I had to take a trip to Boston for an appointment on Friday. I went with my Mom & two of my granddaughters… girls trip!Continue reading MY MOMENTS MAY NOT BE EASY, BUT MY MEMORIES WILL BE BEAUTIFUL
Come on in, take a seat. I’ll tell you, what happened when my caretaker got sick.Continue reading WHAT HAPPENS WHEN YOUR CAREGIVER GETS SICK
I decided that my body is not making the rules this year! I’m creating a list of things I can do even on those days where I can’t even get out of bed.Continue reading BRAIN OVER BODY
I have spent a lot of time thinking about my life, time & choices, since I became sick. But this year with the pandemic and David’s health scare, I realized that I’m not the only one who’s “somedays” are limited. None of us know how many “somedays” we have left. The time has come. Someday is today.Continue reading SOMEDAY IS TODAY
We talk a lot about being grateful, thankful, blessed, positive, and many other things that pertain to how “we” feel. I realized this morning that try as I may, I don’t always let the people who create these feelings in me, know how much they mean to me.
I truly appreciate every minute someone takes time out of their life to think of me. It could be a call, message, card, a joke, anything that makes me forget for one second what I’m dealing with at that moment.
My life would be a million times harder if it wasn’t for the people in my life who make me smile. Smiling is the best, laughter is even better.
For me in my darkest moments, a simple gesture can remind me why I fight. These little things give me the strength to remember who I am!
Who am I? I hope to never know 100% who I am. Learning & growing is a part of living & I like being alive! 😉
I believe my gifts are found in being a caregiver. I am a giver by nature. I take joy in seeing others smile. I especially like to make others find their smiles when I am struggling to find my own.
For these reasons I know what it’s like to want to show someone how much you appreciate them for all the things, they do for you. I don’t believe I’m as good at this as I’d like to be.
I am blessed to be surrounded by some pretty amazing people. In my darkest days, even that is not enough. But all of their “little” gestures shine a little light into the darkness & eventually I find myself feeling better.
Some days the battle between my mind, heart & body turns into a full-blown war. Try as I may, to be positive and strong, I have to submit to feel what screams to be felt and wait for the darkness to pass.
On these days, the “little” things are appreciated beyond measure. The darkness is lonely & painful. I appreciate every single, tiny, little moment of light that is sent my way.
I’m not sure I could ever let people know how much these “little” things mean to me, to my survival, to my will to fight this disease.
I am determined to be better. I will show my appreciation to my husband who never fails to be there when I need him most, to my friends who know me well enough to see I’m in need, & to strangers who hold the door for me or smile while ringing up my groceries. I will be better.
When you live with an incurable, painful & disabling disease, you have an entirely different perspective on life.Continue reading SMILE MAIL, SHENANIGANS & THE TRAVELING LAUGHS
When you’re in pain & you can’t get help, you feel like you don’t matter.Continue reading WHO YOU GONNA CALL
I wrote about the loss of my aunt & uncle briefly in another post. But I’m keeping the promise I made to myself to write when my emotions are getting the best of me. So, here we go…again.Continue reading THAT LITTLE RED HOUSE VI: Sometimes The Demons Win
I signed my beautiful puppy up for puppy school. I think she’s laughing at me 🐾Continue reading PUPPY UNIVERSITY
When pain consumes me & my soul is tired, music is my Great Escape.Continue reading MUSIC TAKE ME AWAY
Continue reading JUST DO IT
“Hope begins in the dark”
That little red house had to be absolute hell for her. She certainly hid it well from us.Continue reading THAT LITTLE RED HOUSE V: Chantilly Lace
That little red house didn’t treat everyone equal.Continue reading THAT LITTLE RED HOUSE IV: We Made It
That little red house was so fun. All of the kids loved being there together. But at certain times it was the last place anyone wanted to be.Continue reading THAT LITTLE RED HOUSE III: Jellybean
When I first got sick, one of the things that I really struggled with, was people no longer seeing me.Continue reading SEE ME
One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.Continue reading I’M NOT A HYPOCHONDRIAC, I’M A REALIST
It hurts to think about all the things you miss because you’re sick.Continue reading THEY’LL NEVER KNOW ME HEALTHY & STRONG
When you ask people, where do you feel the safest? Most people will say home, without hesitation.Continue reading THAT LITTLE RED HOUSE II: That LRH Was A Liar
Ever been on the prescription carousel? 🎠Continue reading PRESCRIPTION CAROUSEL
I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.Continue reading THEY LOST ME AT, “WHY ARE YOU HERE”