Today I meet my cardiologist. Hoping everything goes really well. I’m not sure I can handle much more.Continue reading LET’S GO BACK PART VIII: Memories Take Me Away
Continue reading LET’S GO BACK PART VII: Waiting On Insurance
“It’s such a web that’s weaved. Each individual silk line slowly forming a web that those with an illness must live within”
I meet again, with the Lahey Rheumatologist, she will now be my primary doctor for my Systemic Sclerosis.Continue reading LET’S GO BACK PART VI: Another Appointment, Another Diagnosis
My husband & I journey 2 1/2 hours to Lahey Hospital for my 1000th, “second opinion”.Continue reading LET’S GO BACK PART V: The Results Are In
When that doctor disregarded me once again, I had no fight left. I crashed & I crashed hard.Continue reading LET’S GO BACK PART IV: Starting The Diagnosis Process All Over Again
Fast forward 10 years.Continue reading LET’S GO BACK PART III: Questioning My Diagnosis
I waited quite awhile before going to a neurologist.Continue reading LET’S GO BACK PART II: MS Diagnosis
In the early 2000’s, I was raising kids, working, & coaching. I ran nearly every day. It was my time, a chance to let go of stress & think over things.Continue reading LET’S GO BACK TO THE BEGINNING
A poem I wrote for an Agent Orange presentation.Continue reading CRACKED BUT UNBROKEN
When you’re young you feel invincible. I felt invincible.
One day I am living life, raising kids & working multiple jobs that I love. I am running nearly everyday, I’m healthy, strong and full of hopes and dreams. Together with my husband I am making plans for the future and above all, I am happy. Then like a tsunami hits the shore, I am hit with the biggest challenge of my life.
Come and join us down the illness rabbit hole. Where we will share our journeys through this life as ill and disabled people in an abled world. We met through a mutual commitment to fighting for children of Vietnam veterans whose medical issues are attributed to or presumed to be from their parents exposure to Agent Orange in Vietnam. Through our activism a friendship grew. Together we are a powerful force to be reckoned with.