Tag Archives: darkness

VOCABULARY VAULT

As I sat here reading my latest blog post, I began laughing as I reminisced about a memory from my time in junior high school. My English teacher, Mr. McIntyre, marched me up the hill to the high school to have my first essay reviewed for plagiarism! I presumed that since I was in Jr High now, I should write to impress in my best vocabulist style. I turned in a piece full of erudite vocabulary, and I used every word my father ever taught us. My Dad gave us a new word everyday. We had to learn the definition. It seems that in writing my last post, I was so excited about using clear vocabulary and grammar that I ended up using excessive and exaggerated words. I may have been over eager in Jr. High and with my blog post.

However, the extraordinary vocabulary is out of my system now. I will leave my pompous writing in that one blog post and save it for future poetry. That being said, when the next big achievement in my health journey happens, I’ll go overboard, yet again. Anyone with a chronic illness knows we get few victories, but we celebrate all of them. Maybe my strength and endurance will improve and I’ll hike a mountain! I have always set goals and fought like hell to reach them. There was a time when I ran daily. Running was my meditation, my personal time and it helped my mental health tremendously! I lost the agility to run quickly when my illness struck. Amidst the turmoil of learning I was misdiagnosed and cleaning my system from all the wrong medications and treatments, I somehow had an epiphany! I decided I wanted to run one last race. Fully aware that I was slowly losing my mobility, I knew this was probably my last chance. I spent days building up the strength mentally just to get myself motivated to practice. Eventually I did a 5K. I paid for it dearly for quite awhile physically. But mentally I did not care, I was unashamedly high on pride and happiness!

I embrace the hope that the day will come, when I again entertain thoughts of running a race or, dare I say, marathon! It’s not fantastical; over the last several months, I went from needing a wheelchair a majority of the time to only needing one for long distances, after a long day, or when I’m having a flare. It’s not out of the realm of possibility that I could gain the strength to do another race. Those hopes, dreams, goals are fuel for anyone with an incurable, painful, and debilitating chronic illness.

I’m ecstatic that at the moment my brain fog is clearing and I can delve into the vocabulary vault in my brain once again, with clarity. I promise to use this knowledge wisely, and never write another sesquipedalian blog post! 😉

I SEE YOU

I’ve always had a passion for writing. However, my challenge lies in the fact that my thoughts often scatter, and I may complete only one out of every ten pieces I begin. I have a friend who grapples with constant chaotic thoughts. He finds it difficult to recognize any redeeming qualities within himself. The remarkable thing is, he possesses an unparalleled gift. His ability to put words to paper that evoke all your senses and transport you into the vivid scenes he creates is a talent possessed by few.

He’s been working very hard on himself for the last year or so, giving up things he once thought he wanted, to explore his past, understand who he has become, and discover who he wants to be. He’s utilized advice from friends, his own creativity, a great deal of courage, and therapy to break free from the box that trauma had trapped him in.

I am incredibly proud of him. He acknowledges that he was becoming toxic to himself and those he cared about. Instead of taking the easy route, he summoned the strength to become a better person. His journey is far from over, and he knows it will take years to untangle and overcome behaviors shaped by trauma. But he’s doing it, and I want him to know that, although my life is very busy at the moment & my time is limited… I see you.

He has a deep love for poetry, and so do I. Even though I’m just a small star in the vast galaxy of his talent, I knew that poetry was the language I needed to connect with him. I chose a reverse poem to serve as a reminder of where he once stood and where he stands today. I want him to understand that I see him, I’m proud of him, and I have faith in him. I look forward to watching his ongoing journey toward self-healing and self-awareness.

Read each line from top to bottom. Then read each line from bottom to top.

His life is pain

And he no longer feels

He has the right to hope

Learning from loss

His worth is limited

Refusing to see

Through others’ hearts

Forging his path

In fear & anxiety

Never choosing to walk

With trust & courage

Trudging through chaos

Harnessing his creativity

Binding him from

A life full of joy

For JP, to remind you to always flip the script.

SUNRISES AND NEW BEGINNINGS

I’m fortunate to have an incredible support system, but in my darkest moments, I find myself alone. No one else can live in this body with me. Throughout the night, I’m here by myself, surrounded by darkness and pain. I’m sick, and I have to clean up my own vomit. It’s an unsettling reminder of the loneliness I battle despite the support around me.

