I signed my beautiful puppy up for puppy school. I think she’s laughing at me 🐾
Continue reading PUPPY UNIVERSITYTag Archives: systemic sclerosis
An incurable auto immune disease.
MUSIC TAKE ME AWAY
When pain consumes me & my soul is tired, music is my Great Escape.
Continue reading MUSIC TAKE ME AWAY
JUST DO IT
Continue reading JUST DO IT“Hope begins in the dark”
SEE ME
When I first got sick, one of the things that I really struggled with, was people no longer seeing me.
Continue reading SEE ME
I’M NOT A HYPOCHONDRIAC, I’M A REALIST
One of the most frustrating things about living with Scleroderma is waiting for the next symptom to show its face.
Continue reading I’M NOT A HYPOCHONDRIAC, I’M A REALIST
THEY LOST ME AT, “WHY ARE YOU HERE”
I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.
Continue reading THEY LOST ME AT, “WHY ARE YOU HERE”
HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
I wouldn’t know, I still don’t have mine.
Continue reading HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
SCLERODERMA WALKS
It’s hard to fight, an unknown enemy, when you don’t have a diagnosis, really hard!
Continue reading SCLERODERMA WALKS
WEEKEND AWAY
My husband is amazing. Now don’t get me wrong, after 34 years we can annoy the 🤬 out of each other! But without him, I could not do this.
Continue reading WEEKEND AWAY
LAUGHTER TRULY IS THE BEST MEDICINE
When you have a chronic illness or disability everything is more difficult.
Continue reading LAUGHTER TRULY IS THE BEST MEDICINE
TRAPPED IN THE STRESS LOOP
Let’s talk stress. I’ve been doing really well for a few months now. Things have been really good.
Continue reading TRAPPED IN THE STRESS LOOP
LOSING INDEPENDENCE
There is something to be said for teaching our daughters to be strong, fearless and independent women.
Continue reading LOSING INDEPENDENCE
TRAVEL
Travel…ah ya ya
Continue reading TRAVEL
NO MORE
At multiple points on this crazy ride, I became nothing but a mere shell of flesh & bones.
Continue reading NO MORE
WHEN…
When you have an incurable illness, you spend a lot of time going over the why’s.
Continue reading WHEN…
SUBTLE CHANGES
Anyone who has battled a chronic illness, knows the struggle of fighting for answers.
Continue reading SUBTLE CHANGES
THERE WILL BE NO DANCING TODAY
Today I don’t want to dance.
Continue reading THERE WILL BE NO DANCING TODAY
PANDEMIC
This damn pandemic.
Continue reading PANDEMIC
I’M FLIPPING EXHAUSTED
Through all my battles, including infusions, I never would have imagined that a body could get this tired.
Continue reading I’M FLIPPING EXHAUSTED
WHERE IS EVERYONE WHO SAID THEY’D BE THERE?
It happens so slowly in the middle of your, “searching for a diagnosis and some help”, storm.
Continue reading WHERE IS EVERYONE WHO SAID THEY’D BE THERE?
Join Us Down The Illness Rabbit Hole 