Tag Archives: overcoming

JON

TRUE NORTH

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If you’ve wondered why my output here has slowed down in recent months, it’s because I am going through a period of immense inventory-taking in my life. As I have officially reached the backside of my 20s since last we spoke, I felt it was time to start getting my mental, spiritual and soulful house in order, and to decide just what it is I want to keep doing. In that period, I have turned loose of a lot of people and happenings that I either had no interest in anymore, or was sapping the energy I once had. And I’ve become more mindful as to who I speak to on a regular basis, and the things I do, and how to balance both without the scale tipping too far in either direction, leading to burn-out or a lack of interest.

Put simply, at age 27, I am beginning to search for (and hopefully find!) my true north.



I am beginning to re-invest in what brought me joy before, such as poetry. While my lofty book-publishing dreams and long-form poetry output has ceased at least for now, I am partaking in another poetry challenge with a dear friend this year, and am pulling out all the stops, as we both have made a pact to write a poem a day for as long as we are able. Short poems mostly, as I am writing nijusan poetry, or “cheater haiku” as I call them. 23 syllables, a 7-9-7 string. Nijusan is the Japanese word for “twenty-three,” so it made sense to stick the name to these poems, and this new poetic invention has re-opened a lot of doors poetically that I thought were screwed or welded shut.

I am also trying to keep contact with dear friends who build me up and encourage me, and maintaining contact with those I already have roots with in their soil. Reaching out to dear friends is a cherished pastime for me, as I live a mostly rural life in the mountains of North Carolina. I am also taking stock of my friendships, and seeing which ones are benefitting me and helping me forward, and which ones needed to be clipped and left to the elements. While it is a bit sad to turn loose of some I have cherished, I know it will only help me and lessen the weight on my shoulders.

In addition to before, I am slowly dipping my big toe back into event organizing, as I have missed it very much. While it’s not anything to the extent I was doing in 2021 and 2022, it still fills the void that my prior schedule had left behind. Organizing weekly virtual music concerts, helping other friends with booking for their events, and kicking the tires on potential interviews are reaping newfound benefits for me, now that I know how to reign myself and my mind in, and to be fulfilled by it without being bogged down by it.

Another major investment has been continued therapy, though with the blossoming of a new season, my seasonal “blahs” have subsided for the most part. But it’s still a highly beneficial thing for me, if for no other reason than to ensure this newfound good feeling and happiness in my life sustains itself for many months or even years to come! While I have had some stumbling blocks in this new spring season, talking things over with my therapist has been immeasurably helpful in keeping me on the right track.



While I have shared a few different reasons for my absence here, there are still many ways I am evolving and growing and changing, and I will share these with you in future blog posts in weeks and months to come. But for now, I feel like I needed a bit of explanation as to why I took a sabbatical of sorts from blogging. It is because, friends, my true north is calling, and I must follow it. I’m not getting any younger, and as certain as it’s daylight, the time is now to go. ❤️

I hope this blog post finds you well, and in the comments, please share how you found or are trying to find your own true north in your life! What does it look like? What is it you’re doing to find it? If you’ve found it, what did it for you? Feel free to share!

As always, take care, much love and may God richly bless,

-Jon

EM

VOCABULARY VAULT

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As I sat here reading my latest blog post, I began laughing as I reminisced about a memory from my time in junior high school. My English teacher, Mr. McIntyre, marched me up the hill to the high school to have my first essay reviewed for plagiarism! I presumed that since I was in Jr High now, I should write to impress in my best vocabulist style. I turned in a piece full of erudite vocabulary, and I used every word my father ever taught us. My Dad gave us a new word everyday. We had to learn the definition. It seems that in writing my last post, I was so excited about using clear vocabulary and grammar that I ended up using excessive and exaggerated words. I may have been over eager in Jr. High and with my blog post.

However, the extraordinary vocabulary is out of my system now. I will leave my pompous writing in that one blog post and save it for future poetry. That being said, when the next big achievement in my health journey happens, I’ll go overboard, yet again. Anyone with a chronic illness knows we get few victories, but we celebrate all of them. Maybe my strength and endurance will improve and I’ll hike a mountain! I have always set goals and fought like hell to reach them. There was a time when I ran daily. Running was my meditation, my personal time and it helped my mental health tremendously! I lost the agility to run quickly when my illness struck. Amidst the turmoil of learning I was misdiagnosed and cleaning my system from all the wrong medications and treatments, I somehow had an epiphany! I decided I wanted to run one last race. Fully aware that I was slowly losing my mobility, I knew this was probably my last chance. I spent days building up the strength mentally just to get myself motivated to practice. Eventually I did a 5K. I paid for it dearly for quite awhile physically. But mentally I did not care, I was unashamedly high on pride and happiness!

I embrace the hope that the day will come, when I again entertain thoughts of running a race or, dare I say, marathon! It’s not fantastical; over the last several months, I went from needing a wheelchair a majority of the time to only needing one for long distances, after a long day, or when I’m having a flare. It’s not out of the realm of possibility that I could gain the strength to do another race. Those hopes, dreams, goals are fuel for anyone with an incurable, painful, and debilitating chronic illness.

I’m ecstatic that at the moment my brain fog is clearing and I can delve into the vocabulary vault in my brain once again, with clarity. I promise to use this knowledge wisely, and never write another sesquipedalian blog post! 😉

EM

PEACE

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There will never be peace in a world where so many struggle with their inner demons daily, jeopardizing their peace with every challenge they face.

No one is perfect; our lives are created based on the tightly woven micro-choices that make up the tapestry of our existence. Outside forces can amplify the burden of our struggles, yet we are faced with choices. Rare disease diagnosis? You can still choose to spread your wings and fly, or you can throw in the towel, in which case you’ve already met your demise. Financial issues? Perhaps you’re choosing your family over your career, a valiant choice. However, you can’t expect to keep up with your neighbor, who has all the things but never married or had children. Apples & oranges.

Every creative soul tells a story of struggling paycheck to paycheck just to pay bills while chasing their passions. They speak of how they are confronted with choices presented throughout their journey and the inner battle that comes with every choice.

I wish I could choose to be healthy and walk away from the financial burdens tethered to my chronic illness. I dream of resuming my career, advancing my education, and spontaneous travel. It’s a tempting choice, contingent on relinquishing all medical interventions. It would be an agonizing and short-lived adventure; without all of the medical treatments currently keeping me alive, my body would quickly shut down. I would not live long, and I am not yet willing to forsake a life filled with others who are in this struggle with me. These choices define my journey, and I’ll face the prospect of dying without sufficient funds for a burial before surrendering to my illness.

Every day I defy my illness, embracing all life’s offerings when able. From enduring an ear-torturing youth band concert for my loves to navigating the intricate medical preparation needed for travel. I’ll endure my injections, infusions, feeding tube, meds & catheters—the toll for living my best life alongside those who share in my journey. I have recently been blessed with another choice; a new out-of-the-box, hail-mary medical treatment, and its benefits have been life-changing! I risked everything on one choice, and its rewards are nothing short of life-changing. I’ve seen improvements in weight gain and daily mobility, enabling me to enjoy more travel and visits with family and friends. Even my writing is flowing, and all the words and grammar I thought I’d lost are coming back with infinite clarity! I’m tightly clinging to faith, trusting that these positive changes will persist; and although I will require perpetual medical interventions, I feel more hopeful than I have in decades.

The point is, that we all have choices, and each choice is intertwining with dozens of micro-choices. Opting for love and relationships over material possessions can be a challenging journey, while choosing financial security and possessions often leads to a lonely road. Choices aren’t inherently right or wrong, black or white, or universal for every person. Nevertheless, you will always face choices, and you must live with the consequences of decisions made. Every one of us has to forge our path. What works for one may not work for another. Choose wisely. Hold tight to the blessings some people would say are holding you back. When death comes, your cherished possessions will be dispersed, often sold or discarded. No one will be thinking about the times your piece-of-shit car broke down, or how you never finished your house due to a lack of money; instead, they’ll hold tight to your love. Share memories & forgive. In the end, the choices we make are the lasting legacies that will trump all material possessions. Choose wisely.

EM

I SEE YOU

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I’ve always had a passion for writing. However, my challenge lies in the fact that my thoughts often scatter, and I may complete only one out of every ten pieces I begin. I have a friend who grapples with constant chaotic thoughts. He finds it difficult to recognize any redeeming qualities within himself. The remarkable thing is, he possesses an unparalleled gift. His ability to put words to paper that evoke all your senses and transport you into the vivid scenes he creates is a talent possessed by few.

