We talk a lot about being grateful, thankful, blessed, positive, and many other things that pertain to how “we” feel. I realized this morning that try as I may, I don’t always let the people who create these feelings in me, know how much they mean to me.
Continue reading APPRECIATIONCategory Archives: EM
SMILE MAIL, SHENANIGANS & THE TRAVELING LAUGHS
When you live with an incurable, painful & disabling disease, you have an entirely different perspective on life.
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WHO YOU GONNA CALL
When you’re in pain & you can’t get help, you feel like you don’t matter.
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THAT LITTLE RED HOUSE VI: Sometimes The Demons Win
I wrote about the loss of my aunt & uncle briefly in another post. But I’m keeping the promise I made to myself to write when my emotions are getting the best of me. So, here we go…again.
Continue reading THAT LITTLE RED HOUSE VI: Sometimes The Demons Win
PUPPY UNIVERSITY
I signed my beautiful puppy up for puppy school. I think she’s laughing at me 🐾
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MUSIC TAKE ME AWAY
When pain consumes me & my soul is tired, music is my Great Escape.
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JUST DO IT
Continue reading JUST DO IT“Hope begins in the dark”
THAT LITTLE RED HOUSE V: Chantilly Lace
That little red house had to be absolute hell for her. She certainly hid it well from us.
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THAT LITTLE RED HOUSE IV: We Made It
That little red house didn’t treat everyone equal.
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THAT LITTLE RED HOUSE III: Jellybean
That little red house was so fun. All of the kids loved being there together. But at certain times it was the last place anyone wanted to be.
Continue reading THAT LITTLE RED HOUSE III: Jellybean
SEE ME
When I first got sick, one of the things that I really struggled with, was people no longer seeing me.
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I’M NOT A HYPOCHONDRIAC, I’M A REALIST
One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.
Continue reading I’M NOT A HYPOCHONDRIAC, I’M A REALIST
THEY’LL NEVER KNOW ME HEALTHY & STRONG
It hurts to think about all the things you miss because you’re sick.
Continue reading THEY’LL NEVER KNOW ME HEALTHY & STRONG
THAT LITTLE RED HOUSE II: That LRH Was A Liar
When you ask people, where do you feel the safest? Most people will say home, without hesitation.
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PRESCRIPTION CAROUSEL
Ever been on the prescription carousel? 🎠
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THEY LOST ME AT, “WHY ARE YOU HERE”
I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.
Continue reading THEY LOST ME AT, “WHY ARE YOU HERE”
THAT LITTLE RED HOUSE
I’ll be sharing a series of posts, (That Little Red House), about trauma experienced in childhood & it’s effects on our lives, bodies, minds & souls.
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HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
I wouldn’t know, I still don’t have mine.
Continue reading HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
SCLERODERMA WALKS
It’s hard to fight, an unknown enemy, when you don’t have a diagnosis, really hard!
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WEEKEND AWAY
My husband is amazing. Now don’t get me wrong, after 34 years we can annoy the 🤬 out of each other! But without him, I could not do this.
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Join Us Down The Illness Rabbit Hole 