Tag Archives: systemic sclerosis

An incurable auto immune disease.

I HAD ALREADY DIED

April 20, 2022 Em 2 Comments

We are all dying. People who are battling health issues, are just more aware of this…

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MY DOGS

April 4, 2022 Em 5 Comments

dog [ dawg, dog ] noun
faithful companion, snuggle buddy, depression buster, biggest fan, gentle caretaker, hiking partner, emergency alert system, unconditional love bug, never-let-a-crumb remain on the floor vacuum, best friend, squirrel chasing, unfailing hero, personal trainer, fierce protector, motivational coach, alarm clock, doorbell, official guest greeter, sled puller, chicken wrangler, hole digger

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WELCOME TO MY SPRING BREAK

March 29, 2022 Em Leave a comment

It sucks to finally save a tiny bit of money to go do something fun with the start of spring & then need a procedure 2 states away! Suddenly you have to spend said money & more on getting there & a hotel. Welcome to my “Spring Break”.

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MY MOMENTS MAY NOT BE EASY, BUT MY MEMORIES WILL BE BEAUTIFUL

January 24, 2022 Em 2 Comments

I had to take a trip to Boston for an appointment on Friday. I went with my Mom & two of my granddaughters… girls trip!

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WHAT HAPPENS WHEN YOUR CAREGIVER GETS SICK

January 19, 2022 Em 1 Comment

Come on in, take a seat. I’ll tell you, what happened when my caretaker got sick.

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BRAIN OVER BODY

January 6, 2022 Em 1 Comment

I decided that my body is not making the rules this year! I’m creating a list of things I can do even on those days where I can’t even get out of bed.

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APPRECIATION

December 29, 2021 Em Leave a comment

We talk a lot about being grateful, thankful, blessed, positive, and many other things that pertain to how “we” feel. I realized this morning that try as I may, I don’t always let the people who create these feelings in me, know how much they mean to me.

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WHO YOU GONNA CALL

December 17, 2021 Em 5 Comments

When you’re in pain & you can’t get help, you feel like you don’t matter.

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PUPPY UNIVERSITY

November 26, 2021 Em Leave a comment

I signed my beautiful puppy up for puppy school. I think she’s laughing at me 🐾

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MUSIC TAKE ME AWAY

November 25, 2021 Em Leave a comment

When pain consumes me & my soul is tired, music is my Great Escape.

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JUST DO IT

November 13, 2021 Em 1 Comment

“Hope begins in the dark”

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SEE ME

November 2, 2021 Em Leave a comment

When I first got sick, one of the things that I really struggled with, was people no longer seeing me.

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I’M NOT A HYPOCHONDRIAC, I’M A REALIST

October 11, 2021 Em Leave a comment

One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.

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THEY LOST ME AT, “WHY ARE YOU HERE”

September 18, 2021 Em Leave a comment

I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.

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