He’s been working very hard on himself for the last year or so, giving up things he once thought he wanted, to explore his past, understand who he has become, and discover who he wants to be. He’s utilized advice from friends, his own creativity, a great deal of courage, and therapy to break free from the box that trauma had trapped him in.

I am incredibly proud of him. He acknowledges that he was becoming toxic to himself and those he cared about. Instead of taking the easy route, he summoned the strength to become a better person. His journey is far from over, and he knows it will take years to untangle and overcome behaviors shaped by trauma. But he’s doing it, and I want him to know that, although my life is very busy at the moment & my time is limited… I see you.

He has a deep love for poetry, and so do I. Even though I’m just a small star in the vast galaxy of his talent, I knew that poetry was the language I needed to connect with him. I chose a reverse poem to serve as a reminder of where he once stood and where he stands today. I want him to understand that I see him, I’m proud of him, and I have faith in him. I look forward to watching his ongoing journey toward self-healing and self-awareness.

Read each line from top to bottom. Then read each line from bottom to top.

His life is pain

And he no longer feels

He has the right to hope

Learning from loss

His worth is limited

Refusing to see

Through others’ hearts

Forging his path

In fear & anxiety

Never choosing to walk

With trust & courage

Trudging through chaos

Harnessing his creativity

Binding him from

A life full of joy

For JP, to remind you to always flip the script.

EM

WHEN “THURSDAY” IS “WEDNESDAY”

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Happy Friday friends! You know those days we all have when everything you try to do is an epic fail? My “Thursday” was one of those days!

My husband is enjoying a much needed camping vacation. I started “Thursday” off with completing some promotional work online. I was feeling accomplished after getting it done quickly, efficiently and early! I had nothing I had to do for the rest of the day until an interview at 8pm.

After completing my online work, I went to the refrigerator to grab a drink. The minute I opened the door, I immediately regretted it, the smell was overwhelming. I noticed the milk container lying on its side. When I reached for it, I realized the container was bloated, and couldn’t even stand upright. What had started as a container of whole milk had turned into curds & whey, and Little Miss Muffet was no where to be found!

RIP Frigidaire

I quickly cleared out the entire refrigerator and transferred my Orencia injections into a cooler with ice. I have no way of knowing how long they went without refrigeration. My anxiety grew as I called the pharmacy asking what to do. They told me they could send me replacements, but I would need to cover the cost upfront and wait to see if my insurance would reimburse me. Considering each shot costs $1,436, and I would need three replaced, that amounted to $4308. They were so cavalier about the situation. I got the impression they truly believed I had that kind of money just lying around. But let me refocus and get back to the rest of my chaotic “Thursday”!

Following that, the power suddenly went out and my attempts to reset it were not successful. I was beyond frustrated and I shifted my attention to tending to the animals instead. However, while collecting eggs, several chickens managed to escape their enclosure. Despite corralling most of them, their was one little devil that evaded me. As I approached it with the hope of sending it running back to the enclosure, I slipped and fell hard. I was able to catch myself with my outstretched hand, I felt pain immediately. I found myself in the duck pond, which is basically a mud bog, this time of year.

By this time I contemplated remaining there for the rest of the day. Eventually I managed to extract myself from the mud and hobbled back to the house with my cane. I wanted to get inside and quickly ice my hand and wrist. Then I had another moment of complete exasperation when I remembered the power is still out and I can’t even shower. So there I sat in self pity city, hurting & covered in mud for a good half-hour, until my phone rang and interrupted my pity party for one.

The call was from the social worker where my mom resides, they needed me come in to address some matters. I felt paralyzed. I was covered in mud, and feeling overwhelmed and doubting myself. I do not like these feelings and it flipped a switch in my brain. Just do it. With renewed badassery, I dragged my ass back outside. It took all the tenacity I could muster, but I managed to reset the power and get that mother clucking chicken back to the safety of it’s pen.

I did it.

I went back inside and reassured myself, “you do not have to rush to Mom’s. She’s safe and you can go tomorrow. Treat yourself to a hot shower and some ice cream! Just as I headed for the shower another call came in and I realized it was “Wednesday” not “Thursday”. All of the effort I had put in to my work that morning was wasted time. I had done the wrong days work. I would have to backtrack and edit everything.

Before doing anything else, I shower and ice my injury. My shower re-energized me and the swelling in my hand improved after icing. I was feeling better and no longer worried about a potential trip to the ER. Since realizing it’s “Wednesday” and not “Thursday”, and that I didn’t have an interview in a few hours, I made the decision to go to moms after all, and address her needs.

Upon returning home from moms I felt quite accomplished, but exhausted. I video chatted with some long distance friends and allowed myself to unwind. As time passed, the pain in my wrist and hand became increasingly unbearable. I knew I needed to get it evaluated. Yet, my stubbornness led me to wait until the next morning. What a long agonizing night.

Urgent Care

The next morning, which indeed was the actual “Thursday”, I went straight to urgent care. Diagnosis: fractured and they discovered two previously healed fractures. Now I wait for Ortho referral. They marveled at the pain threshold required to endure two broken bones, without even realizing they were broken! Sadly, most spoonies dealing with painful chronic illnesses unfortunately understand. I carried on with my scheduled interview that evening and then relaxed the rest of my “Thursday”. Looking forward to a fresh start “Friday”!

Now I wait for ortho referral

JON

FAILURE IS ALWAYS AN OPTION!

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One of the things that the human race is scared of the most in their time on the planet is failure. This is a wholly justified feeling, as failure in certain things can feel absolutely devastating in our lives, especially if we’ve poured our blood, sweat and tears into something, only to find it in pieces on the ground when the day is done.

Failure is always a large and looming monster, especially if you are like myself and are of a creative persuasion. Failure in music, writing, poetry, painting, etc always seems to loom three steps behind us at all times. But as scary as those long shadows may be, many times we find our worries and fears about failure were transient. But still, the shadow follows us.

But five of the best words we could hear as people are: Failure is always an option.

Failure.

Is.

ALWAYS.

An.

Option.

I firmly believe that, while failure is a scary prospect in our lives, the presence of it is actually a good thing for us, as creatives and just as everyday people. And when I say this, I am NOT saying to root your expectations for a project or a relationship or a move or ANYTHING in failure, but rather to use the specter of failure to your advantage. Everyone who’s anyone has failed in their respective field many times, but in many cases, they did not become myopic after these. The failures they experienced instead only poured kerosene on the fire lit beneath them, and pushed them to grow, get better and move past what they had negatively experienced.

While I cannot speak for everyone and how they perceive failure in their own lives, I am of the belief that, when we completely remove the chance of failure in anything that we do, our work or craft will suffer. If we take a mental high-ground in our work and remove the option of failure and do nothing to keep the fire lit beneath us, we will become prone to indolence in our field, and any new ideas will be poisoned by the lack of failure. We will become creative sybarites, content to sit on our dead centers and become fat and lazy off of pleasure. Instead of neutering the chance of failure in our lives, we can instead leverage this idea of failure for our betterment, and to get a better head-start on any new project or idea we have.

As creatives and just as people in general, our lives are a constant and ever-evolving series of stratagems and gameplans for when those failures or setbacks manifest. Success and purpose equals pleasure in anything we do, and to wave the white flag of surrender and toss in the towel is tantamount to creative suicide, and starving ourselves of what every fiber of our being really desires. We must learn how to balance our reactions to failures and successes equally, so one reaction doesn’t get overtaken by the other, and sets us down a potentially dark path. While it’s human nature to mourn some on the loss of an opportunity, we must remember: For every door that closes, another will open. We must keep this mindset by our sides, if we are to continue to grow, change and evolve into the person we want to be!

I hope this blog finds you well, and in the comments, talk about a time where you leveraged failure into something that ultimately benefitted you or got you ahead in a facet of your life!

As always, take care, much love and may God richly bless,

-Jon

EM

SUNRISES AND NEW BEGINNINGS

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I’m fortunate to have an incredible support system, but in my darkest moments, I find myself alone. No one else can live in this body with me. Throughout the night, I’m here by myself, surrounded by darkness and pain. I’m sick, and I have to clean up my own vomit. It’s an unsettling reminder of the loneliness I battle despite the support around me.

