My fB is full of so many who are in pain & requesting prayers. It breaks my heart. Pain & I are well acquainted.
Continue reading PAIN AND I ARE WELL AQUAINTEDTIME DOESN’T EASE THE PAIN
I’m going to share some of my old writing throughout the blog. Because time doesn’t ease the pain of some things we go through. Your words matter to those who hear them. Have no doubt we do hear you. ~Em
Continue reading TIME DOESN’T EASE THE PAIN“I AM BROKEN”
When I first read this poem it touched my heart. Be patient read it through. Then change perspective and read it again. ❤️ ~Em
Continue reading “I AM BROKEN”GROCERY SHOPPING
Today I went grocery shopping. Seems simple, right? Well it’s not. Going shopping alone is crazy hard.
Continue reading GROCERY SHOPPINGPTSD TRIGGERS
Today I was sitting here and I had 4 phone calls about medical appointments within a 20 minute period. Not one related to the other.
Continue reading PTSD TRIGGERSJUDGEMENT
I’m only being honest and don’t want to offend anyone who works in the ER, as you know I worked in the ER for years, but they rarely know about my disease.
Continue reading JUDGEMENTSPARKS IN THE DARK
Continue reading SPARKS IN THE DARK…and then there’s a brief moment of light & it fuels your soul. You’re ready to continue the battle.
COMPASSION
I had a doctors appointment today.
Continue reading COMPASSIONHUMILIATION
So here I am at my yearly urology appointment.
Continue reading HUMILIATIONBLESSINGS IN THE DARKNESS
Continue reading BLESSINGS IN THE DARKNESSFaith not fear guides her way.
ABANDONMENT
When you are living with an incurable disease, the best you can hope for is to manage your symptoms and to do everything possible to keep the disease from progressing. It’s what this entails that can push even the baddest badass over the edge.
Continue reading ABANDONMENTPIXIE DUST PLEASE
My hands are so painful.
Continue reading PIXIE DUST PLEASESO THIS JUST HAPPENED
The nurse from my doctors office just called, to tell me I have orders for labs. I asked her what for, her response, “I don’t know, I’ll have to ask the doctor”. 🤦♀️
Continue reading SO THIS JUST HAPPENEDWILL TOMORROW BE BETTER? MAYBE.
Today I’m lonely. Are there people I could call? Yes.
Continue reading WILL TOMORROW BE BETTER? MAYBE.FLARES & FOOD
For two nights in a row, I’ve had terrible flares.
Continue reading FLARES & FOODLET’S GO BACK PART XII
It’s the day of my heart cath, January 2019.
Continue reading LET’S GO BACK PART XIILET’S GO BACK PART XI
Merry Christmas to me. 🎄
Continue reading LET’S GO BACK PART XILET’S GO BACK PART X
It’s Dec 21, 2018. I’m off to Lahey.
Continue reading LET’S GO BACK PART XLET’S GO BACK PART IX
Next up facing the feeding tube discussion with the GI doc. Even thinking about discussing it, makes me cringe.
Continue reading LET’S GO BACK PART IXLET’S GO BACK PART VIII: Memories Take Me Away
Today I meet my cardiologist. Hoping everything goes really well. I’m not sure I can handle much more.
Continue reading LET’S GO BACK PART VIII: Memories Take Me Away