Today I was sitting here and I had 4 phone calls about medical appointments within a 20 minute period. Not one related to the other.
Continue reading PTSD TRIGGERSAll posts by Em
JUDGEMENT
Iām only being honest and donāt want to offend anyone who works in the ER, as you know I worked in the ER for years, but they rarely know about my disease.
Continue reading JUDGEMENTSPARKS IN THE DARK
Continue reading SPARKS IN THE DARKā¦and then thereās a brief moment of light & it fuels your soul. Youāre ready to continue the battle.
COMPASSION
I had a doctors appointment today.
Continue reading COMPASSIONHUMILIATION
So here I am at my yearly urology appointment.
Continue reading HUMILIATIONBLESSINGS IN THE DARKNESS
Continue reading BLESSINGS IN THE DARKNESSFaith not fear guides her way.
ABANDONMENT
When you are living with an incurable disease, the best you can hope for is to manage your symptoms and to do everything possible to keep the disease from progressing. Itās what this entails that can push even the baddest badass over the edge.
Continue reading ABANDONMENTPIXIE DUST PLEASE
My hands are so painful.
Continue reading PIXIE DUST PLEASESO THIS JUST HAPPENED
The nurse from my doctors office just called, to tell me I have orders for labs. I asked her what for, her response, āI donāt know, Iāll have to ask the doctorā. š¤¦āāļø
Continue reading SO THIS JUST HAPPENEDWILL TOMORROW BE BETTER? MAYBE.
Today Iām lonely. Are there people I could call? Yes.
Continue reading WILL TOMORROW BE BETTER? MAYBE.FLARES & FOOD
For two nights in a row, Iāve had terrible flares.
Continue reading FLARES & FOODLETāS GO BACK PART XII
Itās the day of my heart cath, January 2019.
Continue reading LETāS GO BACK PART XIILETāS GO BACK PART XI
Merry Christmas to me. š
Continue reading LETāS GO BACK PART XILETāS GO BACK PART X
Itās Dec 21, 2018. Iām off to Lahey.
Continue reading LETāS GO BACK PART XLETāS GO BACK PART IX
Next up facing the feeding tube discussion with the GI doc. Even thinking about discussing it, makes me cringe.
Continue reading LETāS GO BACK PART IXLETāS GO BACK PART VIII: Memories Take Me Away
Today I meet my cardiologist. Hoping everything goes really well. Iām not sure I can handle much more.
Continue reading LETāS GO BACK PART VIII: Memories Take Me AwayLETāS GO BACK PART VII: Waiting On Insurance
Continue reading LETāS GO BACK PART VII: Waiting On InsuranceāItās such a web thatās weaved. Each individual silk line slowly forming a web that those with an illness must live withinā
LETāS GO BACK PART VI: Another Appointment, Another Diagnosis
I meet again, with the Lahey Rheumatologist, she will now be my primary doctor for my Systemic Sclerosis.
Continue reading LETāS GO BACK PART VI: Another Appointment, Another DiagnosisLETāS GO BACK PART V: The Results Are In
My husband & I journey 2 1/2 hours to Lahey Hospital for my 1000th, āsecond opinionā.
Continue reading LETāS GO BACK PART V: The Results Are InLETāS GO BACK PART IV: Starting The Diagnosis Process All Over Again
When that doctor disregarded me once again, I had no fight left. I crashed & I crashed hard.
Continue reading LETāS GO BACK PART IV: Starting The Diagnosis Process All Over Again