Today was a challenging day, or rather, yesterday was. I have not slept, and time seems to be merging into a blur. It’s as if I’ve stepped into the Twilight Zone, where time doesn’t matter. However, reality hits, and I know I have to get up, get ready, and drive a teenager to field hockey practice in just two hours. So, yes, time indeed matters.

Despite the obstacles my body is putting in my path, I need to get on with my day and face it with a smile. Adding others to my misery only adds to the situation. I am happiest and more content when those who support me are living their best lives. I watch them view me through rose-tinted lenses, a view I’ve painted by pretending I’m okay. Those living with a chronic illness become skilled performers, some of the best actors and actresses you’ll ever meet. It’s a shame the Academy doesn’t give Spoonie Awards!

Yesterday was a day spent in intense pain. I managed to get up, take my medication, administer my injection, and take my granddaughter to get her ears pierced. I had to stop several times on the way home, the abdominal pain was merciless and unbearable. I contemplated going to the hospital, knowing full well, this was another blockage. Yet the thought of another exhausting and humiliating medical experience leaves me less than inclined to go. So, I suffer through the torment alone.

The several stops I made during my thirty-minute ride home, seemed futile. The Scleroderma dragon had awakened, wreaking havoc on my GI track’s ability to function. By now, it’s clear it’s another blockage. But did I go to the hospital? No, I did not. The thought of compounding my pain, stress, and overall agony by placing myself in a position to be judged by medical personnel who often treat me like a drug seeker, or time waster deterred me.

Then, having them humiliate me by being completely ignorant about it, like they’re teaching me a lesson or something.

“I’ve had far to many negative patient experiences to just, “go to the er”.

Advocating for myself isn’t new to me, but it’s an exhausting endeavor. The energy it takes to request they talk to my doctor or read through my chart before reentering my room is beyond me. Eventually, when they decide to heed my request, their demeanor shifts. Suddenly skepticism is replaced by compassion and belief. Now I’m declining multiple pain medications they initially assumed I was seeking. The irony is painful.

I shouldn’t have to endure humiliation before I’m treated humanely. So no, I did not go to the hospital. I returned home to suffer.

Within an hour of getting home, I began vomiting. Thankfully, my GI track decided to tediously do its job, and the pain did ease somewhat. The rest of the day, I continued to vomit and managed to navigate my sluggish intestines. Unfortunately, the vomiting triggered my reflux, and the dull headache from the Orencia injection kicked in around the same time. It was officially a full-on flare-up in this stubborn body.

Still, I did take my granddaughter for her piercing and her smiles added light to a dark day. My husband is on a camping trip, so I had to feed the animals and complete a few other necessary chores around the homestead. I even managed to get some online work done. Late evening rolled in, and I chatted with a group of friends online and cracked jokes. I don’t think anyone had an inkling of where I was physically or emotionally. Which I’m fine with because it gave me an escape from my current reality.

I’m writing this at 5 a.m. on Tuesday, as I start to see the light break through the night. I have come to the realization that this illness has taken something else from me, the joy and beauty in watching the sunrise. Because for me, sunrise means I haven’t slept again, the night is over, and people and animals are counting on me to do what I do. I fight, and I live my best life as painful, lonely, and difficult as it is sometimes. Because I know I only get this one life, and I want my legacy to be the joy I had for family, friends, and life. I absolutely do not want it to be, “She was always sick”.

“I’m doing everything in my power to be the person I want them to remember.”

One day this week, I’m going to plan a day to intentionally experience a sunrise. I want to truly absorb the beauty, and marvel at the miracle of life and new beginnings. I am tired of this disease constantly robbing me of experiences, I refuse to let it take another thing without putting up a fierce fight!

Huge shoutout to all who suffer in the darkness. Battle on, my fellow badass warriors.

I felt inspired…there you go JP, a Haiku.
JON

AM I HEALING, OR AM I DISTRACTED?

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Every single one of us has had rough times, moments or events in our lives that we don’t like to talk about too very often. It can be highly uncomfortable to face those prior markers, but sometimes, we cannot avoid them. In some cases, we do what we can to avoid them, but we often find ourselves repressing those things, pushing them deep down in our minds, souls and psyches. This causes them to build up over time, and if we are not careful, the consequences can be devastating in our lives, and it will leave us having to pick up the pieces at a most inopportune time.

Which begs the question: “Am I healing, or am I distracted?”

Pushing trauma, discord, disaster, dissent, etc down in our lives only pressurizes it, and sets the stage for it to explode from beneath us at a later point. And keeping ANYTHING inside of us is akin to trying to contain a lava flow. Any feeling, any emotion, anything we may need to say to someone, any problem or block in our lives that we need to face, we must be properly prepared to meet them all head-on. If we keep them locked inside, it will make like acid and eat us from the inside out at best, and be a ticking time bomb at worst, destined to destroy both ourselves and all those around us in its wake.

Running from what we feel or are experiencing inside is not the way to go, nor will keeping one’s self excessively busy or making one’s mind imbibed with food, alcohol, sex, etc to avoid problems or shut off emotions pay any dividends to any involved party, no matter what we tell ourselves, or the things we may say, do or achieve under those circumstances. Using busy work or excessive pleasure to avoid that openness is just as toxic and damaging to one’s self as bottling it up and doing nothing on the matter.

It can sometimes feel like a game of “pick your poison”. But what if I told you that you don’t have to pick a poison?

What if I told you there is a medicine to cure these ills?

What if I told you there are three of those medicines?!



Openness and honesty and communication is tantamount to air, water and blood in importance in our lives, and the more we open up about what we are going through, the more we can either kick the dirt of what’s burying us off and climb out of the hole that we found ourselves in, or sprout roots & grow from that dirt and make a whole new, beautiful, flowering life for ourselves in the wake of it all. And the choice can only come from a sincere place inside us; it cannot come from a bottle or a pill or a magazine or the mouth of another person, it has to come sincere from within ourselves. We have to want it bad enough!

Whatever you, the reader may be facing at this time, I sincerely hope you choose the path of openness and honesty and communication, no matter how hard it may be for you to do so. I know a lot of us struggle at times with opening up about our lives and what we’re going through and asking for help, and I completely understand why, but bottling up those feelings, emotions and words can only be a poison and not a medicine. I hope you choose the path of healing, openness and bravery to walk, and I hope to see you at the end of that path!



Thank you so much for taking some time to read this blog, and in the comments, detail something you’re afraid of facing in your own life, and what you might enact to help yourself overcome that fear, and get back on even ground in your life!

As always, take care, much love and may God richly bless

-Jon

EM

“LET’S TRY THIS”

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Those who know me well recognize that the length of time that has passed since my last blog post hints that my health hasn’t been great.

“In the fiery crucible of battling an incurable illness, she fearlessly harnesses the darkness, transforming it into fuel and igniting an unyielding spirit that blazes through life with an unwavering light that no healthy soul could ever hope to match.”

~Em Farwell

These past several months have been challenging. Trying to strike a balance between improving my quality of life, managing my symptoms, and dealing with disappointing test results has become an unexpected labyrinth that is stealing minutes from my life. Adjusting to medication changes has always been challenging for me, and it keeps adding to the torment.

It began when I contracted COVID back in December. The on-call doctor held back some of my medications while I was taking Paxlovid, but unfortunately, he didn’t withhold all the necessary ones, and it wreaked havoc on my lab results. Since then, it’s been a constant “let’s try this” game with my treatment plan, leaving me struggling with constantly changing side effects. It feels like I’m stuck on a hamster wheel; when one test improves, another one plummets.

During this time, I’ve had to tolerate changes in my medications and dosages, endure periods of isolation, watch my hair fall out, and witness my eyesight continue to decline. Adding to this jigsaw puzzle of torture, due to my medications & Sjögren’s, in just 6 months I went from having no cavities to having more than 10 cavities that I can’t afford to fix. It feels like an endless cycle of setbacks and obstacles that I am continuously struggling to overcome. All these physical changes and the thought of future ones (losing my hair, teeth, eyesight, etc.) take a huge toll on my mental health. I’m exhausted.

I am very grateful for my medical team. They’re putting in a major effort to help me through this time and to find solutions to improve my quality of life. Lately, I’ve started hearing phrases like “Hail Mary”, “last ditch effort”, “worth a shot,” and “running out of options” from my doctors, which leaves me with a sense of uncertainty.

