I signed my beautiful puppy up for puppy school. I think she’s laughing at me 🐾
Continue reading PUPPY UNIVERSITYTag Archives: scleroderma
MUSIC TAKE ME AWAY
When pain consumes me & my soul is tired, music is my Great Escape.
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SEE ME
When I first got sick, one of the things that I really struggled with, was people no longer seeing me.
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I’M NOT A HYPOCHONDRIAC, I’M A REALIST
One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.
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THEY LOST ME AT, “WHY ARE YOU HERE”
I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.
Continue reading THEY LOST ME AT, “WHY ARE YOU HERE”
HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
I wouldn’t know, I still don’t have mine.
Continue reading HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
SCLERODERMA WALKS
It’s hard to fight, an unknown enemy, when you don’t have a diagnosis, really hard!
Continue reading SCLERODERMA WALKS
WEEKEND AWAY
My husband is amazing. Now don’t get me wrong, after 34 years we can annoy the 🤬 out of each other! But without him, I could not do this.
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LAUGHTER TRULY IS THE BEST MEDICINE
When you have a chronic illness or disability everything is more difficult.
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TRAPPED IN THE STRESS LOOP
Let’s talk stress. I’ve been doing really well for a few months now. Things have been really good.
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LOSING INDEPENDENCE
There is something to be said for teaching our daughters to be strong, fearless and independent women.
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TRAVEL
Travel…ah ya ya
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NO MORE
At multiple points on this crazy ride, I became nothing but a mere shell of flesh & bones.
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WHEN…
When you have an incurable illness, you spend a lot of time going over the why’s.
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SUBTLE CHANGES
Anyone who has battled a chronic illness, knows the struggle of fighting for answers.
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THERE WILL BE NO DANCING TODAY
Today I don’t want to dance.
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PANDEMIC
This damn pandemic.
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I’M FLIPPING EXHAUSTED
Through all my battles, including infusions, I never would have imagined that a body could get this tired.
Continue reading I’M FLIPPING EXHAUSTED
WHERE IS EVERYONE WHO SAID THEY’D BE THERE?
It happens so slowly in the middle of your, “searching for a diagnosis and some help”, storm.
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PAIN AND I ARE WELL AQUAINTED
My fB is full of so many who are in pain & requesting prayers. It breaks my heart. Pain & I are well acquainted.
Continue reading PAIN AND I ARE WELL AQUAINTED
Join Us Down The Illness Rabbit Hole 