It sucks to finally save a tiny bit of money to go do something fun with the start of spring & then need a procedure 2 states away! Suddenly you have to spend said money & more on getting there & a hotel. Welcome to my āSpring Breakā.
Continue reading WELCOME TO MY SPRING BREAKAll posts by Em
MY MOMENTS MAY NOT BE EASY, BUT MY MEMORIES WILL BE BEAUTIFUL
I had to take a trip to Boston for an appointment on Friday. I went with my Mom & two of my granddaughtersā¦ girls trip!
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WHAT HAPPENS WHEN YOUR CAREGIVER GETS SICK
Come on in, take a seat. Iāll tell you, what happened when my caretaker got sick.
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BRAIN OVER BODY
I decided that my body is not making the rules this year! Iām creating a list of things I can do even on those days where I canāt even get out of bed.
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SOMEDAY IS TODAY
I have spent a lot of time thinking about my life, time & choices, since I became sick. But this year with the pandemic and Davidās health scare, I realized that Iām not the only one whoās āsomedaysā are limited. None of us know how many āsomedaysā we have left. The time has come. Someday is today.
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APPRECIATION
We talk a lot about being grateful, thankful, blessed, positive, and many other things that pertain to how āweā feel. I realized this morning that try as I may, I donāt always let the people who create these feelings in me, know how much they mean to me.
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SMILE MAIL, SHENANIGANS & THE TRAVELING LAUGHS
When you live with an incurable, painful & disabling disease, you have an entirely different perspective on life.
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WHO YOU GONNA CALL
When youāre in pain & you canāt get help, you feel like you donāt matter.
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THAT LITTLE RED HOUSE VI: Sometimes The Demons Win
I wrote about the loss of my aunt & uncle briefly in another post. But Iām keeping the promise I made to myself to write when my emotions are getting the best of me. So, here we goā¦again.
Continue reading THAT LITTLE RED HOUSE VI: Sometimes The Demons Win
PUPPY UNIVERSITY
I signed my beautiful puppy up for puppy school. I think sheās laughing at me š¾
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MUSIC TAKE ME AWAY
When pain consumes me & my soul is tired, music is my Great Escape.
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JUST DO IT
Continue reading JUST DO ITāHope begins in the darkā
THAT LITTLE RED HOUSE V: Chantilly Lace
That little red house had to be absolute hell for her. She certainly hid it well from us.
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THAT LITTLE RED HOUSE IV: We Made It
That little red house didnāt treat everyone equal.
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THAT LITTLE RED HOUSE III: Jellybean
That little red house was so fun. All of the kids loved being there together. But at certain times it was the last place anyone wanted to be.
Continue reading THAT LITTLE RED HOUSE III: Jellybean
SEE ME
When I first got sick, one of the things that I really struggled with, was people no longer seeing me.
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IāM NOT A HYPOCHONDRIAC, IāM A REALIST
One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.
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THEYāLL NEVER KNOW ME HEALTHY & STRONG
It hurts to think about all the things you miss because youāre sick.
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THAT LITTLE RED HOUSE II: That LRH Was A Liar
When you ask people, where do you feel the safest? Most people will say home, without hesitation.
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PRESCRIPTION CAROUSEL
Ever been on the prescription carousel? š
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