Today was a challenging day, or rather, yesterday was. I have not slept, and time seems to be merging into a blur. It’s as if I’ve stepped into the Twilight Zone, where time doesn’t matter. However, reality hits, and I know I have to get up, get ready, and drive a teenager to field hockey practice in just two hours. So, yes, time indeed matters.

Despite the obstacles my body is putting in my path, I need to get on with my day and face it with a smile. Adding others to my misery only adds to the situation. I am happiest and more content when those who support me are living their best lives. I watch them view me through rose-tinted lenses, a view I’ve painted by pretending I’m okay. Those living with a chronic illness become skilled performers, some of the best actors and actresses you’ll ever meet. It’s a shame the Academy doesn’t give Spoonie Awards!

Yesterday was a day spent in intense pain. I managed to get up, take my medication, administer my injection, and take my granddaughter to get her ears pierced. I had to stop several times on the way home, the abdominal pain was merciless and unbearable. I contemplated going to the hospital, knowing full well, this was another blockage. Yet the thought of another exhausting and humiliating medical experience leaves me less than inclined to go. So, I suffer through the torment alone.

The several stops I made during my thirty-minute ride home, seemed futile. The Scleroderma dragon had awakened, wreaking havoc on my GI track’s ability to function. By now, it’s clear it’s another blockage. But did I go to the hospital? No, I did not. The thought of compounding my pain, stress, and overall agony by placing myself in a position to be judged by medical personnel who often treat me like a drug seeker, or time waster deterred me.

Then, having them humiliate me by being completely ignorant about it, like they’re teaching me a lesson or something.

“I’ve had far to many negative patient experiences to just, “go to the er”.

Advocating for myself isn’t new to me, but it’s an exhausting endeavor. The energy it takes to request they talk to my doctor or read through my chart before reentering my room is beyond me. Eventually, when they decide to heed my request, their demeanor shifts. Suddenly skepticism is replaced by compassion and belief. Now I’m declining multiple pain medications they initially assumed I was seeking. The irony is painful.

I shouldn’t have to endure humiliation before I’m treated humanely. So no, I did not go to the hospital. I returned home to suffer.

Within an hour of getting home, I began vomiting. Thankfully, my GI track decided to tediously do its job, and the pain did ease somewhat. The rest of the day, I continued to vomit and managed to navigate my sluggish intestines. Unfortunately, the vomiting triggered my reflux, and the dull headache from the Orencia injection kicked in around the same time. It was officially a full-on flare-up in this stubborn body.

Still, I did take my granddaughter for her piercing and her smiles added light to a dark day. My husband is on a camping trip, so I had to feed the animals and complete a few other necessary chores around the homestead. I even managed to get some online work done. Late evening rolled in, and I chatted with a group of friends online and cracked jokes. I don’t think anyone had an inkling of where I was physically or emotionally. Which I’m fine with because it gave me an escape from my current reality.

I’m writing this at 5 a.m. on Tuesday, as I start to see the light break through the night. I have come to the realization that this illness has taken something else from me, the joy and beauty in watching the sunrise. Because for me, sunrise means I haven’t slept again, the night is over, and people and animals are counting on me to do what I do. I fight, and I live my best life as painful, lonely, and difficult as it is sometimes. Because I know I only get this one life, and I want my legacy to be the joy I had for family, friends, and life. I absolutely do not want it to be, “She was always sick”.

“I’m doing everything in my power to be the person I want them to remember.”

One day this week, I’m going to plan a day to intentionally experience a sunrise. I want to truly absorb the beauty, and marvel at the miracle of life and new beginnings. I am tired of this disease constantly robbing me of experiences, I refuse to let it take another thing without putting up a fierce fight!

Huge shoutout to all who suffer in the darkness. Battle on, my fellow badass warriors.

I felt inspired…there you go JP, a Haiku.

“LET’S TRY THIS”

Those who know me well recognize that the length of time that has passed since my last blog post hints that my health hasn’t been great.

“In the fiery crucible of battling an incurable illness, she fearlessly harnesses the darkness, transforming it into fuel and igniting an unyielding spirit that blazes through life with an unwavering light that no healthy soul could ever hope to match.”