The latest “out of the box” effort is to try biological therapy. The original thought was infusions; however, that would mean another monthly trip to Boston, which is 2 1/2 hours from my home. Instead, I will be giving myself weekly injections.

“with a biologic in the class of biologics known as selective costimulation modulators to target the cause of your inflammation and reduce the activity of your immune system”

I began the biologic last week. Thankfully, I’ve only experienced mild side effects. I did have bruising and tenderness at the injection site, along with chills after the injection and a lingering dull headache. Throughout the week, I’ve felt out of sorts, but I’m prepared to fight through adjusting to a new medication.

Finding balance and knowing if a medication is working for me can take months. Despite struggling with the thought of self-injecting, I keep reminding myself that I’m doing it with the hope that this will improve my current situation and lead to better days ahead!

Today was Week 2 of therapy. The actual process wasn’t any easier. I still hesitated and had to run through a whole gymnastic routine mentally before actually injecting the medication. But I did it, and I’m choosing to have faith in a positive outcome. I may be exhausted, but no one should be so brazen as to dare count me out!

JON

VICTORY LAP

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There are beautiful moments in our respective journeys that make us realize, “Wow. I’m glad I stuck around for this!” Last night was one of those nights. As I have documented in past blog posts, I am an avid race fan. If it has four wheels and goes fast, I’m either gonna watch it or be there for it. And I got the rare treat to visit the famed North Wilkesboro Speedway in the Brushy Mountains of North Carolina last evening as part of an open house they were doing before the racing commences next week. It was a beautiful night, full of memories, photos, activities, famous stars and great food. It was also the first time I had been back in the facility since last August, which coincides with my commencing writing blogs on this website. A lot has changed since then, both at the track and in the life of the person who is writing this blog. It’s been a great period of revival, renewal, change, growth, overcoming and trying. But now, I am in one of the best mindsets I have ever been in. And it’s time to take a victory lap. 🏁

The very first blog I wrote on this website was entitled “Moving At The Speed Of Life.” In this blog, I detailed my life and my journey, and how it was just getting started. Earlier in the month of August, I came the closest I had ever come to ending my own life. I found myself under immense and seemingly inescapable stress, I was dealing with loss and self-doubt and feelings of failure in my life, and I thought generally that I was going to go nowhere in my life, despite all of my best efforts. I had gone as far as to seriously consider the thoughts of suicide that were floating around in my mind at the time. I had even written notes, but had either threw them in the trash can or burned them. I thought my race had been run.

Simply put, I was in hell.

But over the span of the coming months, it was dear friends such as Renée Yaworsky, Diane Coll, Sandie Dee Ingrande and Just Another Badass Warrior founder Em Farwell that helped me chart a course. With great patience, diligence, love and kindness, they helped me lay out a game plan for my growth. They showed me that it was OK to take my foot off the accelerator and run my own race at my own pace, instead of trying to people-please and bury myself. They helped me gain resources and tools and tricks to overcome, they helped me find my therapist (shoutout to Elizabeth!), and they showed me that indeed, life is very much worth living. And without the help of those five women, nights like last night would not have been possible. I would have been in a much deeper, darker place.

Last night was my proof that life is worth living. I got to meet, talk to and shake hands with people I never dreamed I’d see anywhere but on television or on social media posts. I got to see and take pictures from viewpoints I never thought I’d get to see. I got to walk around my happy place for the first time in 13 years. And it was all thanks to five kind, sweet, decent, beautiful, loving and caring angels who made it possible. All the moments like last night, all the accolades I receive in my creative endeavors, all the heights I reach will be thanks to those five wonderful ladies mentioned above. ❤

I hope this blog finds you well, and in the comments, talk about something cool you have done recently!

As always, take care, much love and may God richly bless,

-Jon

EM

LOOK TO THE ENDGAME

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I do not cower to opposing views. I am not afraid of challenging my thoughts on different matters. What concerns me is the possibility of becoming close-minded and living in an echo chamber surrounded only by people who agree with me. It would be a stagnant and ignorant existence. Not conducive to personal growth or learning. It is crucial to surround myself with different people and ideas, even if it’s uncomfortable. Engaging people with opposing views can broaden my perspective and deepen my understanding.

You’re under no obligation to like everyone, forgive anyone, or tolerate hatred. Listening to opposing views is evidence of my desire for actual change on the topic. Finding common ground is essential for real, long-term change. As human beings, we all have thoughts and ideas shaped by our experiences and history. By listening, we can learn what’s in a person’s heart and get to why a person holds a particular view. Even if we cannot agree with their views, we can try to understand and see how they arrived at this opinion. Only then can we find a way to meet them where they are and attempt to make them understand our perspective. Or perhaps, we will discover that we are now unsure about our views and that it’s us who need to grow and change.

Don’t be afraid to challenge your views. The real weakness lies in being unwilling to listen. Every generation grows old and the young will challenge their views in the name of progress. Don’t get left behind because of pride. When you have a conversation with someone who has opposing views, listen, be patient, and be kind. No one has ever been insulted into an agreement. We can use what we learned to be the root of their views and take steps to change their perspective or, at the very least, find common ground to move forward on.

It is important to educate ourselves to understand why people believe what they do. The ultimate goal is to come together and solve problems. We often find that our end goal has some semblance of common ground if we listen. We can either dismiss hateful views and tell them to shove them up their ass, or we can make an effort to understand the reasons behind them and stop it at the cause.

I am not saying, we should tolerate hatred. I’m suggesting the solution isn’t to hate back. Rather, to put an end to it, we need to comprehend it. Once we grasp the reasons behind it, we can make a plan to educate others and work towards a solution. Resolving significant issues takes time, support, and education. Real change comes in the seeds we sow for the next generation. The truth is we may be banging our heads against a wall, with some people. But our efforts can impact future generations, and maybe they’ll embrace love over hate.

Love Not Hate

When it comes to dealing with hatred, our focus is often on the victim. We tell them to toughen up, ignore the negativity, and build self-esteem. This puts the responsibility on the victims to adapt and fit in better. Why not redirect our energy toward understanding what creates the hate? With this knowledge, we could create change at the roots & prevent it from happening. It seems more compassionate to support the victims and put those who hate, to work on becoming better people.

This is my chosen approach and I apply this to any issue where there are strong opposing views. I focus on the problem, get to the root, and hopefully find a solution. All while supporting the victims and growing, changing, and educating myself as well. Every one of us can play a part in making the world a better place if we would only listen. Look to the end game.

EM

DON’T INVITE THE BEARS

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Handling toxic situations can be challenging, and if we don’t approach them differently, we are setting ourselves up for failure. We will be doomed to live like salmon swimming upstream, expending energy and effort, only to make a few inches of progress. The difference is, the salmon don’t invite the bears to disrupt their momentum, to push them back to the starting line, or to pick them and their friends off one by one and eat them for lunch. Every time we allow a toxic person to disrupt our lives and force us to start again, it’s like inviting those bears to lunch.

Don’t invite the bears!

While toxic people are responsible for their actions, we are also responsible for what we allow in our lives. Although it’s understandable to accept apologies, if we continue to allow toxic people to stay and wait for them to change, it will poison the whole stream and cause innocent people to suffer. We bear some responsibility for the harm it brings to our journey. While the intentions are good, and some people love deeply and want everyone to be happy and thriving, continually living with toxicity while hoping things will change will never bring peace.

Everyone handles personal boundaries differently. Some have no boundaries and take on the burden again and again, some allow those lines to blur depending on the person crossing them, and some fiercely enforce their boundaries and protect their peace. There are even people who invite the bear to lunch, and we’ve all had toxic people slip through our radar. In these moments, it’s often not the toxic person paying the price and being given a chance to grow and learn, it’s innocent people, good people, suffering again and again. We have to see these moments as opportunities to learn and strengthen our boundaries.

Not everyone who is toxic is evil or cold-hearted; many believe they are coming from a place of love. Often, it’s a learned behavior or a response to trauma. We’ve all exhibited toxic behavior at some point in our lives, but the difference is, we learned from our failures and grew from the experience. We must be willing to force the hand of those who are harming themselves and others, even if it means letting them go to create space for growth. Sometimes it’s necessary to break the toxic cycle and prevent them from stealing joy and energy from those around them. As a friend, I won’t blindly support everything you say you want on this journey. I’ll always meet you where you’re at, but I expect the same in return. It’s essential to expect what someone is capable of and not accept anything less. We must love someone enough to challenge them and push them to grow, even if it’s uncomfortable in the moment.

