The days after are always an epic fail.Continue reading WHY?
Trust me when I say, “I already judge myself”. Your judgmental services are not needed.Continue reading JUDGE ME?
We are all dying. People who are battling health issues, are just more aware of this…Continue reading I HAD ALREADY DIED
It sucks to finally save a tiny bit of money to go do something fun with the start of spring & then need a procedure 2 states away! Suddenly you have to spend said money & more on getting there & a hotel. Welcome to my “Spring Break”.Continue reading WELCOME TO MY SPRING BREAK
I had to take a trip to Boston for an appointment on Friday. I went with my Mom & two of my granddaughters… girls trip!Continue reading MY MOMENTS MAY NOT BE EASY, BUT MY MEMORIES WILL BE BEAUTIFUL
Come on in, take a seat. I’ll tell you, what happened when my caretaker got sick.Continue reading WHAT HAPPENS WHEN YOUR CAREGIVER GETS SICK
We talk a lot about being grateful, thankful, blessed, positive, and many other things that pertain to how “we” feel. I realized this morning that try as I may, I don’t always let the people who create these feelings in me, know how much they mean to me.Continue reading APPRECIATION
When you’re in pain & you can’t get help, you feel like you don’t matter.Continue reading WHO YOU GONNA CALL
I signed my beautiful puppy up for puppy school. I think she’s laughing at me 🐾Continue reading PUPPY UNIVERSITY
When pain consumes me & my soul is tired, music is my Great Escape.Continue reading MUSIC TAKE ME AWAY
When I first got sick, one of the things that I really struggled with, was people no longer seeing me.Continue reading SEE ME
One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.Continue reading I’M NOT A HYPOCHONDRIAC, I’M A REALIST
I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.Continue reading THEY LOST ME AT, “WHY ARE YOU HERE”
I wouldn’t know, I still don’t have mine.Continue reading HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
It’s hard to fight, an unknown enemy, when you don’t have a diagnosis, really hard!Continue reading SCLERODERMA WALKS
My husband is amazing. Now don’t get me wrong, after 34 years we can annoy the 🤬 out of each other! But without him, I could not do this.Continue reading WEEKEND AWAY
When you have a chronic illness or disability everything is more difficult.Continue reading LAUGHTER TRULY IS THE BEST MEDICINE
Let’s talk stress. I’ve been doing really well for a few months now. Things have been really good.Continue reading TRAPPED IN THE STRESS LOOP
There is something to be said for teaching our daughters to be strong, fearless and independent women.Continue reading LOSING INDEPENDENCE
Travel…ah ya yaContinue reading TRAVEL