~Em Farwell

These past several months have been challenging. Trying to strike a balance between improving my quality of life, managing my symptoms, and dealing with disappointing test results has become an unexpected labyrinth that is stealing minutes from my life. Adjusting to medication changes has always been challenging for me, and it keeps adding to the torment.

It began when I contracted COVID back in December. The on-call doctor held back some of my medications while I was taking Paxlovid, but unfortunately, he didn’t withhold all the necessary ones, and it wreaked havoc on my lab results. Since then, it’s been a constant “let’s try this” game with my treatment plan, leaving me struggling with constantly changing side effects. It feels like I’m stuck on a hamster wheel; when one test improves, another one plummets.

During this time, I’ve had to tolerate changes in my medications and dosages, endure periods of isolation, watch my hair fall out, and witness my eyesight continue to decline. Adding to this jigsaw puzzle of torture, due to my medications & Sjögren’s, in just 6 months I went from having no cavities to having more than 10 cavities that I can’t afford to fix. It feels like an endless cycle of setbacks and obstacles that I am continuously struggling to overcome. All these physical changes and the thought of future ones (losing my hair, teeth, eyesight, etc.) take a huge toll on my mental health. I’m exhausted.

I am very grateful for my medical team. They’re putting in a major effort to help me through this time and to find solutions to improve my quality of life. Lately, I’ve started hearing phrases like “Hail Mary”, “last ditch effort”, “worth a shot,” and “running out of options” from my doctors, which leaves me with a sense of uncertainty.

The latest “out of the box” effort is to try biological therapy. The original thought was infusions; however, that would mean another monthly trip to Boston, which is 2 1/2 hours from my home. Instead, I will be giving myself weekly injections.

“with a biologic in the class of biologics known as selective costimulation modulators to target the cause of your inflammation and reduce the activity of your immune system”

I began the biologic last week. Thankfully, I’ve only experienced mild side effects. I did have bruising and tenderness at the injection site, along with chills after the injection and a lingering dull headache. Throughout the week, I’ve felt out of sorts, but I’m prepared to fight through adjusting to a new medication.

Finding balance and knowing if a medication is working for me can take months. Despite struggling with the thought of self-injecting, I keep reminding myself that I’m doing it with the hope that this will improve my current situation and lead to better days ahead!

Today was Week 2 of therapy. The actual process wasn’t any easier. I still hesitated and had to run through a whole gymnastic routine mentally before actually injecting the medication. But I did it, and I’m choosing to have faith in a positive outcome. I may be exhausted, but no one should be so brazen as to dare count me out!

JUST DON’T

It’s that moment in a social situation when things get awkward. When the person you’re talking to starts squirming & fumbling for words. They are struggling to keep the conversation going. That moment when people are at a loss for words. I realize my illness, my pain, my wheelchair & dozens of other chronic illness-related issues, I live with make “them” uncomfortable. If I’m being honest, saying the wrong thing happens a lot.

These are innocent, benign comments from people with no malicious intent. Many times they think it’s funny and yet they’re completely serious. Sometimes I can shrug it off or laugh it off. Other times, my bitch switch is flipped and it’s on. I’m ready to completely obliterate someone in anger and frustration. Faster than you would think, anger turns to frustration, and frustration turns to pain. Before you know it, I’m launching headfirst into the abyss that leads me down the dark road to depression.

“You’re so lucky you don’t have to work.”

“I wish I could stay home all day, like you.”

When you want to say it, just don’t.

I hear this often. Each time my mind’s eye suddenly sees my day in what it perceives, they think I do all day. There I am on a lavish sofa, the sun gleaming through the windows, making me appear like a starlet under the glow of the spotlight. I have snacks to the left of me, a controller to my right, and I’m snug in the middle with… Netflix. My dogs are at the table playing poker with their friends. My house is a magical place where dirt evaporates and items walk themselves back to where they belong. Once in a while, I glance up from the TV long enough to see my dishes take a bath and dry themselves with my self-cleaning dishcloths. All I do is think about dinner and bam! There it is, ready to serve itself when the time is right. The washing machine collects dirty laundry and bedding, proceeds to wash, dry, put it away, and make my bed. I’m like 5 episodes into my binge-watching by now. This fantasy vision is short-lived, and my brain brings me back to reality.