If you want a friend who won’t be honest when you’re hurting yourself, me, or others, I’m not her. But if you want a friend who will fiercely support all of your efforts to become the person you want to be, sign me up.

JON

DEAR MOM

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February 18. The day will never not send a chill up my spine, when I think of what happened on this day, 19 years ago. I have told the story of what happened that day in blogs prior, so I will spare it from being repeated, but there are some things on days like this that qualify for repetition. And so, I will repeat a letter that I included in one of those past blogs. It is a motherly variation of a letter that Paul Harvey recited on a broadcast nearly 30 years ago, a letter than was originally shared by a fellow named Dr. Jack Schreiber of Canfield, Ohio, on the occasion of Father’s Day. A few years back, I decided to take what Dr. Schreiber had written, and translate it to someone who has lost their mother. Although I do not have children of my own, and though my mother has not been gone as long as what is in this letter, it nevertheless resonates soundly with me, and, if you struggle with the loss of your mother, may you find some comfort in this letter as well. From here onward, I will be quoting.

Dear Mom,

I am writing this to you, even though you have been dead for 30 years. Whether you can read these lines, perhaps you can read my thoughts. But there is still some things I need to say, even if it’s too late.

Now that my own hair is gray, I remember how yours got that way. I was such an ass, mom……..Foolishly believing in my own teenage wisdom, when I know now I would have benefitted most from the calm, right, wholesome wisdom of yours.

Most of all, now that I have children of my own, I want to confess my greatest sin against you: The feeling I had, for which you did not understand. Though when I look back now, I know that you did understand. You understood me better than I did my own self……How patient you were, and how futile your efforts to get close to me, to win my confidence, to be my guardian angel were. I wouldn’t let you. I simply wouldn’t let you. What was it that held me aloof? I’m not sure, but despite my best efforts, my own children had to build the same wall between them and I. And there’s no way I can climb over it or go through it, and what a shame, what a waste.

I wish you were here now, across this table from me. There’d be no wall now. We’d both understand, now. And God, mom, how I do love you, and how I dearly wish I could be your companion again. Well…….maybe that day isn’t far off. I’m guessing you’ll be there, waiting to take me by the hand and lead me up the further slope. I’ll put in the first thousand years or so, making you realize that not one pang of yearning, not one morsel of thought, not one second of worry you spent on me was wasted, it all came back, and it all paid off eventually.

I know that the richest, most precious thing on earth and one of the least understood things is that mighty love and tenderness and that everlasting craving to help that a mother feel toward her little ones. But none of her children can realize this until the roles are reversed. Even now, mom, I’m tired, weak and longing, and would hasten to join up there in the Great Beyond, except for my children…….They’re all fine, sweet, caring and upstanding young ones, all very capable, self-sufficient, highly talented and loving toward all. But, mom, I reckon I’ll stand by a little longer, to help them along, and to watch them shoot for the moon and land among the stars, and to be there for them, if they ever need me. You understand.

Signed,

Your loving child

THRIVE TO SURVIVE

THRIVE TO SURVIVE #1: AN INTERVIEW WITH RENEE YAWORSKY

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Hello all! Welcome to the first installment of Thrive To Survive! This is a very special blog/interview series where I, Jon Phipps, will sit down with some of my closest contemporaries to discuss with them how they overcame various physical & mental hurdles in their journey, or overcame obstacles outside of that realm! I couldn’t have picked a better guest of honor for this maiden voyage of TTS…….I had the thrill of sitting down and chatting with my best friend and closest co-creator, the inimitable Renee Yaworsky!

Renee is the embodiment of the words strength, kindness, fearlessness, love, compassion, friendship, beauty, care and inspiration. A native of New York and a long-time resident of the Peach State of Georgia, Renee has been involved with many different things over the span of her life, including law and prison work, modeling, acting, being a singer/songwriter, poet and novelist-all while valiantly and bravely battling health issues, namely lupus and seizures. Says Renee of first finding out about and subsequently tackling these issues in her life:

“I was 18, I was on Grady Avenue in Athens, Georgia and had a typical Athens night. We were swimming, and doing band rehearsal and was up most of the night and really having a great time, and when we fell asleep in the morning after being up all night, I did not wake up. And so luckily, one of my friends who was there tried to wake me up and was confused that he couldn’t, so he called my other friend and got on the phone with 911, and my other friend, my girl-friend was there with me and they were able to wake me up. The paramedics told me my heart had stopped and that they were gonna take me to the hospital. I said, I don’t want to go to the hospital and they said, well we’re taking you anyways. So they took me to St. Mary’s and determined that was the beginning of the understanding of the fact that I was going to have something going on with me, and I didn’t realize what it was. In fact, the initial doctors were reticent to call it a seizure.…….And then I came back up to New York and I was lucky, I was able to be seen by a cardiologist, a very, very good one, and he checked out my heart. And then I started seeing neurologists back in Georgia and they just, you know, called it seizures. At some point, they started saying seizures because they gave me EGS tests, and I was showing seizure activity. But actually after that moment, I didn’t have that many Grand Mal seizures. The Grand Mal seizures is like that when you’re losing consciousness. I’ve only had about two of those, maybe three In my entire life. Typically, my seizures that I had for the next six years, which I had almost every minute of every day were Complex Partial, I think they’re called. It’s been a long time, so some of my terminology might be wrong, but I was medicated and the medicine I don’t remember ever helping that much. I essentially had seizure activity 24 hours a day for about 6.5 years and that limited my ability. Even though I wasn’t losing consciousness, it affected my sense of self, the way I saw the world, what I was able to do, what I was not able to do. I sometimes would have to stay home because the lights outside could make it worse, fluorescent lights made it worse, sunlight could make it worse, But I didn’t get a lupus diagnosis until about 12 years later, and that’s disappointing because I had all of the symptoms. But for whatever reason, even though I was under a neurologist’s care, they never connected those dots.”

Despite the darkness and uncertainty, Renee nevertheless found a cure for the seizures she was suffering, and it was nothing short of a miracle. Renee portrays the scene when she found this miracle cure:

“It must have been 2005. I had trouble traveling, although I tried to travel as much as I could. I often was canceling trips because if the seizure activity was particularly bad, I wouldn’t even be able to leave the house. In 2005, my mother wanted me to come up for part of the summer, and I was able to make it up there. And when we got there, she mentioned that there was a shrine to St. René Goupil, which was not close, but in Upstate New York. It would have been a day trip. And I said, ‘that’s so weird because my name is Renee!’ I said, ‘how did I not know? I’m a Catholic! How did I not know that? I had a saint named after me that has a shrine right near where I grew up!’ She said, “I don’t know.” And we went there, and we toured the grounds, and it’s a lovely, lovely place. It’s out where the Mohawks were. There’s a lot of Native American history there, and a lot of museums, and it’s beautiful countryside.

I was having my general seizure activities, and the sun used to really adversely affect me. That’s a symptom of lupus, and it also can make certain seizures worse if you have that photosensitivity. And it was a hot day. And she went back to the parking lot and I said, “well, I’m gonna linger down near the river a little longer.” I had no plans, no hopes, nothing. I was just by myself and I for some reason bent down and put my hand in the water of the stream, a tributary from the river, which is where the body of St. René had been martyred. And it was once, it was maybe 3 seconds. I just put my hand in the water and I blessed my forehead and I said, “St. René, take away my seizures.” And I had never prayed for my seizures to leave me. I had never given them any conscious thought. I tried to ignore them. And instantly, my seizures were gone. The whole world looked different. The sun was different. And it was just…..gone. And I walked back up to the car, I didn’t mention it to my mother, but I knew I was totally cured and I never once had another seizure. I went off of medicine, I went to law school, my whole life totally changed.“



As mentioned before, Renee has been involved with many different things, but one of her foremost passions earlier in her life was acting. Having taken acting classes at various points since the age of 2, she developed a brawny love of the stage, but a very serious incident made her steer away from acting. Renee recounts this event:

“I’ve been acting my whole life, but I always stayed away from screen because I felt it would be safer, and I love theater. I love the stomps on the stage, I love seeing the audience, I love memorizing the lines and I became a stage actress and that seemed safer to me. Fast forward to about 2007 or 2008, I was in with the acting troupe in Athens, Georgia, and they had a mass shooting there at a function that I was supposed to be at, that I overslept. That was when I made the decision to go to law school and to not continue my acting. So if you fast forward till now, you might understand when people who don’t know me when people who don’t know me think I’m looking for attention, or, “oh, you think you’re so beautiful, you want people to look at you,” they don’t understand how much of my life was spent trying to get people to stop looking at me and for various reasons, and when the mass murder happened, it was very, very intimate and very close, both in proximity to where I literally, physically was and then also emotionally where I was. I did not want anything to do with entertainment again. I only came back to entertainment at all in 2020 during quarantine, but sure that I was going to focus on writing and law, and I absolutely did not want to go back into modeling. I did not want to go back into any sort of public activism and certainly not anything entertainment, nothing with acting, nothing with music.”

