LET’S GO BACK PART III: Questioning My Diagnosis

Fast forward 10 years.


My doctors are questioning my diagnosis. I’m getting sicker but I’m not following what they would expect from MS. They believe either there are 2 things going on, one neurological & one rheumatological, or that my MS diagnosis is wrong. They send me back to the same rheumatologist I saw before. . I cringe, I don’t want to go. But I do. Because let’s face it, at this point I’m a bag of cells, doing exactly what I’m being told to do. These highly educated doctors know best, right?

I’m taking 24 pills a day, still going for infusions every other month & I’m barely able to maintain the facade of being “fine”. Truth be told I’m screaming and no one can hear me. I feel like I’m falling and the bottom never comes.

I go the appointment with the rheumatologist, Dr Asshole M.D. He comes in and says the same exact thing. I don’t have telangiectasias, it’s all in my head. Only this time he says, “it’s not Scleroderma”. Hmmm another new big medical word.

I’m not happy.
I’m miserable.
Someone help me.

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