What they don’t think about is the fact that you can’t work because you can’t function. Your day is consumed with effort through pain, fatigue, and brain fog. There are meds to take, scripts to fill, doctor’s appointments, organizing all of this, and dozens of other equally not-fun medically related things that need to be done. They have not had to consider the implications of being unable to work for an extended period. How do you pay for your bills and healthcare, the isolation, your lack of relevancy in the world, and a multitude of other equally reasonable questions that rattle in your brain, echoing throughout your life?

I don’t work in a regular, scheduled, leave-my-home capacity because I’m unable to. I have physical limitations. I would give anything to be healthy enough to go back to work. I’m not on vacation.

The truth is, when you’re chronically ill, you spend most days just trying to stay alive. Prioritizing what has to get done & figuring out which filth you can live with for today. Because it’s not all getting cleaned. By the time most people arrive at work, your body has already begun to retaliate, to get you to retreat to your bed.

A lesson I’ve learned the hard way is that when someone living with a debilitating chronic illness shares their time with me, I must be very important to them. I know what sacrifices were made for them to give me space in their lives. Don’t depreciate their value. Appreciate every minute they give to you.

WAKE UP IN MY SHOES

Wake up in my shoes.

I slept. It wasn’t long, probably less than an hour. But I slept. As I awaken, I thank God for another day. Now comes the worst part of my entire day.

My eyes open, not fully, just enough to let a sliver of light in. My morning is seen through the sandman’s sleepy seed remains, in the corner of my eyes. I contemplate opening them further. I’m not yet ready.

I’ve talked before about that first step. It brings me excruciating pain & remains the most difficult step, I’ll take all day. I lie in my bed for a long time slowly talking myself into getting up. I’m finally ready, I’m full of dread and drag my legs to the side of the bed. I sit there and again give myself a pep talk. I set my first foot on the floor, then my second. I feel around to get my feet in my slippers. I sit awhile and then push myself up onto my feet. I’m standing. I did it.

There it is, my morning kick start…pain. It starts in my feet and crawls up my legs into my back and ends at the base of my skull. It feels like every bone, muscle, tendon, nerve, every single fiber of my existence is on fire. I’m in my head screaming, this will end, this will end, this WILL end! It takes me a minute to refocus on the task at hand & I eventually take that first step. Other steps follow and over about an hour the pain subsides.

Here’s the thing, my pain tolerance is high. I’ve endured nagging, lingering pain for over a decade with this disease. My pain level holds at around seven all day, every day. The pain of those first steps is so far beyond measurable on the pain scale, it’s impossible to convey. Starting my day is physically & mentally exhausting.

I go to bed every night knowing I will play this whole scenario out again for all of my tomorrows. Here’s the miracle in this story. Every day I’ve been lucky enough to wake up. So far I have a perfect record for taking that first step. I’ve managed to survive the pain 100% of the time. I have a full & happy life. It’s just more challenging than it used to be & some days I have to surrender & let pain win. But the next day I take that first step again.

I know that many of you can relate in some way to this post. You’re not alone, I’m proud of you & never forget the amount of strength that first step takes. You slay dragons before your feet even hit the floor & that is badass. Carry on Warrior.

NANCY PHIPPS: IN MEMORIAM

Nancy Benge Phipps. That name may not mean much to you, but that name will forever warm my heart and set my spine in a block of ice. That name belongs to the lady who brought me into this world, soon to be 26 years ago. She is my mother, and I am forever grateful. On the day I write this blog, she would have been turning 63 years young. She is the first one who shaped me, molded me, inspired me and taught me. She was my rock, if only briefly in my life. Below, I will tell you mom’s story, and I will tell you about five very special women in my life who carry on mom’s legacy in their journeys and what they do, and I will close this blog with a letter, written not by me, but by a son or daughter to their mother, under the auspices of better late than never.

