Tag Archives: hEDS

HAPPILY EVER AFTER INTERRUPTED

When my husband Michael and I were married on April 20, 2002, we thought our lives would be perfect.


When I Still Believed in Fairytales

Within two years of being married, we bought our dream home and we had our son Jacob on February 15. 2004. My life seemed wonderful. I was loving my personal life and professional life as a 4th grade teacher. Then I turned 30 and my life changed, or as I often say,”turned into my personal Hell.”

My birth defects in my hips and spine were identified, surgeries began to pile up, and I was forced to retire. As the years progressed, I began to see specialists who had no idea what to do for me. Finally, I was identified as having many markers of hEDS, so they began treating me as if I do even though they can’t say indefinitely what I suffer from. They can’t explain why I swell, why my body turns colors, why my tissues eat themselves and bones refuse to heal. My perfect life I thought would be my happily ever after is gone. I have my sad moments, a lot and often. But instead of hiding and burning my head, I am happier to use my stories and strength to fight and educate others about living with a chronic illness. To join forces support one another, and look for answers.