do all the things we normally do this time of year, we will still create a magical Christmas.

Today I may feel awful physically & under stress trying to figure out how we will pay for basic expenses & my treatments. But I continue to look forward to a healthier & prosperous New Year for everyone. I pray that Covid will not continue to be such a destructive force in the world. I will work hard to improve myself so I can bless others. I will continue to send smile mail & volunteer when I can. I will give freely my time & energy to those I care about & those who make me smile. Although I may be down hard right now, I choose to believe this too shall pass.

Happy holidays to all, for whatever holidays you celebrate. If you choose not to celebrate then happy end of the year! Be kind to yourself & others. In the worst of times there is always hope, love hard, & pray harder. I am so grateful for you & I love you ❤️

JUST DON’T

It’s that moment in a social situation when things get awkward. When the person you’re talking to starts squirming & fumbling for words. They are struggling to keep the conversation going. That moment when people are at a loss for words. I realize my illness, my pain, my wheelchair & dozens of other chronic illness-related issues, I live with make “them” uncomfortable. If I’m being honest, saying the wrong thing happens a lot.

These are innocent, benign comments from people with no malicious intent. Many times they think it’s funny and yet they’re completely serious. Sometimes I can shrug it off or laugh it off. Other times, my bitch switch is flipped and it’s on. I’m ready to completely obliterate someone in anger and frustration. Faster than you would think, anger turns to frustration, and frustration turns to pain. Before you know it, I’m launching headfirst into the abyss that leads me down the dark road to depression.

“You’re so lucky you don’t have to work.”

“I wish I could stay home all day, like you.”

When you want to say it, just don’t.

I hear this often. Each time my mind’s eye suddenly sees my day in what it perceives, they think I do all day. There I am on a lavish sofa, the sun gleaming through the windows, making me appear like a starlet under the glow of the spotlight. I have snacks to the left of me, a controller to my right, and I’m snug in the middle with… Netflix. My dogs are at the table playing poker with their friends. My house is a magical place where dirt evaporates and items walk themselves back to where they belong. Once in a while, I glance up from the TV long enough to see my dishes take a bath and dry themselves with my self-cleaning dishcloths. All I do is think about dinner and bam! There it is, ready to serve itself when the time is right. The washing machine collects dirty laundry and bedding, proceeds to wash, dry, put it away, and make my bed. I’m like 5 episodes into my binge-watching by now. This fantasy vision is short-lived, and my brain brings me back to reality.

What they don’t think about is the fact that you can’t work because you can’t function. Your day is consumed with effort through pain, fatigue, and brain fog. There are meds to take, scripts to fill, doctor’s appointments, organizing all of this, and dozens of other equally not-fun medically related things that need to be done. They have not had to consider the implications of being unable to work for an extended period. How do you pay for your bills and healthcare, the isolation, your lack of relevancy in the world, and a multitude of other equally reasonable questions that rattle in your brain, echoing throughout your life?

I don’t work in a regular, scheduled, leave-my-home capacity because I’m unable to. I have physical limitations. I would give anything to be healthy enough to go back to work. I’m not on vacation.

The truth is, when you’re chronically ill, you spend most days just trying to stay alive. Prioritizing what has to get done & figuring out which filth you can live with for today. Because it’s not all getting cleaned. By the time most people arrive at work, your body has already begun to retaliate, to get you to retreat to your bed.

A lesson I’ve learned the hard way is that when someone living with a debilitating chronic illness shares their time with me, I must be very important to them. I know what sacrifices were made for them to give me space in their lives. Don’t depreciate their value. Appreciate every minute they give to you.

TO MY BEST FRIEND

To my best friend,

I am sincerely grateful for the gifts of your friendship, care, lovingkindness, patience, grace and encouragement. You and I have rode out many a dark time together in our time of friendship, but have had many beautiful days as well, and not a second of this would I trade. You love me when I can’t love myself. You offer me a torch when I am going through the dark wilderness of my mind, and a life raft when I am drowning in the oceans of emotions. You and your unique kind of full-service friendship is so welcome in my life, and to have had it now for two full years is a blessing wrapped in a miracle.

I know I’ve not been the easiest to deal with. I have fucked up many times. I have given you ten thousand reasons to leave me dry. We’ve clashed on many things. But you always take the high road, and are always willing to work things out and listen and hammer out a solution for those issues. I am so grateful you have a long fuse with me, and your patience is worth its weight in gold. I know I worry a lot about you, and I know you wish I wouldn’t worry so much, but you are my dearest friend, my closest confidant and one of the most valuable assets in my life. To win the friendship of someone like you is to catch lightning in a bottle, and I will forever cherish this.

