The days after are always an epic fail.
Continue reading WHY?Tag Archives: systemic sclerosis
An incurable auto immune disease.
I HAD ALREADY DIED
We are all dying. People who are battling health issues, are just more aware of this…
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MY DOGS
- dog [ dawg, dog ] noun
- faithful companion, snuggle buddy, depression buster, biggest fan, gentle caretaker, hiking partner, emergency alert system, unconditional love bug, never-let-a-crumb remain on the floor vacuum, best friend, squirrel chasing, unfailing hero, personal trainer, fierce protector, motivational coach, alarm clock, doorbell, official guest greeter, sled puller, chicken wrangler, hole digger
WELCOME TO MY SPRING BREAK
It sucks to finally save a tiny bit of money to go do something fun with the start of spring & then need a procedure 2 states away! Suddenly you have to spend said money & more on getting there & a hotel. Welcome to my “Spring Break”.
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MY MOMENTS MAY NOT BE EASY, BUT MY MEMORIES WILL BE BEAUTIFUL
I had to take a trip to Boston for an appointment on Friday. I went with my Mom & two of my granddaughters… girls trip!
Continue reading MY MOMENTS MAY NOT BE EASY, BUT MY MEMORIES WILL BE BEAUTIFUL
WHAT HAPPENS WHEN YOUR CAREGIVER GETS SICK
Come on in, take a seat. I’ll tell you, what happened when my caretaker got sick.
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BRAIN OVER BODY
I decided that my body is not making the rules this year! I’m creating a list of things I can do even on those days where I can’t even get out of bed.
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APPRECIATION
We talk a lot about being grateful, thankful, blessed, positive, and many other things that pertain to how “we” feel. I realized this morning that try as I may, I don’t always let the people who create these feelings in me, know how much they mean to me.
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WHO YOU GONNA CALL
When you’re in pain & you can’t get help, you feel like you don’t matter.
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PUPPY UNIVERSITY
I signed my beautiful puppy up for puppy school. I think she’s laughing at me 🐾
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MUSIC TAKE ME AWAY
When pain consumes me & my soul is tired, music is my Great Escape.
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JUST DO IT
Continue reading JUST DO IT“Hope begins in the dark”
SEE ME
When I first got sick, one of the things that I really struggled with, was people no longer seeing me.
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I’M NOT A HYPOCHONDRIAC, I’M A REALIST
One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.
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THEY LOST ME AT, “WHY ARE YOU HERE”
I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.
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HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
I wouldn’t know, I still don’t have mine.
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SCLERODERMA WALKS
It’s hard to fight, an unknown enemy, when you don’t have a diagnosis, really hard!
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WEEKEND AWAY
My husband is amazing. Now don’t get me wrong, after 34 years we can annoy the 🤬 out of each other! But without him, I could not do this.
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LAUGHTER TRULY IS THE BEST MEDICINE
When you have a chronic illness or disability everything is more difficult.
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TRAPPED IN THE STRESS LOOP
Let’s talk stress. I’ve been doing really well for a few months now. Things have been really good.
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