Nonetheless, Renee powered forward and dove headlong back into the creative realms of acting, modeling, music and writing. As mentioned before, acting & especially modeling are just one part of Renee’s MO. Through her work in these fields, she inspires and encourages scores of others to find their inner & outer beauty and embrace it, not just for one time only, but throughout the rest of their lives. And Renee is truly a shining beacon of hope for those looking for inspiration, or for those just on a journey to love themselves and accept themselves for who they truly are, not for what society wants them to be. Renee herself talks about the long road it took to overcoming food addictions and to love the skin you’re in, no matter how long it may take:

“I never had an eating disorder, but when I had a fainting spell in my teen years, I was grossly underweight and I did spend many years of my childhood with doctors, you know, monitoring me for bulimia or anorexia. That’s not what was happening. I was eating everything in sight when I was free, but I was highly active and I had a bit of an insecurity about being so underweight. When I was hospitalized for the fainting spell, I weighed 94 lbs. It was quite shocking that that’s why I was hospitalized. There was concern about that, but it wasn’t deliberate. In fact, I would buy these powders and stuff and try to gain weight. It’s what I really wanted. But I was riding horses competitively, so I was active. I was also playing basketball, I was playing tennis, and then I was in a touring rock band while at the same time as starting college at age 16, and I was also running an N.G.O. I ran a nonprofit that I started. I was doing all of that and I was so young, and I just loved it. My mother was so concerned about me because she said, “you’re not eating, you’re not sleeping.” And I’m like, ‘yeah, but I’m so happy.'”

With the modeling & acting work, plus current music endeavors and past activism considered, Renee is no stranger to being in the spotlight. And while this has been a mostly pleasant experience for her, Renee, like any other who is consistently in the limelight, has had to deal with more than her share of catty comments, hurtful messages, situations gone awry, and in some cases, even stalkers and people spying on her. Renee describes what this is like, and what she has done to overcome it:

“It’s disappointing, certainly, because I do havefearful things that I wouldn’t have otherwise. I would say that I was exposed to it early, to the point where now I don’t know any other way. I started my my anti death penalty work when I was 14. And the band I was in became really popular when I was about 15, and so between prisoner issues, prisoners or people from the activist world who maybe didn’t agree with me between that, and then the fans for the band……..I was a drummer. I was the drummer, but I was the only girl. So although I was not getting the level of attention that the front man was getting, I was getting the boy attention because I was the girl. And this is certainly pre social media, but the internet existed. I think we had AOL chatrooms, it wasn’t like what it was now, and it never occurred to me that that could exist. The technology wasn’t popular. So when I was 14 starting this, this anti death penalty work, it never occurred to me that I would be able to be tracked down or my family would be able to be tracked down by prisoners or families of victims or families of prisoners or gangs, it never occurred to me because the internet didn’t exist like that. We were primarily still doing things over snail mail. I created an alias, I had a a pseudonym and I had an activist alias, and I felt like that would be enough. I had no idea what was coming in the years to come with that. Now anybody can find anything. The rock and roll business of it was a little different. I felt very safe because most of our fans of course were like teenage boys our age. I remember our school would have events, we had interviews coming out in the papers and they would put us outside and we would autograph everybody’s copy and things like that. Certainly, there was a lot of attention on the band, but again, because there wasn’t social media and all that. One of the funny things that would happen is many times the band and I would be out in normal places, the mall or a carnival and we would see fans wearing our t-shirts and they wouldn’t recognize us because they had never been to a show, They heard our cassette tape or something, they were fans of ours, but they didn’t know what we looked like. There were fans that came to my house, there were fans that came to my mother’s place of work. There were fans that called us at all hours of the day and night, but they tended to be well meaning and I didn’t fear them, but it did make me very cautious.”

To say life for Renee has been ridges and valleys would be an understatement. But through it all, she has never lost her smile, her passion, her drive, and her compassion and love and kindness toward others. She is someone we all aspire to have as a friend and a cheerleader in our lives. I speak for myself when I say that having the gift of Renee’s friendship has benefitted me and change my life in ways I’m sure I don’t yet know. Add to that the fact that we both have a common goal for ourselves in terms of paths forward and creative ideas, and it’s a friendship that is rivaled by few and duplicated by none. Renee is the definition of taking the high road. When asked about how she would like to be remembered when her times comes, she said:

“I would like to be remembered as somebody who truly showed that you can suffer in your life, and shine a light instead of bringing more darkness into this world, and to be known as a bridge builder and a peacemaker. I think peacemaking and bridge building are things that came naturally to me because I have a duality in my nature. I’m that textbook Gemini, I really do see things from different points of view. When somebody is arguing with me, I always see it from their point of view. I can see it from their point of view as they’re describing to me how unhappy they are with me, and I can jump aboard. I really see things from both points of view. And when you do that, you become a diplomat, you become a leader, a coordinator and organizer. And at the end of the day, you’re becoming a peacemaker. You’re sitting down with someone who might have done something horrible to another human being and you’re finding some common ground there with those people. And that to me is the most important thing, because if we don’t have peace, we don’t have freedom. And if we don’t have freedom, we can’t have happiness. More than 51% of my time as an adolescent teenager and young adult were spent listening to older people talk about their journeys, telling me things and I got to sift through what I believed in, what I didn’t believe. But I was listening. I was acquiring that knowledge. I don’t always have an opinion, and that’s the part of peacemaking, when you’re constantly jumping to conclusions without all the data, you’re constantly, stubbornly clinging to what you believe is fact. Even when different facts are presented to you, with that type of rigid personality, it’s very hard to progress, and it’s very hard to build peace because the more that you’re segregating people and telling them how different they are and how horrible one side is and how great the other side is, all you’re doing is limiting truth and you’re you’re not allowing the person you disagree with to ever progress in their own journey. So hopefully, I will be remembered as a peacemaker. You can’t make everyone happy all the time, but at least that’s my ambition, and I think that’s what I was doing even at nine years old with my animal rights. I was trying to build peace even back then. I think that’s been the theme of my life.”

I want to thank Renee for taking some time from her busy schedule to sit down with me and be interviewed, and I want to thank you, the reader for taking some time from your busy schedule to read this first installment of Thrive To Survive through to the end! without you, none of this is possible! Thank you all again, and until next time, take care, much love and may God richly bless!

-Jon

EM

WE ARE THE DREAMERS

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I remember the exact moment I realized I had matured into a responsible adult. It was the day something didn’t go the way I wanted it to and instead of saying, “why is this happening to me”, I thought, “what did I do to create this outcome”. Somehow, life became easier after this revelation!

Unfortunately, the biggest obstacle in my life I did not create and I can not fix. Scleroderma is the beast I can not outsmart or outrun. It’s there, it’ll always be there. Every once in a while, I just want to curl up in a ball and shut out the entire world. But then I get discouraged and angry that I’m wasting precious time. The older I get, the more I realize how every minute matters. I don’t want to curl up in a ball, close my eyes and wake up having missed years of my life.

The lesson I’ve learned from being chronically ill is that everything matters. My lust for normalcy is insatiable. I want to get up, shower, drink coffee, whine about going to work, drive to work while bitching about traffic, survive my day to come home, make dinner and whine about doing it all again tomorrow. But my reality leaves no time for normal things.

On top of the desire to find balance in a world made for the healthy, I also want to do everything, see everything, meet everyone, and I want to experience all of the goodness in the world. Again, my reality leaves little time for all of these things. I can not tell you how many people have told me to “just do it”, go on that trip, and do all the things my heart is set on, while I still can. But I’m here to tell you that not everyone has the financial means or the health to be that person on TikTok traveling the world crossing things off their bucket list. I’m not hating, I say do all the things if you have the means. It’s just not possible for a majority of the disabled community. Whether it be a physical or mental disability, we live day by day with constantly changing medical needs and paycheck to paycheck trying to pay for those needs. We barely have time to write a bucket list, never-mind live it!