November 6, 1959 was when her journey started, under less than ideal circumstances. Mom was the product of her mother, my granny, being raped, when she was just 15 years old. Her arrival into this world could have easily not happened. And in another realm or time or place, it may not have happened. But November 6, 1959, it did. Back against the wall, from birth. But nobody could back Nancy Phipps into a corner, for damn sure. Mom grew up as most children in rural northwestern North Carolina did in the 1960s and 1970s: Without adequate means, but she always made do with what she had, and always was able to pull a lot out of a little. That was and still is the way of many in the High Country of North Carolina. She was an excellent student in her school days, receiving high marks and higher praise by those she had as teachers. I still have a couple of her notebooks, many pages covered in meticulous notes.

Mom’s first job out of high school was at the Bantam Chef, one of the many greasy spoons in the little town of Jefferson, North Carolina, where her and I were born. It was here that she first caught the attention of my father, and a relationship began. May 28, 1982, the relationship culminated in a marriage that lasted to the day mom left this life for the next one. After several years of trying, on November 25, 1996, yours truly was born. It was I that first gave mom that very badge. And blessed I was, coming under her tutelage and care, and likewise my brother Evan, who came along a little over two years later, on December 28, 1998. Mom gave her all and at least 110% more to the both of us. She loved u with her entire heart, and did her level best to protect us best she could from the world and what all it can and will throw at you. And she did this to perfection. Even when the bottom dropped out.

In 2001, on a date that I don’t remember and honestly don’t care to remember, mom sat us down and broke the news to myself and Evan: She had been diagnosed with ovarian cancer, and that she could die as a result. I hugged her neck like I never had. I cried harder that day than I ever had. It was at the age of 4 or 5 that I first caught a glimpse of what mom was trying to protect myself and Evan from: The harsh reality of life, one of the millions of them dealt to each of us in time. Over the next 3 years, I saw sights and felt feelings no small child or grown adult should ever have to see or experience.

The sight of mom pinned to the couch, not having the energy to do so much as move.

The sight of mom and dad fighting, and getting her getting hit by the man you viewed as your father.

The sight of mom ordering, getting mailed and trying on various wigs, as her beautiful hair slowly but surely fell out due to chemo.

The sight of mom lying in a hospital bed, unable sometimes to keep her eyes open, as every morsel of energy got ripped out of her over time.

The sight of the many face masks and hospital wrist bands, demented souvenirs of the many trips to Boone hospital.

And the sight of a school full of eyes looking at me, when mom’s valiant battle ended.

February 18, 2004. A Wednesday. I remember waking up that morning to the sight of some men in suits setting up a small table in the living room. They were from the funeral home. On the small table was a book, for visitors to sign their names. They told me that mom had lost her battle with ovarian cancer. I refused to believe it. And maybe in some twisted, circuitous way, I still don’t believe it. But whether or not I decided to dwell in fantasyland, the cold reality was that my rock was gone. It did not crumble. Nancy Phipps did not crumble under those unique and hellish pressures. But it left me. The bottom dropped out from under my feet. At 7 years old, my world went dark and forever changed.

I spent several months afterward just trying to make it make sense that she was gone. I swore up and down this wasn’t real. I do not remember mom’s funeral or when we buried her. In a reverse way, I am glad that the waters of time eroded those memories away. But I remember the feelings. The moments. Hearing certain songs on the radio. Clinging to the memories of her I did have. The smells of fresh bread baking, something she loved to do. Taking comfort in friends in and their parents, including Angie Salmons, the mother of my friend Kierra, who took me and Evan in as if she were one of her own, even though she herself was deep in the throws of her own valiant battle against breast cancer. Remembering rides in the red 1994 Oldsmobile we had. Her taking me to the grocery store with her, and thinking the Lowe’s Foods in our town was so expansive. It looked like a skyscraper inside and out, to my child mind. Remembering how mom loved to watch NASCAR races on television, and how she loathed listening to them on the radio. The quilts she loved to knit. The food she made, that she aced every time, without fail. Hugging her. Telling her I loved her. How I wish I could do it all, just one more time. 44 years young. It wasn’t fair, and it isn’t fair now. But it is life. And mom would want me to move on. And I have. Or I’d like to think I have, even though the battle scars I bear from that time period may never fully heal. The milestones me and Evan have reached and will reach…….they are sweet, but also tainted with the bitter taste of knowing she isn’t present for them, and never will be. Me and Ev graduating. Evan getting married. Me publishing my first poetry book and putting out my first album. But the memories live on. And somewhere, some way, somehow, she is there. Even if we cannot see her, she is there.

