Today I was sitting here and I had 4 phone calls about medical appointments within a 20 minute period. Not one related to the other.
Continue reading PTSD TRIGGERSAll posts by Em
JUDGEMENT
Iβm only being honest and donβt want to offend anyone who works in the ER, as you know I worked in the ER for years, but they rarely know about my disease.
Continue reading JUDGEMENTSPARKS IN THE DARK
Continue reading SPARKS IN THE DARKβ¦and then thereβs a brief moment of light & it fuels your soul. Youβre ready to continue the battle.
COMPASSION
I had a doctors appointment today.
Continue reading COMPASSIONHUMILIATION
So here I am at my yearly urology appointment.
Continue reading HUMILIATIONBLESSINGS IN THE DARKNESS
Continue reading BLESSINGS IN THE DARKNESSFaith not fear guides her way.
ABANDONMENT
When you are living with an incurable disease, the best you can hope for is to manage your symptoms and to do everything possible to keep the disease from progressing. Itβs what this entails that can push even the baddest badass over the edge.
Continue reading ABANDONMENTPIXIE DUST PLEASE
My hands are so painful.
Continue reading PIXIE DUST PLEASESO THIS JUST HAPPENED
The nurse from my doctors office just called, to tell me I have orders for labs. I asked her what for, her response, βI donβt know, Iβll have to ask the doctorβ. π€¦ββοΈ
Continue reading SO THIS JUST HAPPENEDWILL TOMORROW BE BETTER? MAYBE.
Today Iβm lonely. Are there people I could call? Yes.
Continue reading WILL TOMORROW BE BETTER? MAYBE.FLARES & FOOD
For two nights in a row, Iβve had terrible flares.
Continue reading FLARES & FOODLETβS GO BACK PART XII
Itβs the day of my heart cath, January 2019.
Continue reading LETβS GO BACK PART XIILETβS GO BACK PART XI
Merry Christmas to me. π
Continue reading LETβS GO BACK PART XILETβS GO BACK PART X
Itβs Dec 21, 2018. Iβm off to Lahey.
Continue reading LETβS GO BACK PART XLETβS GO BACK PART IX
Next up facing the feeding tube discussion with the GI doc. Even thinking about discussing it, makes me cringe.
Continue reading LETβS GO BACK PART IXLETβS GO BACK PART VIII: Memories Take Me Away
Today I meet my cardiologist. Hoping everything goes really well. Iβm not sure I can handle much more.
Continue reading LETβS GO BACK PART VIII: Memories Take Me AwayLETβS GO BACK PART VII: Waiting On Insurance
Continue reading LETβS GO BACK PART VII: Waiting On InsuranceβItβs such a web thatβs weaved. Each individual silk line slowly forming a web that those with an illness must live withinβ
LETβS GO BACK PART VI: Another Appointment, Another Diagnosis
I meet again, with the Lahey Rheumatologist, she will now be my primary doctor for my Systemic Sclerosis.
Continue reading LETβS GO BACK PART VI: Another Appointment, Another DiagnosisLETβS GO BACK PART V: The Results Are In
My husband & I journey 2 1/2 hours to Lahey Hospital for my 1000th, βsecond opinionβ.
Continue reading LETβS GO BACK PART V: The Results Are InLETβS GO BACK PART IV: Starting The Diagnosis Process All Over Again
When that doctor disregarded me once again, I had no fight left. I crashed & I crashed hard.
Continue reading LETβS GO BACK PART IV: Starting The Diagnosis Process All Over Again