The other side of this is the people who, with negative intentions, have told me to shrink my dreams, to accept I’ll never have a normal life and move on, to adjust my life plans, and to just give in to my new reality. I’ve even had people tell me to just stop fighting the inevitable. What the…This one is probably the most painful and infuriating. When someone says this, I hear, “You’re inconveniencing my life and I need you to just be a good little patient”.

If you get nothing else from this blog, please read this and burn it in your brain. When we dream it’s with some semblance that these things are possible. Hope gets us through our darkest days. It drives us to push & never give up. Possibilities, goals, small triumphs, and even the hard work it takes to see a dream come true, are all burned as fuel to carry on. We savor the thought that the pain may end, that tomorrow will be better, that a cure may be found, and that our dreams will come true. Please don’t take that from us.

Yes, having a permanent and incurable illness means you will have to learn to navigate all the changes and hindrances that come with the diagnosis. But it does not leave a person less intelligent, damaged, incapable, irrelevant, unable to make their own choices, less worthy of friendship or love, and they, sure as hell, are not weak. An illness doesn’t make someone less of a friend. It doesn’t make them less fun or leave them not needing fun & excitement in their life. It doesn’t make them a burden, and it is not a free pass to steal their passions, hopes, and dreams.

I will not climb into my bed and be a good little patient. Sorry if this inconveniences some people & makes “their” life more difficult. But we all have the choice to be in someone’s life or not and love should be unconditional. If you see me as a burden, find a better patient, it’s not me. Unless you have a degree and can put Dr. before your name, I am not your patient. Do not cast shade on my hope. It would be better if you just walked away. It would be your loss. Because I am a fierce & loyal friend and you will never find a more welcoming & loving group than my circle.

Lucky for me, I’m a stubborn bitch who loves learning, life & people. I will not cower, I will not succumb, I will not have my life stolen by Scleroderma. Even on a bad day, I will accomplish something. Sometimes it’s a huge thing & sometimes it’s small. But to me it’s everything. I’ll continue to visit loved ones, make people smile, create, talk, study, practice, help others, make new friends, dream, hope, love, laugh, and fight until I take my last breath. I will not let the lack of money, resources, or bad health keep me from dreaming about doing all the things I want to do in this world. Will I do it all? Probably not. Will I die trying? Absolutely! 

Here’s to the warriors and all who know your worth and willingly step out into the world and share your journey. Keep hoping, fighting, surviving, and thriving, for we are the dreamers & we will not let anyone take that from us.

THRIVE TO SURVIVE

INTRODUCTION

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Hello! Welcome to Thrive To Survive! This is a special side-project that will tie into Just Another Badass Warrior, a blog & interview series taking a look at how folks have overcome the various obstacles presented in their lives, whether they be physical or mental. Your host, Jon Phipps, will take an in-depth look into the stories of those he interviews, while also finding out the pathways to the light at the end of the tunnel for his guests, while seeking the same for himself. May you derive hope, inspiration and clarity from this blog!

JON

LEARNING TO SMILE ALL OVER AGAIN

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Happy New Year, one & all! I hope that 2023 has gotten off to a wonderful start for you! Most of us tend to make resolutions when the new year rolls around, some of them minute in stature, others towering over us like skyscrapers. Some are easier to adhere to and follow than others, but all of them carries weight in our lives, no matter how large or small they may be. We all want to see in-person that friend we made over the pandemic, or to go to that city, state or country we’ve always wanted to go to, or to dye our hair that color that would catch everyone’s eye. But what if we did something in the new year that cost nothing, did not require a gym membership or association admission, or did not even require approval from others?

What if we learned to smile again?

2022 was a hard year for a lot of us. Whether it came from events in the noisy news cycle, or events that happened in our own personal lives, or events that happened to others close to us in our lives, 2022 was a very draining and taxing year. Mental and emotional hardships. The projects or opportunities that just slipped through our fingers. The loss of a loved one or a beloved pet. 2022 threw plenty of ways to snatch our happiness and joy at us, and in some cases, it did steal those precious things away. To say nothing of what the last 3 years has done to the world as a whole, with the pandemic considered.

But what if I told you that we’re on a mission to get those things back?

A big resolution for 2023 is to learn how to smile again. 2023 is the year that happiness grows and re-re-regrows in our lives. With the sureness of a rose in the springtime, we will all find our way back to happiness this year. This is your call to manifest it! Cultivate your soul and make it into a garden of peace, love, joy and great happiness! Planting season in just around the corner in our lives; take advantage! This is the perfect time to rid ourselves of the reeds and weeds that was the happenings in 2022; in 2023, we will strive to toss the bad news and the noisy news and the discord and disaster and dissent into the wastebasket, and hold our heads high and look forward with clear eyes to the future! The future is eight months pregnant, and tomorrow has ALWAYS been better than today! Optimism, self-love, self-care, taking bold but calculated chances, speaking out, reaching out and loving others more will take root and flower in our lives in 2023. Gone will be the choking vines and weeds and invasive species of self-doubt, abandoning ourselves and our needs, timidness, fear, people-pleasing, attachments, conformation and self-flagellation. 2023 is our year, brothers and sisters. Let’s grab this thing by the horns and make it ours and MANIFEST all that we deserve!

I hope this blog finds you well, and in the comments, please list some ways you aim at keeping to our resolution of learning to smile again!

As always, take care, much love and may God richly bless

-Jon


JON

RIDGES & VALLEYS

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As 2022 draws to a close, I catch myself reflecting back on the year that was in this wild ride we call life. And it much resembles my beloved Appalachian Mountains: Lots of ridges, but a whole lot of valleys as well. Creatively, I summited several ridges, and was able to drink in the views from them. I was able to do things this year that most could only dream of doing. I got to interview several people I look up to across many aspects, I got to organize virtual festivals and fundraisers to help out several dear friends, I got to be witness to and have directing abilities over many wonderful, inspirational, eye-opening and moving shows this year. I scored one-third of my all-time front page selections on the poetry site I frequent this year, and furthermore submitted one of my poems for publication in an actual hard-copy book.

Outside of the creative realm, I was able to spend more time with beloved friends this year, including helping one move to this wonderful Tar Heel State. I also got to visit places I had not been to since I was a child, namely Nashville and surrounding environs. I got to attend multiple racing events this year at an array of historic tracks here in North Carolina, including Charlotte Motor Speedway, Hickory Speedway and the famed North Wilkesboro Speedway. I was able to find deeper love, meaning, kindness and care in the friendships I have already cultivated, and was able also to make several new friendships this year, both in my personal life and in my life online. I was also able to find several online communities that catered to the things I love, like auto racing, radio & television history, true crime and more! And not to mention, I finally found a new feline friend in Vidalia!



But also in the span of this 365-page book we called 2022, I fell to the valley floor several times. I let emotions and feelings get in my way on multiple occasions, which led to many worry-filled & sleepless nights this year, as my mind played out wildly unrealistic scenarios and events. I let the “red mist” overcome me on several occasions, and it resulted in me becoming a hassle to work with, and in some cases to be friends with. I found myself unable to take my foot off the throttle and give myself a break & a chance to get my head in a proper place, which resulted in me very nearly ending my life back in August. I lashed out at friends and co-creators when they didn’t deserve it, and when the situation I was mired in was nothing more than my mind feeding me lies and tall tales about those people. Above all, I put my own self on the back burner for the sake of those around me in my life. I thought I could be the knight in shining armor, rushing in at the last instant to protect them from themselves, when all I was doing was tripping over my feet and faceplanting into the mud.

But after every valley floor comes another ridge to climb. I started therapy in November of this year, and I am very much looking forward to scaling this ridge in front of me, and to take in the sweet, unobstructed view from high atop it. It’s going to be a hell of a mountain to climb, but now being equipped with the right tools for such a task, I feel I can fly to the top of it, or better still, take that mountain and move it outright! With the help of great friends, a wonderful therapist, and readers like you, I can do no wrong in this ever-evolving journey ahead! Not every part of this leg of the journey will be easy, but I feel a lot more confident about than I did a year ago, a month ago, even just one minute ago! And I hope you all will stick with me on this journey ❤

I hope this blog finds you well, and in the comments, mention some of the ridges and valley you have experienced in the year 2022!