I may not have her valiance and love and care in a physical form, but I for sure see it in those around me. In six ladies in particular, I see it. Six bright, razor sharp and valiant ladies in their own right. Each carries a piece of what mom embodied, and it is because of this that I gravitated toward them.

The first of these valiant ladies is my best friend, Renee Yaworsky. I first befriended Renee the day after my 24th birthday, in November of 2020. I right away noticed that the beauty of her heart and spirit matched exactly that of mom’s. This would only become exemplified, as I found out about the health struggles Renee so bravely fought and is currently fighting. I saw in Renee’s soul that it carried 10 pounds of mom’s strength and bravery in a 2 pound sack. My jaw was on the floor, and a tear was in my eye when Renee told me her story, as it so closely paralleled my own. I couldn’t believe it. It was as if I was looking into a mirror, and I was seeing mom’s reflection. I gravitated toward Renee, and it connected even more when I found out Renee so loves to wear wigs, or hair-hats as she calls them! Mom courageously rocked the wigs she owned, and I am sure she would have smiled had she seen Renee’s collection of them. From the valiance grew a friendship, which has become a close friendship, and a working, creative partnership, which has so enriched me.

To Renee, I thank you for carrying mom’s torch with such dignity and courage and respect, and for being my light on a dark corner. ❤

The next of these incredible ladies is one of the co-founders of this very site, Em Farwell. Em I came to know through Renee, after we had brought her aboard to help us in Cosmos Creative TV, the wide-spanning array of digital programming Re and I put together. I very quickly noticed how Em ran things: Tight and concise, just as mom had been in the doings in her own life. Like Renee, I soon found out about the various health battles Em faces on the daily, and how she is fighting and overcoming them. After I told my story, Em quickly took me under her wing, and made me one of her own. It’s as if God and mom each put a hand on her shoulders and guided her toward me. With Em’s encouragement, love and support, I am now charting a course to helping heal a lot of the wounds that I received in those times when I was lost in that deep, dark jungle, and was unsure of how and when I was going to get out.

To Em, I thank you for showing me a path forward, and for teaching me that it’s OK to not be OK, and for holding my feet to the fire. ❤



The next of these shining, sparkling souls is Diane Marie Coll. Diane is someone I met through Kimono My House, a virtual concert group on Facebook. As wonderful a singer, songwriter, comedienne and show host as she is, she is also a wonderful therapist, and a close and cherished confidant. When the bottom fell out for me mentally over the summer, Diane was one of the first to pick up the broken pieces of my soul and rearrange them into something presentable again. She loved me at a point when I could not, would not love myself. And moreso than that, she presented me with options and resources, and was firm but kind in her insistence that I seek help, after many years of brushing it off. And am I ever glad I listened. It was Diane’s holding me accountable and spearheading the necessary changes that got me started down the path to self-betterment, and I cannot wait to take those first big leaps!

To Diane, I thank you for being part drill sergeant and part cheerleader, and for encouraging me to see things in a completely different light. ❤

Th next of these clear, powerful voices is Sandie Dee. Sandie is another person I met via an online concert group on Facebook, this one being Socially Distant Fest. There have been few who have encouraged me and waved the pom-poms and drove the hype train for me quite like Sandie has. What she has been as a supporter, she also has been for my best interests. Sandie is a persistent, driving force in my life, and is always looking out for me and wanting what’s best for me. She’s a splitting image of mom in this regard, and I am forever grateful for this. Like Em, she has taken me in as one of her own, and although Sandie and I butt heads from time to time, it’s always from a place of love, kindness and wanting. Sandie has been there for me for so long, and her kindness and support has been greatly encouraged.

To Sandie, I thank you for always being here, and for making sure I am taken care of. ❤

The next of these human roses is Corrie Lynn Green. Corrie is another one I came to know from Socially Distant Fest, and to chronicle her journey is to have it run parallel with mom’s. Like mom, she valiantly fought cancer, in her case breast cancer. And like mom, she fought this awful disease tooth and nail. And Corrie Lynn whipped that bear. And she decided to sing out in joy. Corrie has just released an album of music from my beloved Appalachia, and like mom, Corrie loves to sing, and her voice fills me with joy. Mom would be so proud of Corrie and how she has fought and continues to fight for others, even though her battle is won. Precious is the souls who can continue to shout and advocate for those who are fighting cancer in place of mom, and Corrie’s is one I hold in the uppermost echelon of my being.

