I’ve been sitting here trying to handle everything that comes when I have multiple appointments coming up, in Massachusetts. Fuel, someone to drive & help me, do I need to spend the night, etc… It has me thinking about the first time I went, how it began & what it’s like to feel like your medical care is strung together by a thin thread that you are trying to hold together.
Continue reading THEY LOST ME AT, “WHY ARE YOU HERE”All posts by Em
THAT LITTLE RED HOUSE
I’ll be sharing a series of posts, (That Little Red House), about trauma experienced in childhood & it’s effects on our lives, bodies, minds & souls.
Continue reading THAT LITTLE RED HOUSE
HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
I wouldn’t know, I still don’t have mine.
Continue reading HOW LONG DOES IT TAKE TO GET A WHEELCHAIR?
SCLERODERMA WALKS
It’s hard to fight, an unknown enemy, when you don’t have a diagnosis, really hard!
Continue reading SCLERODERMA WALKS
WEEKEND AWAY
My husband is amazing. Now don’t get me wrong, after 34 years we can annoy the 🤬 out of each other! But without him, I could not do this.
Continue reading WEEKEND AWAY
LAUGHTER TRULY IS THE BEST MEDICINE
When you have a chronic illness or disability everything is more difficult.
Continue reading LAUGHTER TRULY IS THE BEST MEDICINE
TRAPPED IN THE STRESS LOOP
Let’s talk stress. I’ve been doing really well for a few months now. Things have been really good.
Continue reading TRAPPED IN THE STRESS LOOP
LOSING INDEPENDENCE
There is something to be said for teaching our daughters to be strong, fearless and independent women.
Continue reading LOSING INDEPENDENCE
TRAVEL
Travel…ah ya ya
Continue reading TRAVEL
NO MORE
At multiple points on this crazy ride, I became nothing but a mere shell of flesh & bones.
Continue reading NO MORE
WHEN…
When you have an incurable illness, you spend a lot of time going over the why’s.
Continue reading WHEN…
SUBTLE CHANGES
Anyone who has battled a chronic illness, knows the struggle of fighting for answers.
Continue reading SUBTLE CHANGES
THERE WILL BE NO DANCING TODAY
Today I don’t want to dance.
Continue reading THERE WILL BE NO DANCING TODAY
PANDEMIC
This damn pandemic.
Continue reading PANDEMIC
I’M FLIPPING EXHAUSTED
Through all my battles, including infusions, I never would have imagined that a body could get this tired.
Continue reading I’M FLIPPING EXHAUSTED
WHERE IS EVERYONE WHO SAID THEY’D BE THERE?
It happens so slowly in the middle of your, “searching for a diagnosis and some help”, storm.
Continue reading WHERE IS EVERYONE WHO SAID THEY’D BE THERE?
PAIN AND I ARE WELL AQUAINTED
My fB is full of so many who are in pain & requesting prayers. It breaks my heart. Pain & I are well acquainted.
Continue reading PAIN AND I ARE WELL AQUAINTED
TIME DOESN’T EASE THE PAIN
I’m going to share some of my old writing throughout the blog. Because time doesn’t ease the pain of some things we go through. Your words matter to those who hear them. Have no doubt we do hear you. ~Em
Continue reading TIME DOESN’T EASE THE PAIN
“I AM BROKEN”
When I first read this poem it touched my heart. Be patient read it through. Then change perspective and read it again. ❤️ ~Em
Continue reading “I AM BROKEN”
GROCERY SHOPPING
Today I went grocery shopping. Seems simple, right? Well it’s not. Going shopping alone is crazy hard.
Continue reading GROCERY SHOPPING
Join Us Down The Illness Rabbit Hole 