I am so thankful to have a creative partner like you in my life! We’ve done so much together, and have both climbed and moved mountains together! I cannot wait to see what the future holds for us creatively, whether it be in music, television, poetry or book writing, or even something beyond those! I am so proud of you and us and the work that we have done together and apart, but the best is yet to come! Memory lane is in the headlights, and I cannot wait to experience it all with you! Thank you for taking a chance on me over a year and a half ago, and trusting and encouraging me in these endeavors. I hope I’ve been a good leader, and have set a good example for all ❤

Without you, I wouldn’t have so many things. I wouldn’t have been able to create an online network with a wide-ranging variety of programs. I wouldn’t have been able to find the courage to send a writing of mine off for publication. I wouldn’t have been able to find my voice as a musician and songwriter. I wouldn’t have took the time to re-sharpen my skills as a poet. I wouldn’t know all the wonderful people I have come to know over the last two years. I am blessed beyond any possible explanation. You came into my life and completely changed it for the better, and more than that, you have helped me change and grow, and have helped me heal and move past the scars that I thought would define me. You are a saving grace.

I am so thankful you hold my hand when times get rough. I’ve been through so many changes over the past weeks and months, and it’s been hell. But you have stayed by my side through it all. Even though you don’t experience the things I go through, I so love, admire, respect and cherish your willingness to learn, to offer help, and just to be my shoulder to cry on. And I pray I’ve been this for you, when you face challenges and hurdles in your own life. I am so grateful we have experienced both the ridges and the valleys together.

My dearest friend, you are red-on-a-rose beautiful, sharp as a tack, strong as steel and sweet as love. I’ve seen you overcome so many things, and don’t think for one minute that I’ve not been watching! You are leading me and showing me how to overcome the hurdles that appear in my own life, and I would be forever lost if not for your guidance. You wield great power inside you, and to watch you harness it and use it for the greater good is so wonderful, so beautiful, so inspiring and so amazing. You are changing, touching and molding so many lives right now, and your impact will be measured in terms of decades and centuries. I will forever be so proud and so blessed to know you, and to have you as my best and closest friend ❤

To Renee, you are my sunshine, and you are an angel. I am so thankful for our friendship, and I cannot wait to see what the future holds for the both of us, as friends and creative partners! Thank you for taking me under your wing and teaching me so much. You are the best, and I love you ❤

I hope this blog finds you well, and in the comments, please talk about your best friend on this side of life!

As always, take care, much love, and may God richly bless,

-Jon

TAKE INVENTORY

I may be an enigma. If I am, I’m ok with being odd-woman out.

I do not play with drama. I will not listen to gossip. When it comes to love I’m all in. My integrity means more to me than anything. My reputation is so far down on the list of things that matter. Giving first is a compulsion. I trust until given a reason not to. I’m not afraid of confrontation. As a friend, I’m all in. I choose kindness, honesty, love, & peace.

I have a few sayings that if you know me, you’ve heard.

~“Don’t waste your minutes.” Life is short we are only given so many minutes, don’t waste them.

~“Make good choices.” We all have choices. Don’t let anyone make them for you. Remember all choices come with consequences so put thought into them. Once you’ve made a choice, own it. If it was the wrong choice, learn from it, make amends, & move on.

~“Protect your peace.” Set strong boundaries. Do not bend them for anyone. Personal peace is as vital as breathing when it comes to quality of life.

I don’t try to fix people or their problems. I support them, love them, but allow them the space to fall. All of life’s stumbles teach us how to be better. I won’t take the chances to learn away from others & I do not let them take them from me. I’ll handle my business & be grateful for loved ones support.

This time of year we all start taking inventory of our lives. Checking in with ourselves, what we like, what needs work, what we can leave behind, what we need moving forward, etc… We seek out & celebrate our blessings, reminisce about those we’ve lost, & make an effort to express our gratitude to those still here. I always try and do this all year. But life is busy & messy. I’m grateful we have this time to remind us to focus on what is important & to contemplate changes that may be needed.

Kindness doesn’t have a season. It’s so simple. Start with being kind to yourself & it’ll grow. It’s so much better than growing the gossip grapevine.