Anyone who has battled a chronic illness, knows the struggle of fighting for answers.Continue reading SUBTLE CHANGES
Today I don’t want to dance.Continue reading THERE WILL BE NO DANCING TODAY
This damn pandemic.Continue reading PANDEMIC
Through all my battles, including infusions, I never would have imagined that a body could get this tired.Continue reading I’M FLIPPING EXHAUSTED
It happens so slowly in the middle of your, “searching for a diagnosis and some help”, storm.Continue reading WHERE IS EVERYONE WHO SAID THEY’D BE THERE?
My fB is full of so many who are in pain & requesting prayers. It breaks my heart. Pain & I are well acquainted.Continue reading PAIN AND I ARE WELL AQUAINTED
I’m going to share some of my old writing throughout the blog. Because time doesn’t ease the pain of some things we go through. Your words matter to those who hear them. Have no doubt we do hear you. ~EmContinue reading TIME DOESN’T EASE THE PAIN
When I first read this poem it touched my heart. Be patient read it through. Then change perspective and read it again. ❤️ ~EmContinue reading “I AM BROKEN”
Today I went grocery shopping. Seems simple, right? Well it’s not. Going shopping alone is crazy hard.Continue reading GROCERY SHOPPING
Today I was sitting here and I had 4 phone calls about medical appointments within a 20 minute period. Not one related to the other.Continue reading PTSD TRIGGERS
I’m only being honest and don’t want to offend anyone who works in the ER, as you know I worked in the ER for years, but they rarely know about my disease.Continue reading JUDGEMENT
Continue reading SPARKS IN THE DARK
…and then there’s a brief moment of light & it fuels your soul. You’re ready to continue the battle.
I had a doctors appointment today.Continue reading COMPASSION
So here I am at my yearly urology appointment.Continue reading HUMILIATION
Continue reading BLESSINGS IN THE DARKNESS
Faith not fear guides her way.
When you are living with an incurable disease, the best you can hope for is to manage your symptoms and to do everything possible to keep the disease from progressing. It’s what this entails that can push even the baddest badass over the edge.Continue reading ABANDONMENT
My hands are so painful.Continue reading PIXIE DUST PLEASE
The nurse from my doctors office just called, to tell me I have orders for labs. I asked her what for, her response, “I don’t know, I’ll have to ask the doctor”. 🤦♀️Continue reading SO THIS JUST HAPPENED
Today I’m lonely. Are there people I could call? Yes.Continue reading WILL TOMORROW BE BETTER? MAYBE.
For two nights in a row, I’ve had terrible flares.Continue reading FLARES & FOOD