We are all dying. People who are battling health issues, are just more aware of this…Continue reading I HAD ALREADY DIED
I had to take a trip to Boston for an appointment on Friday. I went with my Mom & two of my granddaughters… girls trip!Continue reading MY MOMENTS MAY NOT BE EASY, BUT MY MEMORIES WILL BE BEAUTIFUL
I have spent a lot of time thinking about my life, time & choices, since I became sick. But this year with the pandemic and David’s health scare, I realized that I’m not the only one who’s “somedays” are limited. None of us know how many “somedays” we have left. The time has come. Someday is today.Continue reading SOMEDAY IS TODAY
When my husband Michael and I were married on April 20, 2002, we thought our lives would be perfect.
Within two years of being married, we bought our dream home and we had our son Jacob on February 15. 2004. My life seemed wonderful. I was loving my personal life and professional life as a 4th grade teacher. Then I turned 30 and my life changed, or as I often say,”turned into my personal Hell.”
My birth defects in my hips and spine were identified, surgeries began to pile up, and I was forced to retire. As the years progressed, I began to see specialists who had no idea what to do for me. Finally, I was identified as having many markers of hEDS, so they began treating me as if I do even though they can’t say indefinitely what I suffer from. They can’t explain why I swell, why my body turns colors, why my tissues eat themselves and bones refuse to heal. My perfect life I thought would be my happily ever after is gone. I have my sad moments, a lot and often. But instead of hiding and burning my head, I am happier to use my stories and strength to fight and educate others about living with a chronic illness. To join forces support one another, and look for answers.