To Corrie Lynn, thank you for being a voice to those fighting, and for encouraging me to find my own, in the Blue Ridge hills. ❤

To conclude this tribute to those in my life who carry mom’s legacy, I will honor my friend Jaime Bennett. Jaime is someone I came to know a little later down the pike, though also from Socially Distant Fest. I had the pleasure and honor of directing Jaime’s show called The Warrior Within, and in that show, Jaime would always touch on a topic that was near and dear to her heart. In directing these episodes, and hearing her tell stories of things almost unimaginable happening to her over her life, it made me cry to know that she had fought many of the same battles mom had fought in her time. While Jaime’s battles align a lot with ones I have fought in my own life, it drew me that much closer to Jaime to see the battles of mom’s that she has fought, and all of them so fiercely and valiantly.

To Jaime, thank you for showing me that my battles are valid, and that I can indeed talk them out without fear of judgement. ❤

In closing, I will include a letter. This letter was not of my own hand, but is influenced by me. It is a variation of a letter that Paul Harvey read on a Father’s Day broadcast many years ago, and one that I changed slightly to be from the point of view of a son or daughter writing to their mother. The letter reads as follows:

Dear Mom,

I am writing this to you, even though you have been dead for 30 years. Whether you can read these lines, perhaps you can read my thoughts, but there is still some things I need to say, even if it’s too late.

Now that my own hair is gray, I remember how yours got that way. I was such an ass, mom……..Foolishly believing in my own teenage wisdom, when I know now I would have benefitted most from the calm, right, wholesome wisdom of yours.

Most of all, now that I have children of my own, I want to confess my greatest sin against you, the feeling I had, for which you did not understand. Though when I look back now, I know that you did understand. You understood me better than I did my own self……How patient you were, and how futile your efforts to get close to me, to win my confidence, to be my guardian angel were. I wouldn’t let you. I simply wouldn’t let you. What was it that held me aloof? I’m not sure, but despite my best efforts, my own children had to build the same wall between them and I. And there’s no way I can climb over it or go through it, and what a shame, what a waste.

I wish you were here now, across this table from me. There’d be no wall now. We’d both understand, now. And God, mom, how I do love you, and how I dearly wish I could be your companion again. Well…….maybe that day isn’t far off. I’m guessing you’ll be there, waiting to take me by the hand and lead me up the further slope. I’ll put in the first thousand years or so, making you realize that not one pang of yearning, not one morsel of thought, not one second of worry you spent on me was wasted, it all came back, and it all paid off eventually.

I know that the richest, most priceless thing on earth and one of the least understood things is that mighty love and tenderness and that everlasting craving to help that a mother feel toward her little ones. But none of her children can realize this until the roles are reversed. Even now, mom, I’m tired, weak and longing, and would hasten to join up there in the Great Beyond, except for my children…….They’re all fine, sweet, caring and upstanding young ones, all very capable, self-sufficient, highly talented and loving toward all. But, mom, I reckon I’ll stand by a little longer, to help them along, and to watch them shoot for the moon and land among the stars, and to be there for them, if they ever need me. You understand.

Signed,

Your loving child

I hope this blog finds you well, and in the comments, please feel free to share memories of your own mother, whether she is still with us or not.

Take care, much love, and may God richly bless,

-Jon

MY DOGS

  • dog [ dawg, dog ] noun
  • faithful companion, snuggle buddy, depression buster, biggest fan, gentle caretaker, hiking partner, emergency alert system, unconditional love bug, never-let-a-crumb remain on the floor vacuum, best friend, squirrel chasing, unfailing hero, personal trainer, fierce protector, motivational coach, alarm clock, doorbell, official guest greeter, sled puller, chicken wrangler, hole digger
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THEY LOST ME AT, “WHY ARE YOU HERE”

I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.

Continue reading THEY LOST ME AT, “WHY ARE YOU HERE”