As always, take care, much love, and may God richly bless,

-Jon

EM

THEN IT HIT OUR HOUSE

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I challenged myself during the Mental Health Campaign to being more honest about my health journey. I’m holding myself to this commitment.

I love the holidays. It’s the perfect time to share smiles and lift others when life is weighing heavy on them. A chance to end the year with love & hope. I’m that person who decorates right after Thanksgiving. I send out hundreds of Christmas cards. I make dozens of random personal gifts for those who make my life better, in ways they may not even comprehend. I hide gifts around town & make baskets for the fire department, town hall, post office & animal shelter, to lift our communities spirit & say thank you. I pay attention all year & try to make or purchase gifts I know people want or need. But this year is kicking my ass & although I managed to get a few things done, it’s taking all I have. Every day I get slower & struggle more to get simple things completed. Christmas will look much different this year.

It’s the little victories that make me smile.

I’ve been going through it with my Scleroderma for the last few months. It’s raging again & it’s been difficult emotionally & physically. I’m undergoing treatments that come with side effects that amplify all of the negatives that come with a chronic illness. My jaw is destabilizing again and my teeth will take a lot of work to save. I’m losing my hair from the treatments & will soon have to just shave it off. The worst is knowing my brain fog has made me forgetful & I know I’ve let people down. It’s been damn hard. It wouldn’t be half as bad if my husband wasn’t battling health issues this year, as well. His doctors don’t want him working. They tell us he’s risking major damage to his body, and that one wrong move could be catastrophic. So we are sitting in a holding pattern financially. We sit at the mercy of his doctors deciding what surgery is next. He’s doing what he can to work, despite the warnings. Bills don’t care if you’re unhealthy.

Not everyone can afford to be sick.
That is just reality in America.

It’s one thing to be chronically ill & another thing to add in financial struggles. It’s astronomical the cost of survival. I’ve said it again & again, it does not matter how much you make, save or plan, we are all one illness away from financial disaster. On top of it all, this is one of the worst years for everyone financially. Heating, electricity, food, fuel, everything is more expensive right now & increasing regularly. Despite the negatives, we are fighting to have a great holiday & to share it with all we care about. Then it hit our house, Covid.

David tested positive first and was put on Covid meds the same day. We have to be aware and cautious of any lung or breathing issues with him. For those who don’t know he had lung cancer & a bacterial infection that resulted in the partial removal of one of his lungs. Both of his lungs have damage and it would be hard for his body to fight Covid if it settles in his lungs. I believe the meds are helping control his symptoms. He seems to be in a holding pattern, with no changes for the worse or better. He’s still battling but he’s remaining stable.

I tested positive late Friday night. Leave it to me to find out on the weekend and while there’s a major storm hitting us. I managed to get a hold of my doctor’s on-call service Saturday morning. It took hours and numerous calls back and forth between me, my PCP office, my doctor’s offices in Boston & the pharmacist. Finally, they had a plan. They called in some medications, changed the dosage on a few of my medications & held some of my regular medications. It was a whole process but I started the Covid meds Saturday night. I’m miserable. I’m trying to get up and move around as much as possible. It’s been a cycle of getting up and doing one or two small tasks & then I have to lie down again. My pain is maxed out & making it difficult to do the simplest things. I have slept more in the last few days than I have in decades. My normal nausea is increased, I’m experiencing excruciating muscle cramps & I feel like I have the worst cold, I’ve ever experienced. I’m hoping today improves with the medication. The doctors warned me that the side effects may be difficult and I may need to stop the medication.

I don’t know if Covid is ready.

Still, I carry on. Friday I did get some random gifts sent out to thank people who make me smile & I know don’t always get the appreciation they deserve. It took me all day yesterday, but I did get our tiny 4’ tree up & decorated. Today I will try and work on some gifts. It’s not looking like we will be having Christmas with our families on Christmas Eve as we planned. We realize we can not financially buy gifts right now, but we will make some amazing personalized gifts & bake some family favorites as soon as we test negative. We will not skip Christmas, just delay it if necessary to keep us all safe and strong.

I’m stubborn and refuse to change how I feel about the holidays and how I reflect on the end of another year. As usual, I will use my energy to make others smile. That will fuel my healing until I can find my smile again. So although we won’t be able to do all the things we normally do this time of year, we will still create a magical Christmas.

Today I may feel awful physically & under stress trying to figure out how we will pay for basic expenses & my treatments. But I continue to look forward to a healthier & prosperous New Year for everyone. I pray that Covid will not continue to be such a destructive force in the world. I will work hard to improve myself so I can bless others. I will continue to send smile mail & volunteer when I can. I will give freely my time & energy to those I care about & those who make me smile. Although I may be down hard right now, I choose to believe this too shall pass.

Happy holidays to all, for whatever holidays you celebrate. If you choose not to celebrate then happy end of the year! Be kind to yourself & others. In the worst of times there is always hope, love hard, & pray harder. I am so grateful for you & I love you ❤️

JON

TO MY BEST FRIEND

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To my best friend,

I am sincerely grateful for the gifts of your friendship, care, lovingkindness, patience, grace and encouragement. You and I have rode out many a dark time together in our time of friendship, but have had many beautiful days as well, and not a second of this would I trade. You love me when I can’t love myself. You offer me a torch when I am going through the dark wilderness of my mind, and a life raft when I am drowning in the oceans of emotions. You and your unique kind of full-service friendship is so welcome in my life, and to have had it now for two full years is a blessing wrapped in a miracle.

I know I’ve not been the easiest to deal with. I have fucked up many times. I have given you ten thousand reasons to leave me dry. We’ve clashed on many things. But you always take the high road, and are always willing to work things out and listen and hammer out a solution for those issues. I am so grateful you have a long fuse with me, and your patience is worth its weight in gold. I know I worry a lot about you, and I know you wish I wouldn’t worry so much, but you are my dearest friend, my closest confidant and one of the most valuable assets in my life. To win the friendship of someone like you is to catch lightning in a bottle, and I will forever cherish this.

I am so thankful to have a creative partner like you in my life! We’ve done so much together, and have both climbed and moved mountains together! I cannot wait to see what the future holds for us creatively, whether it be in music, television, poetry or book writing, or even something beyond those! I am so proud of you and us and the work that we have done together and apart, but the best is yet to come! Memory lane is in the headlights, and I cannot wait to experience it all with you! Thank you for taking a chance on me over a year and a half ago, and trusting and encouraging me in these endeavors. I hope I’ve been a good leader, and have set a good example for all ❤

Without you, I wouldn’t have so many things. I wouldn’t have been able to create an online network with a wide-ranging variety of programs. I wouldn’t have been able to find the courage to send a writing of mine off for publication. I wouldn’t have been able to find my voice as a musician and songwriter. I wouldn’t have took the time to re-sharpen my skills as a poet. I wouldn’t know all the wonderful people I have come to know over the last two years. I am blessed beyond any possible explanation. You came into my life and completely changed it for the better, and more than that, you have helped me change and grow, and have helped me heal and move past the scars that I thought would define me. You are a saving grace.

I am so thankful you hold my hand when times get rough. I’ve been through so many changes over the past weeks and months, and it’s been hell. But you have stayed by my side through it all. Even though you don’t experience the things I go through, I so love, admire, respect and cherish your willingness to learn, to offer help, and just to be my shoulder to cry on. And I pray I’ve been this for you, when you face challenges and hurdles in your own life. I am so grateful we have experienced both the ridges and the valleys together.

My dearest friend, you are red-on-a-rose beautiful, sharp as a tack, strong as steel and sweet as love. I’ve seen you overcome so many things, and don’t think for one minute that I’ve not been watching! You are leading me and showing me how to overcome the hurdles that appear in my own life, and I would be forever lost if not for your guidance. You wield great power inside you, and to watch you harness it and use it for the greater good is so wonderful, so beautiful, so inspiring and so amazing. You are changing, touching and molding so many lives right now, and your impact will be measured in terms of decades and centuries. I will forever be so proud and so blessed to know you, and to have you as my best and closest friend ❤

To Renee, you are my sunshine, and you are an angel. I am so thankful for our friendship, and I cannot wait to see what the future holds for the both of us, as friends and creative partners! Thank you for taking me under your wing and teaching me so much. You are the best, and I love you ❤

I hope this blog finds you well, and in the comments, please talk about your best friend on this side of life!

As always, take care, much love, and may God richly bless,

-Jon