When I first got sick, one of the things that I really struggled with, was people no longer seeing me.
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I’M NOT A HYPOCHONDRIAC, I’M A REALIST
One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.
Continue reading I’M NOT A HYPOCHONDRIAC, I’M A REALIST
THEY’LL NEVER KNOW ME HEALTHY & STRONG
It hurts to think about all the things you miss because you’re sick.
Continue reading THEY’LL NEVER KNOW ME HEALTHY & STRONG
THAT LITTLE RED HOUSE II: That LRH Was A Liar
When you ask people, where do you feel the safest? Most people will say home, without hesitation.
Continue reading THAT LITTLE RED HOUSE II: That LRH Was A Liar
PRESCRIPTION CAROUSEL
Ever been on the prescription carousel? 🎠
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THEY LOST ME AT, “WHY ARE YOU HERE”
I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.
Continue reading THEY LOST ME AT, “WHY ARE YOU HERE”
THAT LITTLE RED HOUSE
I’ll be sharing a series of posts, (That Little Red House), about trauma experienced in childhood & it’s effects on our lives, bodies, minds & souls.
Continue reading THAT LITTLE RED HOUSE
HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
I wouldn’t know, I still don’t have mine.
Continue reading HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
SCLERODERMA WALKS
It’s hard to fight, an unknown enemy, when you don’t have a diagnosis, really hard!
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WEEKEND AWAY
My husband is amazing. Now don’t get me wrong, after 34 years we can annoy the 🤬 out of each other! But without him, I could not do this.
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LAUGHTER TRULY IS THE BEST MEDICINE
When you have a chronic illness or disability everything is more difficult.
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TRAPPED IN THE STRESS LOOP
Let’s talk stress. I’ve been doing really well for a few months now. Things have been really good.
Continue reading TRAPPED IN THE STRESS LOOP
LOSING INDEPENDENCE
There is something to be said for teaching our daughters to be strong, fearless and independent women.
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TRAVEL
Travel…ah ya ya
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NO MORE
At multiple points on this crazy ride, I became nothing but a mere shell of flesh & bones.
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WHEN…
When you have an incurable illness, you spend a lot of time going over the why’s.
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SUBTLE CHANGES
Anyone who has battled a chronic illness, knows the struggle of fighting for answers.
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THERE WILL BE NO DANCING TODAY
Today I don’t want to dance.
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PANDEMIC
This damn pandemic.
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I’M FLIPPING EXHAUSTED
Through all my battles, including infusions, I never would have imagined that a body could get this tired.
Continue reading I’M FLIPPING EXHAUSTED
Join Us Down The Illness Rabbit Hole 