My fB is full of so many who are in pain & requesting prayers. It breaks my heart. Pain & I are well acquainted.
Continue reading PAIN AND I ARE WELL AQUAINTEDTag Archives: systemic sclerosis
An incurable auto immune disease.
TIME DOESN’T EASE THE PAIN
I’m going to share some of my old writing throughout the blog. Because time doesn’t ease the pain of some things we go through. Your words matter to those who hear them. Have no doubt we do hear you. ~Em
Continue reading TIME DOESN’T EASE THE PAIN
GROCERY SHOPPING
Today I went grocery shopping. Seems simple, right? Well it’s not. Going shopping alone is crazy hard.
Continue reading GROCERY SHOPPING
PTSD TRIGGERS
Today I was sitting here and I had 4 phone calls about medical appointments within a 20 minute period. Not one related to the other.
Continue reading PTSD TRIGGERS
SPARKS IN THE DARK
Continue reading SPARKS IN THE DARK…and then there’s a brief moment of light & it fuels your soul. You’re ready to continue the battle.
COMPASSION
I had a doctors appointment today.
Continue reading COMPASSIONPIXIE DUST PLEASE
My hands are so painful.
Continue reading PIXIE DUST PLEASEFLARES & FOOD
For two nights in a row, I’ve had terrible flares.
Continue reading FLARES & FOODLET’S GO BACK PART X
It’s Dec 21, 2018. I’m off to Lahey.
Continue reading LET’S GO BACK PART X
LET’S GO BACK PART VII: Waiting On Insurance
Continue reading LET’S GO BACK PART VII: Waiting On Insurance“It’s such a web that’s weaved. Each individual silk line slowly forming a web that those with an illness must live within”
LET’S GO BACK PART VI: Another Appointment, Another Diagnosis
I meet again, with the Lahey Rheumatologist, she will now be my primary doctor for my Systemic Sclerosis.
Continue reading LET’S GO BACK PART VI: Another Appointment, Another Diagnosis
LET’S GO BACK PART V: The Results Are In
My husband & I journey 2 1/2 hours to Lahey Hospital for my 1000th, “second opinion”.
Continue reading LET’S GO BACK PART V: The Results Are In
LET’S GO BACK PART IV: Starting The Diagnosis Process All Over Again
When that doctor disregarded me once again, I had no fight left. I crashed & I crashed hard.
Continue reading LET’S GO BACK PART IV: Starting The Diagnosis Process All Over Again
AFTER THE TSUNAMI HITS
When you’re young you feel invincible. I felt invincible.
Join Us Down The Illness Rabbit Hole 