Today I was sitting here and I had 4 phone calls about medical appointments within a 20 minute period. Not one related to the other.
Continue reading PTSD TRIGGERSCategory Archives: EM
JUDGEMENT
I’m only being honest and don’t want to offend anyone who works in the ER, as you know I worked in the ER for years, but they rarely know about my disease.
Continue reading JUDGEMENT
SPARKS IN THE DARK
Continue reading SPARKS IN THE DARK…and then there’s a brief moment of light & it fuels your soul. You’re ready to continue the battle.
COMPASSION
I had a doctors appointment today.
Continue reading COMPASSION
HUMILIATION
So here I am at my yearly urology appointment.
Continue reading HUMILIATION
BLESSINGS IN THE DARKNESS
Continue reading BLESSINGS IN THE DARKNESSFaith not fear guides her way.
ABANDONMENT
When you are living with an incurable disease, the best you can hope for is to manage your symptoms and to do everything possible to keep the disease from progressing. It’s what this entails that can push even the baddest badass over the edge.
Continue reading ABANDONMENTPIXIE DUST PLEASE
My hands are so painful.
Continue reading PIXIE DUST PLEASESO THIS JUST HAPPENED
The nurse from my doctors office just called, to tell me I have orders for labs. I asked her what for, her response, “I don’t know, I’ll have to ask the doctor”. 🤦♀️
Continue reading SO THIS JUST HAPPENEDWILL TOMORROW BE BETTER? MAYBE.
Today I’m lonely. Are there people I could call? Yes.
Continue reading WILL TOMORROW BE BETTER? MAYBE.FLARES & FOOD
For two nights in a row, I’ve had terrible flares.
Continue reading FLARES & FOODLET’S GO BACK PART XII
It’s the day of my heart cath, January 2019.
Continue reading LET’S GO BACK PART XIILET’S GO BACK PART XI
Merry Christmas to me. 🎄
Continue reading LET’S GO BACK PART XILET’S GO BACK PART X
It’s Dec 21, 2018. I’m off to Lahey.
Continue reading LET’S GO BACK PART XLET’S GO BACK PART IX
Next up facing the feeding tube discussion with the GI doc. Even thinking about discussing it, makes me cringe.
Continue reading LET’S GO BACK PART IXLET’S GO BACK PART VIII: Memories Take Me Away
Today I meet my cardiologist. Hoping everything goes really well. I’m not sure I can handle much more.
Continue reading LET’S GO BACK PART VIII: Memories Take Me Away
LET’S GO BACK PART VII: Waiting On Insurance
Continue reading LET’S GO BACK PART VII: Waiting On Insurance“It’s such a web that’s weaved. Each individual silk line slowly forming a web that those with an illness must live within”
LET’S GO BACK PART VI: Another Appointment, Another Diagnosis
I meet again, with the Lahey Rheumatologist, she will now be my primary doctor for my Systemic Sclerosis.
Continue reading LET’S GO BACK PART VI: Another Appointment, Another Diagnosis
LET’S GO BACK PART V: The Results Are In
My husband & I journey 2 1/2 hours to Lahey Hospital for my 1000th, “second opinion”.
Continue reading LET’S GO BACK PART V: The Results Are In
LET’S GO BACK PART IV: Starting The Diagnosis Process All Over Again
When that doctor disregarded me once again, I had no fight left. I crashed & I crashed hard.
Continue reading LET’S GO BACK PART IV: Starting The Diagnosis Process All Over Again
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